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Claud
LIF Adolescent
Member since 6/05 759 total posts
Name:
Claudine
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Re: So I've Started the Ball Rolling..
I think there's just more gravity to an actual named diagnosis, and that is why it's filled with emotion for you. As a parent, we fear our children being labeled, even in the smallest sense of the word. Hang in there. This is probably the most difficult part...but, it sounds like you are a wonderful, courageous Mom who is doing the very best you can for your child. It's going to be okay.
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Posted 10/16/07 10:02 AM  |
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Tracey
***********
Member since 5/05 6297 total posts
Name:
Tracey - brideinapril
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Re: So I've Started the Ball Rolling..
Posted by Claud
I think there's just more gravity to an actual named diagnosis, and that is why it's filled with emotion for you. As a parent, we fear our children being labeled, even in the smallest sense of the word. Hang in there. This is probably the most difficult part...but, it sounds like you are a wonderful, courageous Mom who is doing the very best you can for your child. It's going to be okay.
I could NOT have said it better, you are a wonderful mommy for recognizing and doing something instead of ignoring it and hoping it goes away.
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| Posted 10/16/07 10:05 AM |
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colesmom
Brady's mom too!
Member since 5/05 1989 total posts
Name:
Lea
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Re: So I've Started the Ball Rolling..
My son was recently diagnosed with PDD. We've been going through EI for a year and a half and he attends a special ed. preschool. Please FM if you'd like to talk.
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| Posted 10/17/07 4:55 AM |
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EmmaNick
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Member since 12/06 16001 total posts
Name:
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Re: So I've Started the Ball Rolling..Updated
updated in OP
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| Posted 9/16/08 1:21 PM |
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chelle
It's a Good Life
Member since 8/06 15404 total posts
Name:
Isn't it obvious?
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Re: So I've Started the Ball Rolling..Updated
Posted by Tracey
Posted by Claud
I think there's just more gravity to an actual named diagnosis, and that is why it's filled with emotion for you. As a parent, we fear our children being labeled, even in the smallest sense of the word. Hang in there. This is probably the most difficult part...but, it sounds like you are a wonderful, courageous Mom who is doing the very best you can for your child. It's going to be okay.
I could NOT have said it better, you are a wonderful mommy for recognizing and doing something instead of ignoring it and hoping it goes away.
ITA
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| Posted 9/16/08 2:17 PM |
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KristinasMama
How did she turn 2 so quickly?
Member since 10/07 8257 total posts
Name:
Blessed Mama of Kristina Elena
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Re: So I've Started the Ball Rolling..Updated
Oh Summer... I'm so glad that you have gotten a diagnosis.
My brother is on something for his hyperactivity... I will ask my mom what it is.
He used to take Ritalin which caused him to NEVER eat.... with this med, he takes it, and is calm calm calm, but he still acts normal with regard to how he eats, and interacts with people if that makes any sense.
Even if you ask him - the ritalin made him feel zombie like.
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| Posted 9/16/08 2:23 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: So I've Started the Ball Rolling..Updated
My daughter had her evaluation at the Cody Center. I was fortunate that I got the school to pay for it...it was extremely expensive and the school district tried to back peddle afterwards and not pay it!!!!!
Any way....even though we know that there is something wrong. Even though we know we are right..there is still that small part of us that is hoping we are wrong.
When I got Ariel's diagnosis I was in tears. I cried the whole way home. She was 9 at the time....already in self contained...I already had a diagnoses of Mosaic Down SYndrome...but it still was a lot to take.
Just while Im on the subject...and none of what Im about to say may pertain to him or your situation. But if push comes to shove go with the Autism classification on the IEP. The messed around with us and wanted to do Multiply Disabled. They dont want to classify them as Autistic b/c of the services or something...
AND I know you work in the area but there is a very good Special Ed Lawyer in Port Jefferson by the name of Nick Agro.
Again I know none of this may pertain to you at all. But I thought I should offer up this info any way just incase you might need it in the future...
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| Posted 9/16/08 2:45 PM |
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EmmaNick
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Member since 12/06 16001 total posts
Name:
*
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Re: So I've Started the Ball Rolling..Updated
Posted by hbugal
My daughter had her evaluation at the Cody Center. I was fortunate that I got the school to pay for it...it was extremely expensive and the school district tried to back peddle afterwards and not pay it!!!!!
Any way....even though we know that there is something wrong. Even though we know we are right..there is still that small part of us that is hoping we are wrong.
When I got Ariel's diagnosis I was in tears. I cried the whole way home. She was 9 at the time....already in self contained...I already had a diagnoses of Mosaic Down SYndrome...but it still was a lot to take.
Just while Im on the subject...and none of what Im about to say may pertain to him or your situation. But if push comes to shove go with the Autism classification on the IEP. The messed around with us and wanted to do Multiply Disabled. They dont want to classify them as Autistic b/c of the services or something...
AND I know you work in the area but there is a very good Special Ed Lawyer in Port Jefferson by the name of Nick Agro.
Again I know none of this may pertain to you at all. But I thought I should offer up this info any way just incase you might need it in the future...
Thanks Heather I actually am fortunate that I've never really had to push for services thus far, he gets soo many as it is and always has. His classification changes a lot though. It was Orthoped. Impaired (where they got that I have no idea..I guess the gross motor), then it was MD, then it was OHI and now it's back to MD for now. The doctor even said she isn't sure how the DX will "help" him in regards to getting more services at school since he gets a lot already, but it's good to pinpoint what the issue is.
