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chilltocam
LIF Adult
Member since 11/11 9141 total posts
Name:
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Please hug your babies UPDATE page 19
Great news! Glad to hear such a positive update!
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Posted 3/4/16 10:06 AM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
JDubs
different, not less
Member since 7/09 13160 total posts
Name:
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Re: Please hug your babies UPDATE page 19
great news!
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| Posted 3/4/16 10:07 AM |
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KPanas
LIF Adult
Member since 10/09 1691 total posts
Name:
Kathy
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Re: Please hug your babies UPDATE page 19
Posted by ElizaRags35
Big news! Lila smiled! Not her big cheeky smile but a smile nonetheless. And there were witnesses so I know it wasn't in my head. Also, she drank 10mls from a bottle! It took a little while but she did it all on her own!
The hospital has mentioned on several occasions that there really isn't much that's keeping her here anymore. She can go home with the ng tube and receive home health and therapy services. We weren't thrilled with that idea. Today they presented me with a possible alternative to send her to St. Mary's children's hospital to receive inpatient rehab and therapy. They won't have a bed until sometime early next week and Lila will be able to stay here at SB and continue to be treated until it's time to transfer. It's not set in stone but we think that, even though it's not very close to home, it would give Lila a better opportunity to get back to or as close to normal as possible, much faster than having to wait for evaluations to qualify for EI services.
Glad to hear she is doing better! I always come to check on updates. I work at St Marys, let me know if you have any questions!
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| Posted 3/4/16 10:42 AM |
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SLPRunner
LIF Adult
Member since 12/13 1101 total posts
Name:
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Re: Please hug your babies UPDATE page 19
Posted by ElizaRags35
Big news! Lila smiled! Not her big cheeky smile but a smile nonetheless. And there were witnesses so I know it wasn't in my head. Also, she drank 10mls from a bottle! It took a little while but she did it all on her own!
The hospital has mentioned on several occasions that there really isn't much that's keeping her here anymore. She can go home with the ng tube and receive home health and therapy services. We weren't thrilled with that idea. Today they presented me with a possible alternative to send her to St. Mary's children's hospital to receive inpatient rehab and therapy. They won't have a bed until sometime early next week and Lila will be able to stay here at SB and continue to be treated until it's time to transfer. It's not set in stone but we think that, even though it's not very close to home, it would give Lila a better opportunity to get back to or as close to normal as possible, much faster than having to wait for evaluations to qualify for EI services.
So happy to hear Lila is doing better! I know St. Marys is not close for you. But their rehab team is great. Especially their speech pathologists are trained in transitioning kids off feeding tubes. It's their specialty. Even if you get a speech pathologist through EI with feeding therapy experience they probably won't have the same expertiese as the team at St. Marys. Something to consider.
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| Posted 3/4/16 12:10 PM |
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ElizaRags35
My 2 Girls
Member since 2/09 20494 total posts
Name:
Me
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Please hug your babies UPDATE page 19
It's so reassuring to hear such great things about St Mary's. They've put in for a referral so now we're just waiting I guess.
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| Posted 3/4/16 2:18 PM |
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ANewDayHasCome
Love multiplies, not divides
Member since 11/12 14481 total posts
Name:
Me
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Please hug your babies UPDATE page 19
Great update. Gave me chills.
I have a friend who does early intervention and she said st Mary's is great for therapies
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| Posted 3/4/16 2:22 PM |
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MayBbaby21
Baby no. 3 coming soon!
Member since 6/09 5738 total posts
Name:
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Re: Please hug your babies UPDATE page 19
Amazing update! I come on here every day just to look for an update on Lila. She's a strong little girl!
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| Posted 3/4/16 3:43 PM |
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Dani
Life is about choices.
Member since 5/05 6532 total posts
Name:
Dani
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Re: Please hug your babies UPDATE page 19
omg im crying tears of joy!! i am so thrilled to hear this!! 
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| Posted 3/4/16 5:29 PM |
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MichLiz213
Life is Good!
Member since 7/07 7979 total posts
Name:
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Please hug your babies UPDATE page 19
Fantastic update!
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| Posted 3/4/16 6:23 PM |
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cowgirlkate
Twins times TWO!
