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PitterPatter11
Baby Boy is Here!
Member since 5/11 7619 total posts
Name:
Momma <3
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Dyslexia
Does anyone have a knowledge of dyslexia?
In 2nd grade, my son was struggling in reading. RTI Tier 2 brought him to grade level.
In 3rd grade, he didn’t qualify for RTI in the fall, but then there was a spot that opened up in the winter. He made progress in RTI Tier 2.
Now we’re in 4th grade. He had a major regression over the summer. (He went to summer school specifically for ELA). He’s now in Tier 3 RTI. 45 minutes - 3x a week with one other student. His instruction is largely phonics based.
We just had him evaluated for an IEP. He qualified for LD in reading. I’m pretty sure he qualified because the CSE chair could tell I was going to fight the district if he didn’t qualify. Even though he did qualify, I am still thinking of requesting an IEE. All of his decoding and fluency scores were 85 (low average). Note a score of 84 would make him below average and these tests all have a margin of error. His phonics skills and comprehension are average.
So why would I request an IEE? I’m pretty sure he has dyslexia and the only way I can guarantee proper reading instruction is through an actual diagnosis.
Anyone have any insight?
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Posted 12/15/23 8:07 PM  |
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KarenK122
The Journey is the Destination
Member since 5/05 4431 total posts
Name:
Karen
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Dyslexia
You should request the IEE. If he is diagnosed with dyslexia, he should be receiving reading services with a trained reading teacher every day.
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| Posted 12/16/23 4:28 PM |
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Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
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Re: Dyslexia
Posted by KarenK122
You should request the IEE. If he is diagnosed with dyslexia, he should be receiving reading services with a trained reading teacher every day.
I second this. I am certified and trained in the Wilson Reading Program which is great for students with Dyslexia.
If you have any questions feel free to message me.
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| Posted 12/18/23 11:14 AM |
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LSP2005
Bunny kisses are so cute!
Member since 5/05 19458 total posts
Name:
L
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Re: Dyslexia
My son has dyslexia. You need to demand Orton Gillingham education as a daily instruction. If your child is under age 9 they will have the greatest ability to learn to read. I would demand in writing that the school pay for Orton Gillingham teaching. While there are other programs to teach reading, this one is the gold standard and has the best outcomes. If your district is not providing 1/2 day pull out strong reading interventions then they are failing your child.
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| Posted 12/21/23 3:30 PM |
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PitterPatter11
Baby Boy is Here!
Member since 5/11 7619 total posts
Name:
Momma <3
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Re: Dyslexia
Posted by LSP2005
My son has dyslexia. You need to demand Orton Gillingham education as a daily instruction. If your child is under age 9 they will have the greatest ability to learn to read. I would demand in writing that the school pay for Orton Gillingham teaching. While there are other programs to teach reading, this one is the gold standard and has the best outcomes. If your district is not providing 1/2 day pull out strong reading interventions then they are failing your child.
Thank you.
He is currently reading almost at grade level (fall of 4th grade instead of mid 4th grade), but his fluency and decoding are weak. He is receiving phonics instruction with decoding and fluency 3x a week for 45 minutes. He is just being classified with an IEP and does not have a formal dyslexia diagnosis so now I need to request an IEE. I am currently working with an advocate to get better goals written as the two the school wrote are terrible and do not adequately address his needs.
I am an educator and work at the HS level. This whole experience has been eye opening for me. I now realize districts offer you the bare minimum in terms of services and then you need to fight for what your child actually needs. My son’s RTI teacher literally said he needs 5 days a week but that that program doesn’t exist. Well why the hell doesn’t it exist? I can’t imagine in the 100 years this district has existed that he’s the first student ever who would benefit from this. I guess he’s just the first kid who has an aggressive mother who is going to fight so he gets what he needs.
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| Posted 12/31/23 7:14 AM |
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ali120206
2 Boys
Member since 7/06 17792 total posts
Name:
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Re: Dyslexia
Posted by PitterPatter11
Posted by LSP2005
My son has dyslexia. You need to demand Orton Gillingham education as a daily instruction. If your child is under age 9 they will have the greatest ability to learn to read. I would demand in writing that the school pay for Orton Gillingham teaching. While there are other programs to teach reading, this one is the gold standard and has the best outcomes. If your district is not providing 1/2 day pull out strong reading interventions then they are failing your child.
Thank you.
He is currently reading almost at grade level (fall of 4th grade instead of mid 4th grade), but his fluency and decoding are weak. He is receiving phonics instruction with decoding and fluency 3x a week for 45 minutes. He is just being classified with an IEP and does not have a formal dyslexia diagnosis so now I need to request an IEE. I am currently working with an advocate to get better goals written as the two the school wrote are terrible and do not adequately address his needs.
