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MTHFR

Posted By Message

icequeen4700
LIF Adolescent

Member since 5/05

505 total posts

Name:
Dawn

MTHFR

so after my 3rd m/c ..... here i am again. my dr. just diagnosed me with compound heterozygous Mthfr. ( homocystine levels normal) When I saw my RE today he really made it seem like no big deal, and said i can take baby asprin and extra folic acid if i want, but there is no proof that it works.
what are you guys taking for the MTHFR, and is there any other dr. that you would recommend i see? thanks, dawn

Posted 1/17/07 5:06 PM
 
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skygirl
Our prayers were answered:)

Member since 6/05

4919 total posts

Name:
Erica

Re: MTHFR

I was diagnosed with MTHFR as well as another factor as well as other issues . My RE is starting me on Lovenox ( bloos thinner injections) as soon as AF comes.

I am not too familiar with this condition aside from the clotting it causes-

I am sorry I can't be of more help to you
For the record, this month I am taking 1 baby aspirin a day until I start the Lovenox

There are a few ladies here who have this problem in common as well

Good luckChat Icon

Posted 1/17/07 11:27 PM
 

LisaW
Time for me to FLY!

Member since 5/05

13199 total posts

Name:
Did I ever tell you that I hate people?

Re: MTHFR

I am also homozygous for MTHFR and take baby aspirin, Folgard, and when I am cycling I take Lovenox

Posted 1/18/07 5:29 AM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: MTHFR

I am homo for MTHFR and I take Lovenoc on 1 dpo every cycle that I try. You should look into Dr. Alan Beer as this could be considered an immune disorder and he was the pioneer in researching these issues. heres a link

r. Beer'

Also there is a vitamin you can get that has the extra folic acid and B vitamins you need. I take Metanx but you can also take folgard. Did your Dr explain to you the risks with this? basically your body will not process folic acid as well as someone without this. It also makes your blood thick and with a tendency to clot, There is lots of info on this online. Just search MTHFR and pregnancy. You may want to see a Dr who specializes in this-One is Dr. Scher another is SIRM GL. I am basically in the same boat ats you.

Posted 1/18/07 9:35 AM
 

karacg
Babygirl is 4!

Member since 5/05

17076 total posts

Name:
Kara®

Re: MTHFR

I have MTHFR as well and I am 21 weeks pregnant today. My RE had me on Lovenox once we found out I was pregnant. I don't think I was on a blood thinner before that tho.

I cycled (twice) with Dr. Joel Batzofin at SHER in NY. He is very pro-active and thorough. Well obviously I love the man - he gave me my fat belly!!

www.haveababy.com

Everyone in the office is wonderful - compassionate, knowledgable, patient...and my cycle did NOT cost an arm and a leg like they wanted at East Coast and other clinics...

Posted 1/18/07 9:38 AM
 

pinkandblue
Our family is complete, maybe

Member since 9/05

32436 total posts

Name:
Stephanie

Re: MTHFR

Posted by icequeen4700

so after my 3rd m/c ..... here i am again. my dr. just diagnosed me with compound heterozygous Mthfr. ( homocystine levels normal) When I saw my RE today he really made it seem like no big deal, and said i can take baby asprin and extra folic acid if i want, but there is no proof that it works.
what are you guys taking for the MTHFR, and is there any other dr. that you would recommend i see? thanks, dawn



I was also diagnosed with the homozygous MTHFR ( I take lovenox, metanx (which is folic acid broken down along with B6 and B12), and my prenatal.

Good luck

Posted 1/18/07 10:29 AM
 

NCMom
LIF Infant

Member since 9/06

160 total posts

Name:

Re: MTHFR

Have any of you had children with no problems and then been diagnosed with MTHFR?

Posted 1/18/07 11:29 PM
 

LisaW
Time for me to FLY!

Member since 5/05

13199 total posts

Name:
Did I ever tell you that I hate people?

Re: MTHFR

Posted by NCMom

Have any of you had children with no problems and then been diagnosed with MTHFR?



What do you mean with no problems?

This is the IF board Chat Icon

ETA- do you mean secondary IF?

Message edited 1/19/2007 5:40:36 AM.

Posted 1/19/07 5:37 AM
 

NCMom
LIF Infant

Member since 9/06

160 total posts

Name:

Re: MTHFR

I am aware this is the IF board. That's why I posted this question here. Sorry I ddin't use the correct term. Yes, that's what's i'm referring too, secondary IF.

Posted 1/19/07 9:26 AM
 

LisaW
Time for me to FLY!

Member since 5/05

13199 total posts

Name:
Did I ever tell you that I hate people?

Re: MTHFR

Posted by NCMom

I am aware this is the IF board. That's why I posted this question here. Sorry I ddin't use the correct term. Yes, that's what's i'm referring too, secondary IF.



Yes, I misunderstood your question

It was early Chat Icon

Posted 1/19/07 9:30 AM
 

NCMom
LIF Infant

Member since 9/06

160 total posts

Name:

Re: MTHFR

That's ok. The background in asking my question is I have had 3 m/c now after having 2 children. All tests have come back normal. One of the only things I haven't had tested was for this. I don't know that much about it. I guess I'm trying to go back and look at things that weren't tested on me to see if it could be my problem.

