Non verbal asd

How do you deal? How do u not break down every second?
I know you do what you have to do but are there any coping techniques?

DO you ever think or convice yourself its just a delay?

Non verbal asd

My son is limited verbal. And a lot of his ability is saying the same thing over and over (and over and over). It's hard and frustrating. I wish I had an answer. No one else really understands what it's like.
I have days I just want to lock myself in my room because I can't hear the word triangle again.
I don't think of it in terms of delay or anything else, it's just what it is.

Sorry youre going through this but know you are nit alone.

Non verbal asd

I would definitely recommend seeing a therapist for yourself. It won't change anything except you can talk through these feelings and learn how to cope. My son was diagnosed a few months ago and I have had so many highs and lows. It's just emotionally draining. Seeing a therapist once a week has helped me from getting consumed with worry and obsessing over what will be - but I still have those moments. Feel free to FM me.

Non verbal asd

I have my good days and bad days but I could cry every day thinking about it. How old is your DC? My DS is 4 so we've been coping for a while....I cant say it gets easier but I can say that you do adjust and just remain hopeful. Please feel free to FM me any time!!! HUGS!!!

Non verbal asd

DD was non verbal and then diagnosed with selective mutism up until she was about 5. Now her vocabulary has exploded (age 7) but she still has a significant pragmatic language deficit. We tried everything when she was younger but she didn't point either so it was very hard to use pecs cards, which works for alot of kids. i just learned to understand what her mood, grunts and cries were for. It was hard. tons of tantrums because of the lack of communication but I always say we are very lucky because it has improved so much. i have to credit alot of it to good dedicated teachers, her K teacher was an angel in disguise. Alot of my friends still have non verbal children and they work alot with pecs and the ipads.

it's hard but try to find time for yourself. go out and do something fun to recharge yourself. Find support groups, go to therapy, have a girls night out once a week. Anything to keep you sane and focused. You are your child's best advocate and you need to keep yourself healthy both physically and mentally.

Re: Non verbal asd

My DS will be 2 next week and is non verbal. It's hard when we are around family members kids of around the same age and younger who say so much. Also a problem we have been dealing with is DS biting us when he is angry since he can't communicate. I can only hope that in time combined with the therapy he is getting that he will communicate soon.

Re: Non verbal asd

Re: Non verbal asd

Non verbal asd

Don't stress over potty training, just keep trying and they will get it. If they do not understand then it is going to be torture for you. DD wasn't potty trained until she was 5. I tried and tried but she wasn't ready, making her do it just got her frustrated and scared to even enter the bathroom so i let it go and then one day, poof, she did it all on her own, stayed dry through the night and never had an accident since. And I too heard it from all my friends and family. i just told them to STFU and if they weren't changing her diapers then they didn't have a say. My nephew is the same age as my DD and it's hard with all the comparisons but I learned to appreciate all her milestones when she achieved them, not when some checklist said she should have.

Re: Non verbal asd

Re: Non verbal asd

DS is completely non verbal at 7yo. Is it hard? No doubt.

He only makes "sounds" like a baby with no approximation at all.

We have switched to other type of verbal communication like PECs. And he will be evaluated this Fall to FINALLY get an augmentive communication device.

But yes, it was really hard to deal for all of us. Him unable to explain his needs. Us just has frustrated by his frustration and never been able to hear your kid say good night or good by or I love you .... EVER!

It took me a long time to get past it. He has had A LOT of speech therapists. he has 5 sessions per week still. So... sometimes services cannot help in ways we thought they would. Now we still have Speech but it is directed via other way than the "standard" verbal communication.

It still sucks! But it gets easier as time goes by in term of acceptance

Re: Non verbal asd

My DD is 5 and although doesn't have ASD, she is non-verbal, and probably will be that way for her entire life. YES, it is frustrating, and so sad for me. I can see the words in her head that she just can't say. It is hard watching her try to play with other kids and them running away from her, and she can't just say, "I want to play". I could cry right now typing about this. I do hope that with time, she will learn to use some other form of communication, but to this point, nothing has worked. So, yes, it is frustrating. I'm sure it is for her as well. I don't know how we deal honestly. We give her what we think she wants/needs at the time. But I often wonder if she is having to settle for what we give her rather than it being what she actually wanted.