I am an educator and work at the HS level. This whole experience has been eye opening for me. I now realize districts offer you the bare minimum in terms of services and then you need to fight for what your child actually needs. My son’s RTI teacher literally said he needs 5 days a week but that that program doesn’t exist. Well why the hell doesn’t it exist? I can’t imagine in the 100 years this district has existed that he’s the first student ever who would benefit from this. I guess he’s just the first kid who has an aggressive mother who is going to fight so he gets what he needs.
This seems to be the theme in many districts across the state - as special services are pricey. I have had friends who have given up and moved to NJ (I am close to the border) and others that have sued the school district to get the services they need for their children.
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| Posted 1/1/24 9:55 AM |
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LSP2005
Bunny kisses are so cute!
Member since 5/05 19458 total posts
Name:
L
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Re: Dyslexia
I just came across my son’s fourth grade iep and these are the things they wrote for reading:
Son will solve 2 step word problems using the operation of multiplication 80% success rate with assistance
The same was repeated with the word division.
Multi sensory language arts - everything is written for 80% levels.
Student will refer to details and examples in a text when explaining what the text says explicitly and when drawing inferences.
Student will summarize characters, settings and major events in a story, using key details
Student will determine the main idea of a text and explain how it is supported by key details
Student will ask questions using, who, what, when where, and why and how to determine understanding in a text
When presented with a reading passage student will read with sufficient accuracy and fluency to support comprehension
Student will write narratives to develop real or imagined experiences or events using effective techniques, descriptive details, and clear event sequences (written and oral)
Student will write narratively with some reference to feelings, judgements, and direct experiences
Student will narratively write with most ideas connected
Student will write with a variety of sentence structure
Student will write fully developed paragraphs that are connected
Student will write informative/explanatory text to examine a topic and convey ideas and information clearly
Student will develop and strengthen writing as needed by planning, revising, editing. Rewriting, or trying a new approach
When presented with a word list or reading passage student will apply phonics skills and word analysis correctly to decode words (note in third grade the iep focused on recognizing lettters, letter blends, letter sounds, prefixes, suffixes, and literally listed out ever letter and blend sound in the alphabet. If your child cannot recognize letters, sounds, blends, prefixes, or suffixes then those need to be spelled out in the iep that you want instructional education spent on those items).
When presented with a word list or reading passage, student will encode diagraph ck in sentences
Student will encode final stable syllable -CLE in sentences. This would be an example of what you would want the above two items to look like and be explicitly spelled out within the iep.
Modifications
Allow extra time for task completion
Break down tasks into manageable units
Assistance with organization of materials/notebooks
Frequently check for understanding
Allow for repetition and or clarification of directions as needed
Additional time to complete classroom tests and quizzes
Use graphic organizers
Read directions aloud to student
Seat in proximity to teacher when needed.
Time is really essential so frankly I would get him in an orton gilllingham program. Sue if you need to. They cost a ton of money, or take the class and teach yourself. I am going to be brutally honest, he has to get this to work before age 10. Unfortunately, forth grade is too late to move to “a good district in NJ”, because the orton program is grades three and four. The spelling blends is in third grade. The comprehension is in fourth. Your district does not care about your kid the way you do. I would spend the money to get a private tutor. Look up decoding dyslexia for the LI chapter to find local to you tutors. The program only works if done daily for a few hours a day. I would pull all after school activities and just do this in the hope it would work. Feel free to FM me. We can be Facebook friends if you want. These are the literacy tables for Long Island schools. https://literacyadvocates.github.io/Data/countyreports/2019/suffolk/
https://literacyadvocates.github.io/Data/countyreports/2019/nassau/
https://www.literacynassau.org/og-summer-intensive-program
By does not have the same laws as NJ. This is the NJ document on dyslexia. https://www.nj.gov/education/specialed/programs/additionalsupports/dyslexia/docs/NJ_Dyslexia%20Handbook.pdf page 29 startes the phonemic awareness charts. This should guide you on creating the right kind of iep for your child.
Message edited 1/1/2024 9:30:20 PM.
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| Posted 1/1/24 8:42 PM |
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PitterPatter11
Baby Boy is Here!
Member since 5/11 7619 total posts
Name:
Momma <3
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Re: Dyslexia
Posted by LSP2005
I just came across my son’s fourth grade iep and these are the things they wrote for reading:
Son will solve 2 step word problems using the operation of multiplication 80% success rate with assistance
The same was repeated with the word division.