Posted 1/19/07 9:45 AM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: MTHFR

NC Mom, you should definitely read up on Dr. Beer. The link is in my previous post. I have read that each pregnancy event, meaning m/c or pregnancy, if you have immune issues can actually make your issues worse.

Posted 1/19/07 9:56 AM
 

NCMom
LIF Infant

Member since 9/06

160 total posts

Name:

Re: MTHFR

I just got his new book last week to read. I haven't started it yet. I have been tested for pretty much all immune issues and they have found the results to be all normal. I never had the test for MTHFR though. All my m/c were at the same time around 13 weeks. I'm just trying to play doctor with myself looking for something that could be causing them since it seems science doesn't seem to be helping me right now. I appreciate all your input. Thanks

Posted 1/19/07 10:11 AM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: MTHFR

Posted by NCMom

I just got his new book last week to read. I haven't started it yet. I have been tested for pretty much all immune issues and they have found the results to be all normal. I never had the test for MTHFR though. All my m/c were at the same time around 13 weeks. I'm just trying to play doctor with myself looking for something that could be causing them since it seems science doesn't seem to be helping me right now. I appreciate all your input. Thanks



I highly doubt you've been testing for all immune issues. NO dr's test for them except Dr. Stricker(took over for Dr. Beer) and anyone that follows their protocol. if you want FM me the list of tests you took and I can let you know whats missing. 13 weeks is a late loss-actually that could be a clotting disorder interfering with the placenta. Have you had a tissue analysis done. There are people who specialize in this and can tell you the reason...Chat Icon

Posted 1/19/07 11:28 AM
 

CAT215
The Merlster

Member since 10/06

2540 total posts

Name:
Cathie

Re: MTHFR

Ok can I ask a question? What is MTHFR?

Posted 1/19/07 11:39 AM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: MTHFR

Posted by CAT215

Ok can I ask a question? What is MTHFR?



It is a type of thrombophilia. Here is some Info

Posted 1/19/07 12:09 PM
 

karacg
Babygirl is 4!

Member since 5/05

17076 total posts

Name:
Kara®

Re: MTHFR

Posted by melijane

I highly doubt you've been testing for all immune issues. NO dr's test for them except Dr. Stricker(took over for Dr. Beer) and anyone that follows their protocol.



Believe me, SIRM tests for all immune issues!!

Posted 1/19/07 2:41 PM
 

-Laurie-
Hi!

Member since 5/05

2536 total posts

Name:

Re: MTHFR

I just wanted to give you a Chat Icon

Some have a feeling this may be the case for me.

Two miscarriage then my son, four more miscarriages and I just finished having my RE follow my cycle. We got on 2/2 to discuss results and options.

Have you been checked for Fybroids or Cysts? A good friend who is currently pregnant had two miscarriages due to a cyst or fybriod (I forget right now) at 11 weeks because it was competing with the baby. They did a lap and cleared her right up. She had seen numerous OBGYN's and Gyno's prior but it wasen't until she met her new RE that they found out what was going on.

Posted 1/19/07 3:07 PM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: MTHFR

Posted by karacg

Posted by melijane

I highly doubt you've been testing for all immune issues. NO dr's test for them except Dr. Stricker(took over for Dr. Beer) and anyone that follows their protocol.



Believe me, SIRM tests for all immune issues!!



LI SIRM didn't test me for everything but you're in NYC right?

Posted 1/19/07 3:22 PM
 

karacg
Babygirl is 4!

Member since 5/05

17076 total posts

Name:
Kara®

Re: MTHFR

Posted by melijane

Believe me, SIRM tests for all immune issues!!



LI SIRM didn't test me for everything but you're in NYC right?


Yup - that was the first thing they did. Over 3K in testing from Millanova Labs in ... ?(somewhere west of NY - lol)

Posted 1/19/07 4:39 PM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: MTHFR

Posted by karacg

Posted by melijane

Believe me, SIRM tests for all immune issues!!



LI SIRM didn't test me for everything but you're in NYC right?



Yup - that was the first thing they did. Over 3K in testing from Millanova Labs in ... ?(somewhere west of NY - lol)


Chicago?? I thinkChat Icon

Posted 1/20/07 11:50 AM
 

LaylaL
LIF Zygote

Member since 2/12

1 total post

Name:

Re: MTHFR

Hi LisaW,

I know this is a very old post, but was hoping to ask you more about Dr. Etingin and Dr. Jonathan Scher since you mentioned having gone to both of them.

I've had 4 failed IVF attempts and multiple failed IUI attempts and they can't seem to find anything wrong. Apparently everything looks perfect, but obviously something isn't right. My next steps are to explore any blood or other types of disorders. I have appointments with both doctors, but not sure if I need to go to both. I know Etingin is a hemotologist, but it sounds like Dr. Scher does a lot of blood work testing too so not sure if I should see both doctors or focus on just one for now. It's a lot of money so want to make sure they do different things. Would you mind letting me know your thoughts and why you went to both doctors and if one is better than the other?

Thanks so much for your help.

Posted 2/15/12 3:55 PM
 
 

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