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I'm beyond upset at this point - Update

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Bxgell2
Perfection

Member since 5/05

16438 total posts

Name:
Beth

I'm beyond upset at this point - Update

Update -

Thank you everyone for your FM's advice, and hugs - I appreciate it more than I could put into words.

I've been on the phone all morning, and I think we have mostly everything straightened out. My father has been placed into a room with another cardiac rehab patient, so no more dementia/alzheimers in close proximity. He also went to therapy today for 2 hours, which eases my mind a bit. I spoke to the therapist who explained in detail what she's doing with him, and what progress she expects, and gave me the name and number of the social worker to discuss continuing therapy when he gets discharged.

I also called the facility and demanded to speak to everyone under the sun, from the director of nursing, to the medical director. They now know I am on their backs, and they are sending a list of all the meds my father has been receiving, and will be discussing with my father his insulin needs today.

They did explain that his blood sugar had sky rocketed last night, and that's why they had to give him more insulin than normal, which makes sense, and at this point, his blood sugar is regulated at a nice even number, so perhaps what they are doing is working. I asked if he could self-medicate with regard to insulin and in no uncertain terms, they said no, but I told them I will be calling sixty gazillion times a day and showing up in person to harass them if I feel his care is inadequate. I haven't pulled out the "I'm an attorney" card yet, but I will if I have to.

So, for now, I am keeping him there. I can't arrange for any other facility because of his dialysis issues, and thankfully, this is VERY temporary - at most a week. And, with regard to the therapy, which is the primary reason why he's even there, even he admits that it was pretty good, and extensive. So, as long as the therapy is good, and we get his other medical issues sorted out, he's ok. Although I want to bring him home, we don't have the space for a 24 hour aid, and I cannot in good conscious bring him home until his blood sugar regulates, because, god forbid, he went into shock during the night, I don't know what I would do, or if he would even have the sense to call out to me. He has to be somewhere where he is watched and monitored, and from all appearances, they are taking his blood sugar on a regular basis.

So, that's where we are. I know I'm rambling - I'm working on about 3 hours of sleep, and haven't eaten anything in a good 24 hours. Thank you again everyone Chat Icon

Message edited 5/9/2007 12:34:25 PM.

Posted 5/9/07 8:23 AM
 
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Elbee
Zanzibar

Member since 5/05

10767 total posts

Name:
Me

Re: I'm beyond upset at this point

I am so sorry you are going through all this. You are a strong person, keep it up and things iwll work out. Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 5/9/07 8:24 AM
 

DebG
Pick a cause & stand up for it

Member since 5/05

18602 total posts

Name:
The cure IS worse!

Re: I'm beyond upset at this point

Chat Icon Chat Icon Chat Icon Chat Icon here and a FM coming at you!

Posted 5/9/07 8:25 AM
 

Lisa
I'm a PANK!!!

Member since 5/05

22334 total posts

Name:
Professional Aunts No Kids

Re: I'm beyond upset at this point

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can you see if your father can be moved to a different facility?

Posted 5/9/07 8:25 AM
 

Shorty
.

Member since 5/05

30390 total posts

Name:
really

Re: I'm beyond upset at this point

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Hang in there - you're at a rough patch right now, but things will start looking up soon.

Posted 5/9/07 8:26 AM
 

baghag
:P

Member since 5/05

10278 total posts

Name:

Re: I'm beyond upset at this point

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and

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Posted 5/9/07 8:28 AM
 

leighla
Support Cancer Research

Member since 5/05

16353 total posts

Name:
Lauren

Re: I'm beyond upset at this point

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I know this is a lot to handle and I give you so much credit for how you've handled it so far.

Hopefully you can get some things squared away today and take a day just for yourself soon to regroup.

Posted 5/9/07 8:31 AM
 

MsSissy
xoxoxo

Member since 3/07

39159 total posts

Name:

Re: I'm beyond upset at this point

I am so sorry you are going through this.
I don't really know what to say except you are doing a great job making sure your dad is being taken care of. Please try to hang in thereChat Icon Chat Icon Chat Icon Chat Icon
It's ok to break down, cry and be angry...you usually feel better after getting it all out.Chat Icon Chat Icon

Message edited 5/9/2007 8:41:11 AM.