Multi sensory language arts - everything is written for 80% levels.
Student will refer to details and examples in a text when explaining what the text says explicitly and when drawing inferences.
Student will summarize characters, settings and major events in a story, using key details
Student will determine the main idea of a text and explain how it is supported by key details
Student will ask questions using, who, what, when where, and why and how to determine understanding in a text
When presented with a reading passage student will read with sufficient accuracy and fluency to support comprehension
Student will write narratives to develop real or imagined experiences or events using effective techniques, descriptive details, and clear event sequences (written and oral)
Student will write narratively with some reference to feelings, judgements, and direct experiences
Student will narratively write with most ideas connected
Student will write with a variety of sentence structure
Student will write fully developed paragraphs that are connected
Student will write informative/explanatory text to examine a topic and convey ideas and information clearly
Student will develop and strengthen writing as needed by planning, revising, editing. Rewriting, or trying a new approach
When presented with a word list or reading passage student will apply phonics skills and word analysis correctly to decode words (note in third grade the iep focused on recognizing lettters, letter blends, letter sounds, prefixes, suffixes, and literally listed out ever letter and blend sound in the alphabet. If your child cannot recognize letters, sounds, blends, prefixes, or suffixes then those need to be spelled out in the iep that you want instructional education spent on those items).
When presented with a word list or reading passage, student will encode diagraph ck in sentences
Student will encode final stable syllable -CLE in sentences. This would be an example of what you would want the above two items to look like and be explicitly spelled out within the iep.
Modifications
Allow extra time for task completion
Break down tasks into manageable units
Assistance with organization of materials/notebooks
Frequently check for understanding
Allow for repetition and or clarification of directions as needed
Additional time to complete classroom tests and quizzes
Use graphic organizers
Read directions aloud to student
Seat in proximity to teacher when needed.
Time is really essential so frankly I would get him in an orton gilllingham program. Sue if you need to. They cost a ton of money, or take the class and teach yourself. I am going to be brutally honest, he has to get this to work before age 10. Unfortunately, forth grade is too late to move to “a good district in NJ”, because the orton program is grades three and four. The spelling blends is in third grade. The comprehension is in fourth. Your district does not care about your kid the way you do. I would spend the money to get a private tutor. Look up decoding dyslexia for the LI chapter to find local to you tutors. The program only works if done daily for a few hours a day. I would pull all after school activities and just do this in the hope it would work. Feel free to FM me. We can be Facebook friends if you want. These are the literacy tables for Long Island schools. https://literacyadvocates.github.io/Data/countyreports/2019/suffolk/
https://literacyadvocates.github.io/Data/countyreports/2019/nassau/
https://www.literacynassau.org/og-summer-intensive-program
By does not have the same laws as NJ. This is the NJ document on dyslexia. https://www.nj.gov/education/specialed/programs/additionalsupports/dyslexia/docs/NJ_Dyslexia%20Handbook.pdf page 29 startes the phonemic awareness charts. This should guide you on creating the right kind of iep for your child.
I am not on LI. I contacted my region’s decoding dyslexia chair and she said my main issue is that my son’s scores are too high - he is not below average for anything - just low average - most scores are a average to above average. She is surprised he qualified for any services.
His reading comprehension is at grade level and his reading ability is probably closer to fall of 4th grade at this point. His fluency and decoding are his struggle areas and both are low average not below average.
I am requesting an IEE once he is classified. I have a contact at a local reading center that I am working with too.
NY does recognize dyslexia. My main issue is that I do not have a diagnosis and my son most likely has a “mild” case that is why I am working with an advocate. I’ve been a teacher for 17 years and never realized the hoops parents have to go through for their child to receive a FAPE.
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| Posted 1/2/24 3:59 PM |
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LSP2005
Bunny kisses are so cute!
Member since 5/05 19458 total posts
Name:
L
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Re: Dyslexia
They will only go by a large standard deviation in iq. It is really tough. I have friends with kids in your position too. I am sorry. Good luck.
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| Posted 1/2/24 5:27 PM |
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PitterPatter11
Baby Boy is Here!
Member since 5/11 7619 total posts
Name:
Momma <3
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Re: Dyslexia
Posted by LSP2005
They will only go by a large standard deviation in iq. It is really tough. I have friends with kids in your position too. I am sorry. Good luck.
I am requesting an IEE next week so I am hoping that testing leads to a diagnosis, which could increase his chances of getting better SDI. They even said he is more of a 504 kid than an IEP kid.