Member since 1/11 1197 total posts
Name:
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Re: Please hug your babies UPDATE page 19
Sounds like good news!!! Sending positive thoughts your way.
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| Posted 3/4/16 7:50 PM |
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luvmykids8
LIF Adult
Member since 9/15 2050 total posts
Name:
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Please hug your babies UPDATE page 19
That's amazing news!!!! Yay!
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| Posted 3/4/16 8:00 PM |
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Ellynrose
LIF Adult
Member since 10/11 1714 total posts
Name:
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Please hug your babies UPDATE page 19
What wonderful news! Gave me goosebumps!
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| Posted 3/4/16 8:20 PM |
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BabySurprise
LIF Adolescent
Member since 9/13 556 total posts
Name:
Me
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Please hug your babies UPDATE page 19
So happy to hear this!
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| Posted 3/4/16 8:47 PM |
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ElizaRags35
My 2 Girls
Member since 2/09 20494 total posts
Name:
Me
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Re: Please hug your babies UPDATE page 19
Lets see if this works...
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| Posted 3/4/16 10:09 PM |
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Maddie180
LIF Adult
Member since 2/07 1992 total posts
Name:
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Re: Please hug your babies UPDATE page 20
Posted by ElizaRags35
Lets see if this works...
She's adorable! Prayers to you!!
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| Posted 3/4/16 10:21 PM |
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MrsT809
LIF Adult
Member since 9/09 12167 total posts
Name:
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Re: Please hug your babies UPDATE page 20
It works and it totally just made my night! Thanks for sharing with all of us. I'm so glad you're really starting to get your girl back.
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| Posted 3/4/16 10:23 PM |
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Loveme
LIF Adult
Member since 6/11 3170 total posts
Name:
Me
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Please hug your babies UPDATE page 20
That video made me tear up!!! So happy for you!
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| Posted 3/4/16 10:24 PM |
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dajc23
My Loves :)
Member since 1/09 4980 total posts
Name:
Dana
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Re: Please hug your babies UPDATE page 20
Omg she is too cute!! What a great update!
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| Posted 3/4/16 10:33 PM |
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Wishes1111
LIF Adolescent
Member since 12/10 853 total posts
Name:
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Re: Please hug your babies UPDATE page 20
That video is wonderful! Thanks for sharing & so happy she is smiling so
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| Posted 3/4/16 10:34 PM |
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hmm
Sweet
Member since 1/14 7993 total posts
Name:
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Re: Please hug your babies UPDATE page 20
Posted by Wishes1111
That video is wonderful! Thanks for sharing & so happy she is smiling so
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| Posted 3/4/16 10:36 PM |
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dlj97
LIF Adult
Member since 7/10 4399 total posts
Name:
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Re: Please hug your babies UPDATE page 20
Posted by Loveme
That video made me tear up!!! So happy for you!
Same here. Looks like she is doing much better. I am so happy for you. Good luck getting into st. Mary's.
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| Posted 3/4/16 10:37 PM |
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METLove2008
LIF Adolescent
Member since 5/08 541 total posts
Name:
Ellie
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Re: Please hug your babies UPDATE page 20
Posted by Loveme
That video made me tear up!!! So happy for you!
So happy to see she's doing well!
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| Posted 3/4/16 10:41 PM |
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Lara&Aidansmommy
For mom i miss u ETC ILOVEU
Member since 3/07 13921 total posts
Name:
ETC I LOVE YOU
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Re: Please hug your babies UPDATE page 20
Oh look at her.. God bless her little self. She looks happy. That should make you melt with happiness. You have been soooo amazing. As much as you feel lucky to be her mom. Lila is just as lucky to have such an amazing mom!!
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| Posted 3/4/16 10:47 PM |
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Rosie0613
LIF Adolescent
Member since 8/10 875 total posts
Name:
Rosie
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Re: Please hug your babies UPDATE page 20
What a great video!! Thanks for sharing. What a sweetie pie, she is going great!!
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| Posted 3/4/16 10:59 PM |
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StaceyWill
It's a girl!!!
Member since 6/10 21539 total posts
Name:
Stacey
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Please hug your babies UPDATE page 20
OMG, I can't stop watching!! Love it!!
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| Posted 3/4/16 11:23 PM |
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