Posted 5/9/07 8:33 AM
 

yankinmanc
Happy Days!

Member since 8/05

18208 total posts

Name:

Re: I'm beyond upset at this point

Thats really tough! I am sorry! Hang in there!
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Posted 5/9/07 8:33 AM
 

JodiBabe
Married for 9 yrs!!!!!!

Member since 5/05

6672 total posts

Name:
Jodi

Re: I'm beyond upset at this point

I am so very sorry that you are going through all of this!!!

Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

But just as a side note any inpatient rehab center I have seen or or had family in here in NY never did therapy on the weekends. The rest of the issues you have are extremely valid!!!

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Posted 5/9/07 8:34 AM
 

LInative
LIF Adult

Member since 11/05

1977 total posts

Name:
Cassie

Re: I'm beyond upset at this point

I'm sorry you're going thru all this, but you are a strong person and will get past it and things will get better! Your father is very lucky to have you looking out for him Chat Icon

Posted 5/9/07 8:36 AM
 

Tracey
***********

Member since 5/05

6297 total posts

Name:
Tracey - brideinapril

Re: I'm beyond upset at this point

Wow, I feel so sorry for your dad! Chat Icon Chat Icon Chat Icon I also feel so badly that this is all on you, it just doesn't seem fair. Chat Icon Chat Icon Chat Icon Chat Icon

Posted 5/9/07 8:38 AM
 

lululu
LIF Adult

Member since 7/05

9511 total posts

Name:

Re: I'm beyond upset at this point

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I am so sorry you are going thru this!!! Hopefully you will get some answers today and start working towards moving your father. The health care system in this country really s*cks!!!

Posted 5/9/07 8:41 AM
 

DonnaJoe708
Hello

Member since 5/05

4002 total posts

Name:

Re: I'm beyond upset at this point

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Posted 5/9/07 8:43 AM
 

CookiePuss
Cake from Outer Space!

Member since 5/05

14021 total posts

Name:

Re: I'm beyond upset at this point

I'm sorry you are going through such a tough time. Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 5/9/07 8:44 AM
 

Lauren
Very Happy!

Member since 10/06

3917 total posts

Name:

Re: I'm beyond upset at this point

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Posted 5/9/07 9:00 AM
 

cazhley
I ♥ cheesiness.

Member since 1/07

1429 total posts

Name:
Cassie

Re: I'm beyond upset at this point

I'm sorry. Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 5/9/07 9:04 AM
 

aliwnec10
mom of 3 boys

Member since 4/06

11426 total posts

Name:
Ali

Re: I'm beyond upset at this point

I'm so sorry that you're going through this. I know how hard it can be. Chat Icon Chat Icon Chat Icon Chat Icon

When i was 13 my twin brothers were in a horrible car accident and 1 of them needed rehab. Well long story short, my mom needed rehab a year ago and before she left the hospital, the social worker gave me a list of rehab facilities and i went to check them all out before placing her. Even though you shouldn't have to, it seems as though you need to really research each place to figure out what bests serves their needs. Chat Icon Chat Icon

Is there any other facility that he can be placed in???

Posted 5/9/07 9:12 AM
 

IluvBo
NICKY & EVIE

Member since 6/05

3321 total posts

Name:
Rose

Re: I'm beyond upset at this point

OMG Beth I am so sorry.

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Posted 5/9/07 9:13 AM
 

SweetestOfPeas
J'taime Paris!

Member since 3/06

32345 total posts

Name:

Re: I'm beyond upset at this point

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Posted 5/9/07 9:15 AM
 

Bxgell2
Perfection

Member since 5/05

16438 total posts

Name:
Beth

Re: I'm beyond upset at this point

Posted by aliwnec10
Is there any other facility that he can be placed in???



There are 3 very reputable inpatient rehab facilities in the area, BUT, he is on dialysis, and most dialysis centers in our area, the philly suburbs, won't take a dialysis patient on a temporary basis, that's why we placed him in a facility close to where I live because that's where his permanent dialysis center is.

