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Eireann
Two ladies and a gentleman!
Member since 5/05 12165 total posts
Name:
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Re: ADHD advice please or just hugs
Oh, I'm so sorry to read this story. I don't have any advice, but I'm sorry that Nikolas is hurting...
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Posted 10/30/08 11:37 AM  |
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Janice
Sweet Jessie Quinn
Member since 5/05 27567 total posts
Name:
Janice
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Re: ADHD advice please or just hugs
I have been experimenting with different meds, doses, administering it at different times of the day to see what works(asthma). He would go from the hulk to a zombie within an hour.
I would call dr and see what they say. Pharmacist was also very helpful.
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| Posted 10/30/08 11:43 AM |
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pmpkn087
Life is good...
Member since 9/05 18504 total posts
Name:
Stephanie
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Re: ADHD advice please or just hugs
I really don't have any advice other than if YOU feel that putting him on the meds is the wrong thing, then you should go with that instinct. I'm guessing that you can't just stop giving them now. I would call the doctor's emergency number. I can't even imagine how your heart must be so heavy right now. 
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| Posted 10/30/08 12:15 PM |
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SkyzTheLimit
Bring on summer!!!
Member since 3/06 2483 total posts
Name:
Jamie
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Re: ADHD advice please or just hugs
Posted by Goldi0218
I teach special ed and though my expertise is not medication, as I am not a diagnostician or a clinician, I do agree that working with meds to address ADHD as well as other disorders is often a trial and error process. It stinks, but it is an unfortunate means to an end. ADHD also often (though not always)goes hand in hand with other disorders like Oppositional Defiant Disorder and others so that may be why you see other types of behaviors too.
It concerns me when you say the school will not give him services because his grades are good. There are plenty of children who have good grades who have problems coping with day to day life. Shoot there are plenty of adults who are geniuses who go to therapy of one kind or another. Sometimes schools do not like to give services or label kids because it effects school rankings and possibly funding. If he was referred services, he is entitled to them at no cost to you. You do not need a teacher or an administrator/therapist/what-have-you to make a referral. You as a parent can do that. You may wish to call your district office and get the name of a parent advocate who can guide you in the right direction.
Leslie can you please explain to me what Oppositional Defiant Disorder is exactly. Nikolas is not really a defiant kid. He loves to please and hates to disappoint.
I spoke with the school psychologist a few weeks ago and she said unless he is being effected academically they will not give him services. It doesn't make sense to me because if you see the child doesn't like to write has a hard time with it why wouldn't you want to help him before he fails.
On Monday when I spoke with his teacher she said if he doesn't pass the writing state test maybe he can get services at that time so it wouldn't be a bad thing.
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| Posted 10/30/08 2:28 PM |
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CkGm
They get so big, so fast :(
Member since 5/05 13848 total posts
Name:
Christine
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Re: ADHD advice please or just hugs
It is so difficult to treat this disorder. Do NOT feel like you did the wrong thing by trying out the meds though. I have worked with kids for years that the parents didn't want to do it and it ended up making a huge difference. His behavior may be related to all the stress he is going through with his friends and not the medication at all. Or the medication is not the right one for him. Sometimes it takes trying 3 or 4 different kinds and doses to get the right one. The brain is so complicated and even doctors really don't know what will work. So please don't beat yourself up over it- you were trying to help your son.
That being said, is he seeing someone other than his ped to help him with his ADD? An educational therapist is a good avenue to explore to help him cope. As for the school refusing to give him services, it sounds like it IS affecting him at school, even if it hasn't hurt his grades yet. I would request that the teachers hold a meeting with you to discuss his progress- especially include the PD Teacher since it sounds like that is where a lot of social issues would crop up.
I am so sorry your son and you are suffering like this. Many hugs
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| Posted 10/30/08 2:35 PM |
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CkGm
They get so big, so fast :(
Member since 5/05 13848 total posts
Name:
Christine
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Re: ADHD advice please or just hugs
Posted by SkyzTheLimit
Posted by Goldi0218
I teach special ed and though my expertise is not medication, as I am not a diagnostician or a clinician, I do agree that working with meds to address ADHD as well as other disorders is often a trial and error process. It stinks, but it is an unfortunate means to an end. ADHD also often (though not always)goes hand in hand with other disorders like Oppositional Defiant Disorder and others so that may be why you see other types of behaviors too.
It concerns me when you say the school will not give him services because his grades are good. There are plenty of children who have good grades who have problems coping with day to day life. Shoot there are plenty of adults who are geniuses who go to therapy of one kind or another. Sometimes schools do not like to give services or label kids because it effects school rankings and possibly funding. If he was referred services, he is entitled to them at no cost to you. You do not need a teacher or an administrator/therapist/what-have-you to make a referral. You as a parent can do that. You may wish to call your district office and get the name of a parent advocate who can guide you in the right direction.
Leslie can you please explain to me what Oppositional Defiant Disorder is exactly. Nikolas is not really a defiant kid. He loves to please and hates to disappoint.
