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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by jessnbrian
Posted by MorningCuppaCoffee
I have mixed opinions about it. I feel like I need more info and not just what the media is/isn't saying.
Also, with that said, since I work in the field I do have some experience with New Beginnings.
They are a good organization, however, they are also a survivor-run organization.
This view sometimes clouds reality in my professional opinion.
I've had someone who works there say some not so appropriate things when I felt I could not safely service a case or provide what they were looking for when they were trying to advocate for certain brain injured individuals to obtain services that were not appropriate. With that said, I get that it's coming from a place of good so I didn't take it personally.
I am very much interested to see how this story plays out.
I held a current events group the other day with some of my clients who have TBI and I have never seen them get so passionate about a subject in a long time. It was actually pretty exciting to watch. Many of them were told they weren't gonna live either.
Do you work much with HBOT? I worked at a wound care clinic that had a free-standing multiperson HBOT chamber a few years back. It was so amazing to see the changes that were made with the therapy in the TBI patients.... none were considered brain DEAD, a lot of drowning victims.
No. Not really. I don't think that is something that is really covered by insurance.
I want to have one of my social work students do some research on this kind of stuff.
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Posted 1/10/14 4:44 PM  |
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Goobster
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Re: Thoughts on the "Brain Dead " girl from Cali.....
I don't even want to comment, since I can't fathom being in those shoes.
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| Posted 1/10/14 4:45 PM |
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nraboni
Uggh...
Member since 10/09 6905 total posts
Name:
Nicole
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Thoughts on the
My only comment is that this is a terrible situation and I was faced with having to make the decision to take my mother off of life support because she was brain dead. It is not an easy decision to make and you question everything at that moment and for the rest of your life.
I do not wish this decision on anyone.
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| Posted 1/10/14 4:45 PM |
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Paramount
Sweet!
Member since 7/12 4287 total posts
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by LIVINMYDREAM
Posted by Paramount
Posted by MsSissy
What is really scary to me. Is how the hospital refused to give her a feeding tube. They were basically letting her stave.
How does the hospitals decision trump a family member. They had to go to court to get permission to move her to a new facility where the received the feeding tube.
The hospital said it does not do procedures on dead patients.
There is no dispute, MEDICALLY, that the child is 100% dead. She is dead. Weather the family want to pray the dead away, or another hospital is "like minded" to the family, she is dead.
So the hospital said its unethical to do procedures (like a feeding tube, or trach) on a dead person. That's how the hospital can "override" the family.
And as far as the reason this happened. She came out of surgery and started bleeding, which caused everything to happen.
Sadly, the family is so stupid that they are going to loose any medical evidence from the little girls body. You see, she is being kept artificially alive. The body will try to heal itself (the physical wounds). Thus, in "healing" the body is going to cover up the reason she died. The more healing, the less they will find during an autopsy.
And finally, who is going to pay for this dead body to be on life support? Lets just say she is In California. Will her insurance pay? Will the family be billed? Will the hospital "eat" the cost? The hospital (more likely than not) is going to bill someone. If the family cant pay the hospital will go to the state. The facility she is in now? You BET they wanted her. Do you have any idea how much money they are going to make by billing Medicaid for her treatment for the next, what few months? This kid is worth money to them, nothing more.
I feel mostly for this child who is not being allowed to die.
Me thinks it will be $500k plus, plus plus.
I think that if this is the case than this whole thing is even more disgusting than I originally thought...
So on one hand you have the medical professionals in California that were pretty much just trying to cover up any wrong doing on their part.
And now you have a medical facility in New York who really doesn't care about the patient at all, but making money off of the state, which in turn We will al pay for ! UGGHHHHHHHH sometimes I just can't wrap my head around the medical field .. at all 
Winner winner chicken dinner.
For the record the above is my opinion (about the hospital, money and that stuff. Also about the cause of her death).
There is no dispute by 3 doctors she is 100% brain dead.
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| Posted 1/10/14 4:47 PM |
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by nraboni
My only comment is that this is a terrible situation and I was faced with having to make the decision to take my mother off of life support because she was brain dead. It is not an easy decision to make and you question everything at that moment and for the rest of your life.
I do not wish this decision on anyone.
I pretty much feel this way.
I think this is one of those things that you don't know what you would do until you are forced to choose.
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| Posted 1/10/14 4:50 PM |
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LIVINMYDREAM
LIF Adolescent
Member since 12/07 833 total posts
Name:
Erin
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by MorningCuppaCoffee
Posted by nraboni
My only comment is that this is a terrible situation and I was faced with having to make the decision to take my mother off of life support because she was brain dead. It is not an easy decision to make and you question everything at that moment and for the rest of your life.
I do not wish this decision on anyone.
I pretty much feel this way.
I think this is one of those things that you don't know what you would do until you are forced to choose.
