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waterspout4
My loves
Member since 5/06 19150 total posts
Name:
Kelly
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Newest blood tests came back today! (UPDATE FRIDAY)
DS's numbers are 'better' as the dr put it, but still not normal. Most of his counts nearly doubled, so we are encouraged!
Where do we go from here? Not really sure. His normal dr wasn't there today, which really resulted in the entire office thinking I am nuts.  Well, I called this morning to see if the results were in. They said yes but that his doctor wasn't in today, so she would call us tomorrow.
As you would assume, that didn't fly with me.  You want me to wait another day?!?!?!?! I told them I didn't care which dr talked to me TODAY, but I wanted the results. (I then explained the situation to the receptionist, so she didn't think I was fully b!tchy.) They said the male dr would call me back.
I waited an hour, then couldn't take it anymore. I went right to the office. (They were going to close for their lunch in about 20 min and I couldn't wait through all that.) I explained myself again and they said the dr would see me. I apologized to the dr for barging in and he said "Please, we are here to help you and your son."
Since he doesn't typically deal with DS, he said the dr would talk to us tomorrow about what to do next. He thinks they will probably want to repeat the bloodwork in a few weeks.
But this is encouraging! Fingers crossed for good stuff from now on! Thank you all for your prayers!
Now I wonder if my son's medical file is marked "crazy mom". I feel like that Seinfeld episode.
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UPDATE:
Our excitement has been short lived. DS is seeing the pediatric oncologist on Tuesday.
Message edited 6/11/2010 4:56:29 PM.
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Posted 6/10/10 4:03 PM  |
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maybeamommy
Blessed beyond belief
Member since 10/07 17048 total posts
Name:
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Re: Newest blood tests came back today!
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| Posted 6/10/10 4:04 PM |
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Peainapod
Peanuts are here!
Member since 1/09 13591 total posts
Name:
Diana
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Re: Newest blood tests came back today!
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| Posted 6/10/10 4:04 PM |
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LoveBeingMrsT
Love my Boys!
Member since 12/05 4648 total posts
Name:
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Re: Newest blood tests came back today!
i'm so glad the results are better!!! maybe go to a specialist to get another opinion while you wait? the waiting must be awful and if they don't get that then f em!
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| Posted 6/10/10 4:08 PM |
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brownie
Baby #1 is here!
Member since 11/08 13903 total posts
Name:
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Re: Newest blood tests came back today!
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| Posted 6/10/10 4:09 PM |
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waterspout4
My loves
Member since 5/06 19150 total posts
Name:
Kelly
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Re: Newest blood tests came back today!
Posted by LoveBeingMrsT
i'm so glad the results are better!!! maybe go to a specialist to get another opinion while you wait? the waiting must be awful and if they don't get that then f em!
I have a feeling this will be happening anyway. The hematologist/oncologist has been waiting for these results. Our normal dr is the one that has been working with the specialist. So I am assuming we are going there next. Because: Even if his blood tests went up this week (which they did), they are still not good and he is having problems fighting off infections. So something isn't right.
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| Posted 6/10/10 4:11 PM |
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pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
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Re: Newest blood tests came back today!
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| Posted 6/10/10 4:14 PM |
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Michelle1123
Baby #5 on the way!
Member since 9/05 7919 total posts
Name:
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Re: Newest blood tests came back today!
Woohoo! It sounds like he was sick and is getting better and his blood results were just screwey from that!
There is no way that that boy is seriously sick with something like leukemia!
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| Posted 6/10/10 4:22 PM |
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stickydust
Now a mommy of 2!!!
Member since 4/06 3164 total posts
Name:
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Re: Newest blood tests came back today!
That is such encouraging news!! I am praying that it continues to improve and turns out to be nothing. I think my next step would probably be a pediatric Hematologist - to eliminate as much doubt as possible.
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| Posted 6/10/10 4:26 PM |
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ali120206
2 Boys
Member since 7/06 17792 total posts
Name:
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Re: Newest blood tests came back today!
I'm glad the results are better!
I don't think you are marked as a crazy mom!
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| Posted 6/10/10 4:33 PM |
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mommy2bella
Where does time go?
Member since 12/05 9747 total posts
Name:
Kelly
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Re: Newest blood tests came back today!