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| Posted 1/3/24 11:39 AM |
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LSP2005
Bunny kisses are so cute!
Member since 5/05 19458 total posts
Name:
L
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Re: Dyslexia
The plus of a 504 is getting some accommodations. The minus is that parents have zero control and the school can pull the help at any time. What you are facing is likely something many parents of dyslexic children face. Their IQ results are not more than one standard deviation different, and the lowest scores are close to the cut off. Schools use this to deny services all of the time. It is extremely disheartening and just prolonges the problem and suffering. I am really sorry.
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| Posted 1/3/24 10:45 PM |
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PitterPatter11
Baby Boy is Here!
Member since 5/11 7619 total posts
Name:
Momma <3
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Re: Dyslexia
Posted by LSP2005
The plus of a 504 is getting some accommodations. The minus is that parents have zero control and the school can pull the help at any time. What you are facing is likely something many parents of dyslexic children face. Their IQ results are not more than one standard deviation different, and the lowest scores are close to the cut off. Schools use this to deny services all of the time. It is extremely disheartening and just prolonges the problem and suffering. I am really sorry.
It is very frustrating. I am sure many kids fall into this gray area and they do not have parents who are willing to go above and beyond to ensure that they get the services they deserve. I have spent hours reading books regarding this issue and how to advocate for my child. O have reached out to three separate advocates to better help me. I am also an educator and never knew how large this issue was. It has been eye opening. I teach HS so by the time they get to me most have an IEP but there have been instances when kids make it to 9/10th grade and have been passed along with no services and are drowning in 9th grade and don’t know why.
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| Posted 1/6/24 6:42 PM |
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LSP2005
Bunny kisses are so cute!
Member since 5/05 19458 total posts
Name:
L
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Re: Dyslexia
Posted by PitterPatter11
Posted by LSP2005
The plus of a 504 is getting some accommodations. The minus is that parents have zero control and the school can pull the help at any time. What you are facing is likely something many parents of dyslexic children face. Their IQ results are not more than one standard deviation different, and the lowest scores are close to the cut off. Schools use this to deny services all of the time. It is extremely disheartening and just prolonges the problem and suffering. I am really sorry.
It is very frustrating. I am sure many kids fall into this gray area and they do not have parents who are willing to go above and beyond to ensure that they get the services they deserve. I have spent hours reading books regarding this issue and how to advocate for my child. O have reached out to three separate advocates to better help me. I am also an educator and never knew how large this issue was. It has been eye opening. I teach HS so by the time they get to me most have an IEP but there have been instances when kids make it to 9/10th grade and have been passed along with no services and are drowning in 9th grade and don’t know why.
It is absolutely maddening and there are so many kids that are at that threshold where they would be so much better served by giving them what they actually need. I personally feel all students would be so much better off if they received the Orton Gillingham education as the norm for a year in second or third grade. It would get everyone to where they truly can thrive. Whole language is just a terrible way to teach so that everyone learns. Even the program admits 1/3 to 1/2 of students will fail with their program.
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| Posted 1/8/24 1:36 PM |
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LInMI
LIF Adult
Member since 7/10 1800 total posts
Name:
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Re: Dyslexia
If you haven’t already, bring him for a comprehensive developmental vision exam. A routine eye exam is not enough to assess all areas of the visual system.
Also, find an OT that specializes in integrating primitive reflexes (you can start by finding exercise videos on Youtube). 50% of kids with a retained ATNR show signs of dyslexia or have a diagnosis of dyslexia. Consistency is the key. You’ll have a different kid when the new school year starts.
FYI- Do the exercise EVERYDAY, 3-4 mins per day. Feel free to PM with any questions.
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| Posted 1/29/24 2:07 PM |
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PitterPatter11
Baby Boy is Here!
Member since 5/11 7619 total posts
Name:
Momma <3
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Re: Dyslexia
Posted by LInMI
If you haven’t already, bring him for a comprehensive developmental vision exam. A routine eye exam is not enough to assess all areas of the visual system.
Also, find an OT that specializes in integrating primitive reflexes (you can start by finding exercise videos on Youtube). 50% of kids with a retained ATNR show signs of dyslexia or have a diagnosis of dyslexia. Consistency is the key. You’ll have a different kid when the new school year starts.
FYI- Do the exercise EVERYDAY, 3-4 mins per day. Feel free to PM with any questions.
He’s already had a comprehensive exam with a pediatric ophthalmologist and she ruled out anything eye related. I did this right when I requested the school do a complete eval so the school couldn’t say that was the issue.
I’ll look into the primitive reflexes.
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| Posted 1/29/24 4:52 PM |
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