And I pray that not one of us ever has to make this decision , especially when it comes to your own child.
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| Posted 1/10/14 4:55 PM |
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by 2BadSoSad
How is the heart and organs working if she is brain-dead? With the exception of the short bit the heart may continue to beat, if off life support, wouldnt her organs cease function too?
Certain organs can perform outside the body with machines for a period of time, the human body is the optimal machine. A heart-lung machine isn't alive. A person with mechanical devices in their body to help organs is not dead if they have brain functions. The organs exist to assist the brain machine.m
This situation is horrific. I feel for that family and don't blame their denial at this early stage of grief. I think they need a lot of spiritual advisement and therapy to come to terms.
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| Posted 1/10/14 5:20 PM |
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Re: Thoughts on the "Brain Dead " girl from Cali.....
I wonder how it works with insurance-Would a person that is clinically dead be eligible for health insurance? With Medicaid coverage is this even an issue? I know that the Drs can override the decision of the family legally if they really wanted to withdraw vent support but I guess that is the whole point why they transferred her to a facility that would not do that.
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| Posted 1/10/14 5:28 PM |
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hopingforbaby
We made a wish & you came true
Member since 2/10 2695 total posts
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Me
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Thoughts on the
I sympathize with the parents, I really really do. I cannot imagine the pain they feel and I hope the drs are thoroughly investigated for this. However I think its time to let her go. I read a drs report and I was horrified at what I read...
*Warning as this was disturbing to read*
Parts of her are starting to break down and she basically passed her own bowel so any nutrients she is getting are going right through her. Hearing that really changed my perspective on the whole thing.
Message edited 1/10/2014 6:15:23 PM.
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| Posted 1/10/14 5:57 PM |
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BargainMama
LIF Adult
Member since 5/09 15657 total posts
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Re: Thoughts on the "Brain Dead " girl from Cali.....
"If her heart stops beating while she is on the respirator, we can accept that because it means she is done fighting," he said. "We couldn't accept them pulling the plug on her early."
I get it. I feel for them
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| Posted 1/10/14 6:47 PM |
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AllyMally
LIF Adolescent
Member since 1/13 881 total posts
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Alyson
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by BargainMama
"If her heart stops beating while she is on the respirator, we can accept that because it means she is done fighting," he said. "We couldn't accept them pulling the plug on her early."
I get it. I feel for them
I call ******** on this. If that were true they would make her a DNR and as far as I have read she is not. The family is not accepting she is dead. Truly 100% not coming back dead. It is heatbreaking and horrible. I don't think they are simple or stupid, but I think there is more behind this then is being let on. The facility that took her, in my opinion did it for the money and as the saving grace. I honestly don't think they give a care. There is no medical miracle happening here, There is NO blood flow. None. She is gone and has been. As a parent it would destroy me to make this choice, but to see her body breakdown and slowly died would be worse. My own sister died when I was 10 and my parents had to decide what to do. It was heartbreaking. They ended life support. She was brain dead. They had 2 other doctors confirm it. There was NO doubt. My heart goes out to them as a mother, but it also makes me sick that they are putting her through this.
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| Posted 1/10/14 7:01 PM |
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MrsGmomof3
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Member since 6/08 3290 total posts
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Irrelevant
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Re: Thoughts on the "Brain Dead " girl from Cali.....
I echo what others have said about this being a parents worst nightmare.
I have to interject though about the possible lawsuits people have discussed. This is probably not medical malpractice. Each and every single surgery comes with risks. The parents signed consent for anesthesia and surgery. Unless its a botched surgery, they don't have a case. And from everything being publicized, the surgery went fine. She started bleeding afterwards and went into cardiac arrest... a very real risk after this type of surgery.
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| Posted 1/10/14 8:07 PM |
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mrswask
Pookie Love
Member since 5/05 20229 total posts
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Michal
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Re: Thoughts on the "Brain Dead " girl from Cali.....
So weird. Just before I read this post, I read an article on Newsday online about a woman who sued Winthrop and was awarded a settlement of $62 million dollars The doctor who messed up was named Dr. Paul Byrne. Same name as the doctor in the article above.
Also, some questioned a child having surgery for sleep apnea. My friend's toddler had it at 2!
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| Posted 1/10/14 9:47 PM |
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Atherley
So in Love with my DS
Member since 1/11 1122 total posts
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Thoughts on the
I can't even begin to imagine what the parents must be going through right now. I think it is very easy for many of us to say that the parents should let her go, but we have to remember that that is their child...their little girl. Dealing with the fact that a surgery that was supposed to help her live a more fulfilling life actually caused her demise must be so heartbreaking for them to live with. I agree that she is in fact dead, but what I think is going on is that as long as they are able to see her everyday and hold her hand, then they can continue to have hope that she isn't really gone. I pray for healing for this family, so that they may be able to peacefully lay their daughter to rest.