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| Posted 6/10/10 4:35 PM |
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Bridex100
Two Under Two Mommy
Member since 3/08 10420 total posts
Name:
Momx100
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Re: Newest blood tests came back today!
I'm so glad the results were better.
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| Posted 6/10/10 4:37 PM |
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smdl
I love Gary too..on a plate!
Member since 5/06 32461 total posts
Name:
me
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Re: Newest blood tests came back today!
This is encouraging and going in the right direction! The wait is agonizing. Not getting a straight answer is beyond unerving!
Message edited 6/10/2010 4:42:23 PM.
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| Posted 6/10/10 4:42 PM |
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waterspout4
My loves
Member since 5/06 19150 total posts
Name:
Kelly
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Re: Newest blood tests came back today!
Posted by ali120206
I'm glad the results are better!
I don't think you are marked as a crazy mom!
When I sat in their office until they gave me answers today, I am pretty sure they marked something down on me.
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| Posted 6/10/10 4:42 PM |
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jerseypanda
Life is good.
Member since 1/07 9164 total posts
Name:
Amanda
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Re: Newest blood tests came back today!
Posted by waterspout4
Posted by ali120206
I'm glad the results are better!
I don't think you are marked as a crazy mom!
When I sat in their office until they gave me answers today, I am pretty sure they marked something down on me.
Definitely not a crazy mom... you are a mom who cares about her son!!!
Glad to hear things are better. Will continue to think happy thoughts that your little man puts this behind him!
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| Posted 6/10/10 4:59 PM |
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Re: Newest blood tests came back today!
Posted by waterspout4
Posted by ali120206
I'm glad the results are better!
I don't think you are marked as a crazy mom!
When I sat in their office until they gave me answers today, I am pretty sure they marked something down on me.
I've sat there to get medical records for clients after their doctors didn't respond to my requests. When I eventually got the records, there was no indication about "crazy disability lawyer."
I am glad he is doing a bit better. Maybe you can find out about some safe supplements for him for the time being since he'll be around other kids and you don't want him or anyone else to get sick.
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| Posted 6/10/10 5:07 PM |
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Dani922
Here's to new beginnings
Member since 10/07 7260 total posts
Name:
Danielle
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Re: Newest blood tests came back today!
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| Posted 6/10/10 5:12 PM |
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nrthshgrl
It goes fast. Pay attention.
Member since 7/05 57538 total posts
Name:
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Re: Newest blood tests came back today!
I'm taking the waterspouts coming this way as a huge sign that it will all work out! 
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| Posted 6/10/10 7:24 PM |
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OOSMommy
LIF Adolescent
Member since 10/09 860 total posts
Name:
me
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Re: Newest blood tests came back today!
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| Posted 6/10/10 7:53 PM |
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nicrae
He's here!
Member since 12/06 9289 total posts
Name:
Mommy
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Re: Newest blood tests came back today!
I don't think you are crazy at all!!! Glad the results are getting better.
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| Posted 6/10/10 7:57 PM |
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TaraHutch
True beauty
Member since 10/07 9888 total posts
Name:
Tara
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Re: Newest blood tests came back today!
So glad to hear some encouraging news!! Gonna keep
I don't blame you ONE BIT for what you did- I would have done the same thing, and hell no, you are NOT crazy!!!
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| Posted 6/10/10 8:34 PM |
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Deedlebugs
Blessed
Member since 12/05 10281 total posts
Name:
Kiki
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Re: Newest blood tests came back today!
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| Posted 6/10/10 8:35 PM |
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Re: Newest blood tests came back today!
So happy things are looking better!!!
Message edited 6/10/2010 8:46:15 PM.
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| Posted 6/10/10 8:45 PM |
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waterspout4
My loves
Member since 5/06 19150 total posts
Name:
Kelly
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Re: Newest blood tests came back today!
Posted by nrthshgrl
I'm taking the waterspouts coming this way as a huge sign that it will all work out!
I did see some wicked rotation in the clouds where I was. I wonder if anything dropped on the sound.
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| Posted 6/10/10 9:00 PM |
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mooshyboo
So Blessed!
Member since 11/07 6297 total posts
Name:
Christine
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Re: Newest blood tests came back today!
I am happy to hear things look more positive lots of that everything turns out positive!
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| Posted 6/10/10 10:03 PM |
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