I really hope down the road I won't need legal intervention, but I'll notebook this in case I do!
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| Posted 9/16/08 3:00 PM |
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05mommy09
Family of 5!
Member since 5/05 15364 total posts
Name:
<3 Mommy <3
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Re: So I've Started the Ball Rolling..Updated
Summer, you are a great mom.
Im glad you are finally getting the "answers" you were looking for.
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| Posted 9/16/08 5:20 PM |
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nbc188
Best friends!
Member since 12/06 23090 total posts
Name:
C
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Re: So I've Started the Ball Rolling..Updated
So glad that you're on the way to finding the very best solutions & help for your son
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| Posted 9/16/08 5:58 PM |
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KateDevine
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Member since 6/06 24950 total posts
Name:
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Re: So I've Started the Ball Rolling..Updated
Nicholas is a wonderful boy, and you are the BEST mom!!
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| Posted 9/16/08 6:24 PM |
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Melissa77
Mommy of 3
Member since 8/08 2872 total posts
Name:
Melissa
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Re: So I've Started the Ball Rolling..Updated
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| Posted 9/16/08 6:33 PM |
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pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
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Re: So I've Started the Ball Rolling..Updated
glad he is getting some intervention
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| Posted 9/16/08 6:40 PM |
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InShock
life is good
Member since 10/06 9258 total posts
Name:
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Re: So I've Started the Ball Rolling..Updated
You are such a great mom!
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| Posted 9/16/08 8:53 PM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: So I've Started the Ball Rolling..Updated
No reason to be sad. your son , and I know first hand, is an awesome amazing little boy, and has YOU to thank for that. He will thrive regardless of what he needs or what he "has" because of you and your families love , support and guidance!
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| Posted 9/16/08 8:56 PM |
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Re: So I've Started the Ball Rolling..Updated
You're a great mom!!!
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| Posted 9/16/08 9:05 PM |
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Palebride
I am an amazing bakist
Member since 5/05 13673 total posts
Name:
Lori
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Re: So I've Started the Ball Rolling..Updated
You are clearly an amazing mom. Your son is an amazing little boy. I hope this gives you some closure of some kind....
And my school has worked with the Cody Center for certain students....they're excellent from what I've seen. Your son is in good hands!
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| Posted 9/16/08 9:08 PM |
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BaroqueMama
Chase is one!
Member since 5/05 27530 total posts
Name:
me
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Re: So I've Started the Ball Rolling..Updated
He's an awesome kid and what a great mom you are to do what you knew was right, even though it was hard When it comes down to it, he will only be empowered by all the extra help he can get, he certainly won't be held back, so you are doing everything you can to secure a great future for your amazing little boy
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| Posted 9/16/08 9:11 PM |
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nferrandi
too excited for words
Member since 10/05 18538 total posts
Name:
Nicole
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Re: So I've Started the Ball Rolling..Updated
I'm glad you've gotten some more answers, even though they are obviously hard to deal with. You sound like an amazing mom who puts her kids needs before anyting else.
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| Posted 9/16/08 9:16 PM |
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SkyzTheLimit
Bring on summer!!!
Member since 3/06 2483 total posts
Name:
Jamie
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Re: So I've Started the Ball Rolling..Updated
I know how you feel when you say you know what is in your heart and what you think but it is completley different when you hear it from someone.
I also tried to get my Nikolas to be seen by the Cody Center and I went through the same thing you went through.. I ened up getting him seen at Schneiders because it was too much money at cody center for out of pocket.
It's a tough thing for us mommies to have to go through but we do it because we want what is best for our children. You love Nicholas no matter what. Your an awesome mother!!!
If you need to talk I am always here. Believe me I know how hard it is. There have been many a nights that I lay in bed and cry because I don't know how to help my son with some of the problems that he has.. We just do the best we can and support and love them just like before..
Message edited 9/16/2008 11:28:27 PM.
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| Posted 9/16/08 11:26 PM |
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GenLCSW
Baby # 3 is here!!!
Member since 7/05 21138 total posts
Name:
Genna
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Re: So I've Started the Ball Rolling..Updated
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| Posted 9/17/08 5:09 AM |
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Debbie
Life is berry good!
Member since 5/05 1229 total posts
Name:
Debbie
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Re: So I've Started the Ball Rolling..Updated
Glad you got answers. My daughter is diagnosed with PDD. They told me they feel it is more Aspergers, but she is to young for a specific diagnosis. She's four years old. It doesn't change the love you have for your child. I don't look at my daughter as a label, it is just there to help get her services. You have a terrific attitude. 
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| Posted 9/17/08 5:56 AM |
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Bxgell2
Perfection
Member since 5/05 16438 total posts
Name:
Beth
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Re: So I've Started the Ball Rolling..Updated
You're being an AMAZING mother for your son - the key here is intervention at an early age. I've seem truly remarkable things when done right, and at the right time. Kudos to you for doing what's best for your child
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| Posted 9/17/08 6:49 AM |
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colesmom
Brady's mom too!
Member since 5/05 1989 total posts
Name:
Lea
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Re: So I've Started the Ball Rolling..Updated
You're such a great mom, Summer!
I think I mentioned Nassau Suffolk Autism Society when we went to the park, but here's the link. There's a chat board, but more importnantly, they sponsor a ton of free fun events for ASD families ...
nsasa
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| Posted 9/17/08 7:36 AM |
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littlejoy06
Love
Member since 3/07 6944 total posts
Name:
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Re: So I've Started the Ball Rolling..Updated
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| Posted 9/17/08 7:55 AM |
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