With that in mind, I'm calling the case worker from the hospital today, and telling her that she is going to have to place him in one of those three facilities TODAY AND arrange for dialysis on a temporary basis AND arrange for his transportation.

If she doesn't comply, or resists, I'm heading over to the hopsital in person, and giving her, and everyone I can get my hands on, an earful.

Posted 5/9/07 9:18 AM
 

aliwnec10
mom of 3 boys

Member since 4/06

11426 total posts

Name:
Ali

Re: I'm beyond upset at this point

Posted by Bxgell2

Posted by aliwnec10
Is there any other facility that he can be placed in???



There are 3 very reputable inpatient rehab facilities in the area, BUT, he is on dialysis, and most dialysis centers in our area, the philly suburbs, won't take a dialysis patient on a temporary basis, that's why we placed him in a facility close to where I live because that's where his permanent dialysis center is.

With that in mind, I'm calling the case worker from the hospital today, and telling her that she is going to have to place him in one of those three facilities TODAY AND arrange for dialysis on a temporary basis AND arrange for his transportation.

If she doesn't comply, or resists, I'm heading over to the hopsital in person, and giving her, and everyone I can get my hands on, an earful.



Also ask her about what other services your father is eligible for. There are many many services for the elderly that most people aren't aware of... ex: transportation, at home care aid, etc. Also, doesn't the rehab facility have any sort of transportation available? Meaning if he was transferred to a different place, isn't there some sort of transportation options to get him to dialysis?

Posted 5/9/07 9:22 AM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: I'm beyond upset at this point

Posted by aliwnec10

Posted by Bxgell2

Posted by aliwnec10
Is there any other facility that he can be placed in???



There are 3 very reputable inpatient rehab facilities in the area, BUT, he is on dialysis, and most dialysis centers in our area, the philly suburbs, won't take a dialysis patient on a temporary basis, that's why we placed him in a facility close to where I live because that's where his permanent dialysis center is.

With that in mind, I'm calling the case worker from the hospital today, and telling her that she is going to have to place him in one of those three facilities TODAY AND arrange for dialysis on a temporary basis AND arrange for his transportation.

If she doesn't comply, or resists, I'm heading over to the hopsital in person, and giving her, and everyone I can get my hands on, an earful.



Also ask her about what other services your father is eligible for. There are many many services for the elderly that most people aren't aware of... ex: transportation, at home care aid, etc. Also, doesn't the rehab facility have any sort of transportation available? Meaning if he was transferred to a different place, isn't there some sort of transportation options to get him to dialysis?



Just to expand on thsi is it possible to get this care at home? That might be a better option and he would be more comfortable

Posted 5/9/07 9:24 AM
 

KateDevine
*

Member since 6/06

24950 total posts

Name:

Re: I'm beyond upset at this point

You are really an amazing daughter. I am so sorry you don't have the support of your brother too.

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Posted 5/9/07 9:27 AM
 

Bxgell2
Perfection

Member since 5/05

16438 total posts

Name:
Beth

Re: I'm beyond upset at this point

Posted by melijane

Also ask her about what other services your father is eligible for. There are many many services for the elderly that most people aren't aware of... ex: transportation, at home care aid, etc. Also, doesn't the rehab facility have any sort of transportation available? Meaning if he was transferred to a different place, isn't there some sort of transportation options to get him to dialysis?



Just to expand on thsi is it possible to get this care at home? That might be a better option and he would be more comfortable


Thank you for the suggestions - yes, the rehab facilities should provide transportation, but they won't provide it beyond a certain point, so we would have to get him into a new dialysis center close to the facility - but, in my mind, THAT is what the case worker is supposed to set up. The alternative is, if he can't get into a facility, is to bring him home, get a nurse who provides transportation to dialysis and therapy, and set up appointments for occupational and cardiac rehab. But, I don't know the first thing about setting this all up, or what facilities provide the best outpatient therapy. I have to have a conversation with the case worker.

I guess I was dreaming thinking my father's transition to rehab would be easy and successful Chat Icon I'm learning some very valuable lessons here that I'm sure will come in handy down the line.

Posted 5/9/07 9:28 AM
 
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