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| Posted 1/10/14 10:27 PM |
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Goobster
:)
Member since 5/07 27557 total posts
Name:
:)
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by Atherley
I can't even begin to imagine what the parents must be going through right now. I think it is very easy for many of us to say that the parents should let her go, but we have to remember that that is their child...their little girl. Dealing with the fact that a surgery that was supposed to help her live a more fulfilling life actually caused her demise must be so heartbreaking for them to live with. I agree that she is in fact dead, but what I think is going on is that as long as they are able to see her everyday and hold her hand, then they can continue to have hope that she isn't really gone. I pray for healing for this family, so that they may be able to peacefully lay their daughter to rest.
best post on here
I can't believe so many people think the parents should just accept that their child is gone, should be "gone" from this world. I would never say what I would or would not do! I am not in those awful shoes.
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| Posted 1/10/14 11:25 PM |
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My4GirlsMyLife
My 4 girlies
Member since 2/08 9702 total posts
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Valerie
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Re: Thoughts on the "Brain Dead " girl from Cali.....
I don't know if I could let go either.
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| Posted 1/11/14 1:33 AM |
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My4GirlsMyLife
My 4 girlies
Member since 2/08 9702 total posts
Name:
Valerie
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by Atherley
I can't even begin to imagine what the parents must be going through right now. I think it is very easy for many of us to say that the parents should let her go, but we have to remember that that is their child...their little girl. Dealing with the fact that a surgery that was supposed to help her live a more fulfilling life actually caused her demise must be so heartbreaking for them to live with. I agree that she is in fact dead, but what I think is going on is that as long as they are able to see her everyday and hold her hand, then they can continue to have hope that she isn't really gone. I pray for healing for this family, so that they may be able to peacefully lay their daughter to rest.
 
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| Posted 1/11/14 1:34 AM |
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nraboni
Uggh...
Member since 10/09 6905 total posts
Name:
Nicole
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by Atherley
I agree that she is in fact dead, but what I think is going on is that as long as they are able to see her everyday and hold her hand, then they can continue to have hope that she isn't really gone.
This is exactly how my sister and I felt with our mother. We sat next to her day and night for two weeks with this hope. We took the smallest things as a sign that she might be recovering and that the doctors were wrong. It's awful and I pray the none of you are ever in this type of position with a loved one.
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| Posted 1/11/14 7:29 AM |
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PrincessP
Big sister!!!!!!!!!!
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by Goobster
Posted by Atherley
I can't even begin to imagine what the parents must be going through right now. I think it is very easy for many of us to say that the parents should let her go, but we have to remember that that is their child...their little girl. Dealing with the fact that a surgery that was supposed to help her live a more fulfilling life actually caused her demise must be so heartbreaking for them to live with. I agree that she is in fact dead, but what I think is going on is that as long as they are able to see her everyday and hold her hand, then they can continue to have hope that she isn't really gone. I pray for healing for this family, so that they may be able to peacefully lay their daughter to rest.
best post on here
I can't believe so many people think the parents should just accept that their child is gone, should be "gone" from this world. I would never say what I would or would not do! I am not in those awful shoes.
yeah I agree. The thought is too overwhelming.
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| Posted 1/11/14 8:52 AM |
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beanie571
:-P
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by nraboni
Posted by Atherley
I agree that she is in fact dead, but what I think is going on is that as long as they are able to see her everyday and hold her hand, then they can continue to have hope that she isn't really gone.
This is exactly how my sister and I felt with our mother. We sat next to her day and night for two weeks with this hope. We took the smallest things as a sign that she might be recovering and that the doctors were wrong. It's awful and I pray the none of you are ever in this type of position with a loved one.
I'm so sorry.
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| Posted 1/11/14 10:44 AM |
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lynnd126
LIF Adult
Member since 3/11 2630 total posts
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Re: Thoughts on the "Brain Dead " girl from Cali.....
Posted by Goobster
Posted by Atherley
I can't even begin to imagine what the parents must be going through right now. I think it is very easy for many of us to say that the parents should let her go, but we have to remember that that is their child...their little girl. Dealing with the fact that a surgery that was supposed to help her live a more fulfilling life actually caused her demise must be so heartbreaking for them to live with. I agree that she is in fact dead, but what I think is going on is that as long as they are able to see her everyday and hold her hand, then they can continue to have hope that she isn't really gone. I pray for healing for this family, so that they may be able to peacefully lay their daughter to rest.
best post on here
I can't believe so many people think the parents should just accept that their child is gone, should be "gone" from this world. I would never say what I would or would not do! I am not in those awful shoes.
Yes, but the shock/ disbelief/ surreal blur that occurs is a natural part of the terrible process of losing a child. This is prolonging/ altering that part of the process.
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| Posted 1/11/14 12:02 PM |
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