Re: I need many many prayers-update 4/25

Re: I need many many prayers-update 4/25

I am sending a million prayers your way.

Re: I need many many prayers-update 4/25

Keeping you and in our thoughts

Re: I need many many prayers-update 4/25

it does sound like a positive outcome will happen and you are in good spirits. I will be thinking of you, thanks for keeping us updated

Re: I need many many prayers-update 4/25

My gut tells me that its going to work out for you.It really does. I will continue to pray as I have been.

Re: I need many many prayers-update 4/25

I'm so happy you are feeling better Janine!!!! Thank god she called!!!

I will still pray for the healthiest baby in the world for you!!!

Re: I need many many prayers-update 4/25

Posted by KellyDance

I'm so happy you are feeling better Janine!!!! Thank god she called!!!

I will still pray for the healthiest baby in the world for you!!!

Re: I need many many prayers-update 4/25

Thinking of you and the baby, Janine.

Re: I need many many prayers-update 4/25

I had that with DS but then I was given an amino and everything was fine.

Re: I need many many prayers-update 4/25

I am so sorry you have to go through this !! I went through something similiar with DD#1 when they said she most likely had Downs and asked if I wanted to terminate before I even had the amnio I said"no" and when I had the amnio she was perfectly fine !! So please dont stress too much these tests are far from perfect !! I will most definately keep you,Dh, and in my prayers

Re: I need many many prayers-update 4/25

I'm glad you are feeling better and that the Dr called you...you and your are in my thoughts

Re: I need many many prayers-update 4/25

Janine.... thanks for the update... I will continue praying hard for you honey!

Re: I need many many prayers-update 4/25

my thoughts and prayers are with you!!

Re: I need many many prayers-update 4/25

You are amazing! Your positive outlook is an inspiration! You are in my thoughts and prayers!

Re: I need many many prayers-update 4/25

Re: I need many many prayers-update 4/25

lots and lots of prayers to you and your baby. i know from experience how hard the unknown can be. i had to have an amino with my 1st and a cvs test with my 2nd. i also had to go for genetic counseling both times. if you want any info or want to chat please feel free to FM me. hang in there. it can be so frustrating when they doctors can't explain why something is happening.

Re: I need many many prayers-update 4/25

Janine, I am so sorry. My prayers are with you and your baby

Re: I need many many prayers-update 4/25

I'm glad to hear your update. Still sending lots of prayers though!

Re: I need many many prayers-update 4/25

Re: I need many many prayers-update 4/25

Posted by neener1211

update: 4/25

Thank you to everyone for all of your prayers, being able to get frustrated on here has saved a lot of pressure on my husband, and he was happy I wasn't bottling it all up.

Anyway, I FINALLY received a call from Stony Brook last night by the Nurse Practictioner that works with Dr. Ogburn (who I had seen in November). She said that the next step to determine whether the baby did in fact have Trisomy 18 was to do an amnio. I told her that right now we were not set on that because I really didn't feel like something is wrong, and to take an invasive step would worry me more with 'what ifs'. She said we certainly could wait for the ultrascreen at 19 weeks, but that is another screening, not a diagnostic test (which I completely understand) and that it might rule out the possibility of an amnio by then.

I asked her to go over the test results with me once more, and she told me that on the first ultrasound my chances of Downs was 1:774 and for everything else, including Trisomy 18 my chances were 1: OVER 10,000. She said that I had the results of a 20 year old.

She said she did not know why I was even given the quadscreen because the only thing they should have been testing for was the spina bifida/neural tube defects since the 1st baby had one. She said they should have ONLY given me a Monoscreen. She said since this test came back with Trisomy 18 as 1:10, she truly can't explain the results because they, in her words, "Make no sense."

I mentioned to her that in my gut, I do not believe that there is something wrong and if I hadn't had this test, I wouldn't be worried. I said, doctors and nurses haven't been looking at my chart to realize that the 1st baby had anencephaly and that is why I am so upset at this point. I said, I feel like I am being bombarded, I had that baby in November, and now this. She paused and said, "Oh my god, that was so little ago, no wonder why you are so concerned-I am glad I called before I went home you would have been going nuts." I responded, "Uh yeah!"

So she said that she wanted me to contact a Genetic Specialist first, and speak with them, but in her own mind, she also thinks this is nothing, but she wants me to make that decision for ourselves and our baby. I have an appointment for May 2nd.

So, in all of my rambling, I am feeling better today, less stressed (but still nervous) but I do feel better that I spoke with her. Truly in my heart, I don't think anything is wrong with this baby. I will wait for the genetic counseling, but I think for my husband and I, we are going to see what happens with the ultrasound.

Thank you again for all your prayers, and I will definitely keep everyone updated. Thank you for all of your support, you are all amazing.

Re: I need many many prayers-update 4/25

You are so strong and your positive spirit and mother's intuition will get you through this - everything will be okay!

Re: I need many many prayers-update 4/25

This happened to two of my friends, both opted for amnio, both babies were fine. I know this must be very stressful, but try to trust your gut.

Re: I need many many prayers-update 4/25

oh janine i just saw this. my thoughts and prayers are with you and your DH and DC.

Re: I need many many prayers-update 4/25

Re: I need many many prayers-update 4/25

neener, stay true to that mother's intuition. i will keepy you in my thoughts today!