I spoke with the school psychologist a few weeks ago and she said unless he is being effected academically they will not give him services. It doesn't make sense to me because if you see the child doesn't like to write has a hard time with it why wouldn't you want to help him before he fails.
On Monday when I spoke with his teacher she said if he doesn't pass the writing state test maybe he can get services at that time so it wouldn't be a bad thing.
As a parent you have the right to request testing at any time. I would start with a full meeting with the teachers and the school psychologist there. Its true that schools have a "if it ain't broke, don't fix it attitude" but the defination of a disability is that it affects his day to day living. That is certainly true in this case.
As for the Oppositional Defiant label, it takes a lot more than refusing to do an assignment to get this diagnosis. They need to be consistently breaking rules in more than one setting(work, home, school) for this to apply. I think its a bit early to be saying he has this problem. More likely, the frustration comes from having trouble attending and then being expected to produce. This is just my opinion though, and I do not know your son in any setting. I just want to put that disclaimer out there. 
Message edited 10/30/2008 2:41:34 PM.
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| Posted 10/30/08 2:40 PM |
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Goldi0218
My miracles!
Member since 12/05 23902 total posts
Name:
Leslie
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Re: ADHD advice please or just hugs
Posted by CkGm
Posted by SkyzTheLimit
Posted by Goldi0218
I teach special ed and though my expertise is not medication, as I am not a diagnostician or a clinician, I do agree that working with meds to address ADHD as well as other disorders is often a trial and error process. It stinks, but it is an unfortunate means to an end. ADHD also often (though not always)goes hand in hand with other disorders like Oppositional Defiant Disorder and others so that may be why you see other types of behaviors too.
It concerns me when you say the school will not give him services because his grades are good. There are plenty of children who have good grades who have problems coping with day to day life. Shoot there are plenty of adults who are geniuses who go to therapy of one kind or another. Sometimes schools do not like to give services or label kids because it effects school rankings and possibly funding. If he was referred services, he is entitled to them at no cost to you. You do not need a teacher or an administrator/therapist/what-have-you to make a referral. You as a parent can do that. You may wish to call your district office and get the name of a parent advocate who can guide you in the right direction.
Leslie can you please explain to me what Oppositional Defiant Disorder is exactly. Nikolas is not really a defiant kid. He loves to please and hates to disappoint.
I spoke with the school psychologist a few weeks ago and she said unless he is being effected academically they will not give him services. It doesn't make sense to me because if you see the child doesn't like to write has a hard time with it why wouldn't you want to help him before he fails.
On Monday when I spoke with his teacher she said if he doesn't pass the writing state test maybe he can get services at that time so it wouldn't be a bad thing.
As a parent you have the right to request testing at any time. I would start with a full meeting with the teachers and the school psychologist there. Its true that schools have a "if it ain't broke, don't fix it attitude" but the defination of a disability is that it affects his day to day living. That is certainly true in this case.
As for the Oppositional Defiant label, it takes a lot more than refusing to do an assignment to get this diagnosis. They need to be consistently breaking rules in more than one setting(work, home, school) for this to apply. I think its a bit early to be saying he has this problem. More likely, the frustration comes from having trouble attending and then being expected to produce. This is just my opinion though, and I do not know your son in any setting. I just want to put that disclaimer out there.
Oh I agree and I would not begin to diagnose as I am not a clinician. I simply gave an example - perhaps a poor one - and for that I apologize. I do agree with you in that if what troubles him has an effect on his day to day living, then he has the RIGHT to treatment through therapy if a referral is made and it MUST, by law, be done in a certain amount of time at no expense to the parent - rather the school district.
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| Posted 10/30/08 2:50 PM |
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rose825
Best Friends
Member since 6/05 10228 total posts
Name:
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Re: ADHD advice please or just hugs
Posted by SkyzTheLimit
Posted by rose825
who is prescribing the medicine? if its not a psychiatrist I would get him to one. he should be properly diagnosed by a specialist before being medicated. And even if he does need medicine, maybe this one isnt the right one. There are other medicines for ADHD
He was diagnosed by a Pediatric psychologist at Schneiders Children's Hospital.
He had a Pediatric Neurodevelopmental Evaluation. He is on 30mg. The lowest dosage.
a psychologist can not prescribe meds. Is the medication being prescribed by a psychiatrist from that practice. I guess I just urge you to make sure its a psychiatrist prescribing the meds and not a general pediatrician.
Like so many people said, its trial and error
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| Posted 10/30/08 9:26 PM |
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Dutchess
LIF Infant
Member since 7/07 162 total posts
Name:
Jill
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Re: ADHD advice please or just hugs
While your son may not qualify for "academic" services, there may be things that the school can help your son with. I know that you mentioned his classroom teacher spoke with you about the NYS ELA test. If you son has a DX of ADHA, he is entitled to a 504 accomodation plan, under which he could have testing accomodations. Testing accomodations could include: separate location with minimal distractions, additional time, etc. You may want to discuss this with the school psych.
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| Posted 10/31/08 1:11 AM |
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