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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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UPDATE TWO - Do you have hashimotos? Pls don't move
I've been on Synthroid for three years since being diagnosed w hashimotos. For a brief time was on generic and no difference.
I went to endo in April and all blood perfect. However past month I feel like shite. My hair is sort of falling out. It's all over the house and always touching my arm. My skin is bad, the worst it's ever been in my life. And most importantly this is going to sound SO weird (but happened to be before I was diagnosed) but especially at night when I am laying down trying to sleep I get panicked. For no reason. My dd will cry out momma! But then settle back down at sleep and her cry makes my heart physically race. I feel scared at night, I am not scared of anything in particular but it's a physical feeling my body is doing. Something is wrong.
I am normally a researcher. However. When I was first diagnosed I was in the middle of fertility treatments and so focused on that. Then I did Ivf and got preg and had a baby. So I've been focused on that. Now I feel horrible and it's time to focus on this.
Does anyone take the natural armour? From the pig thyroid? I have read it's hard to get and endos discourage. Can you please describe your experience or if you have any words of advice?
Ps I went gluten free 3 weeks ago and no change.
Thanks I am so desperate.
UPDATE
I received my blood results this am, so fast yet I am soooo annoyed they didn't test me for antibodies so I have to go back at lunch again for more blood. Everything came back normal. Here are my results:
T3 98
T4 7.9
T3 uptake 45.8
TSH 1.6
I am having flashbacks of infertility when every test was perfect and I had no answers.
Does anyone have any other advise besides the antibodies results?
UPDATE 2
Got the antibodies test back. It's high. I have an appt to see doctor in October, soonest I could get in. Can someone please make heads of tails of these numbers and explain what it means and what can I do to make it better, does adjusting Synthroid help? Sucks I can't see the doctor for a month!
TPO micro something antibodies 6.2 range is 0-5.6
T globulin antibodies 100.2 range is 0-4.1
Would these numbers be making me feel sick?
Message edited 8/22/2014 9:34:32 AM.
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Posted 8/17/14 8:53 PM  |
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lilqtny
-Crossfit & pitbull addict
Member since 7/06 2830 total posts
Name:
Tracy
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Do you have hashimotos? Pls don't move
No but please read about and consider tp the paleo autoimmune protocol
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| Posted 8/17/14 10:24 PM |
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Re: Do you have hashimotos? Pls don't move
Hi, I have hashimotos. I am not on synthroid because my tsh levels and other levels ( t3, t4, free t3) are normal. My tsh is a very low number but within normal range. The doctors will not give me any meds for that reason. They said that my thyroid is " flipping" and that it is going into failure. I also took fertility meds for about 2 and a half years. I am not on those meds now. I have noticed that there are times my heart would beat fast as if it were racing. My hair would also get thinner and come out during certain times of the year. When I alsked the doctor about this, he did tell me that the thyroid can cause these symptoms even though all levels are normal. In order to have hashimotos, one has thyroid antibodies. My level is over 1000 and I believe 60 or under is considered normal . Yet all of my other thyroid numbers and tests are fine. The thyroid antibodies ( hashimotos) causes these symptoms sometimes. I have heard of armour On some websites about thyroid issues, people have said they felt better taking the armour as opposed to synthroid. Also some people feel that the brand name synthroid works better than the generic name. I feel that my thyroid has caused a lot of problems for me even though my other thyroid levels are normal. Best of luck. Also, a paleo diet may be good. Hashimotos is an autoimmune disorder and paleo diet is fresh fruits, vegetables, whole foods, etc. Good luck.
Message edited 8/17/2014 10:32:30 PM.
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| Posted 8/17/14 10:28 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Do you have hashimotos? Pls don't move
I definitely eat mostly whole foods, all my fruits and veggies, dairy are organic (unless I eat out and it isn't). I eat a lot of nuts, seeds, quinoa, rice, various beans, chic peas - very very little processed food and if it is processed it's organic with easy to read ingredients. I've eaten this way mostly my whole life.
However I do not eat meat or seafood and haven't in 20 years, since I was very young. I don't know how I could do paleo? And I don't think I could even eat meat even if it was "for my health" I would die if someone tried to make me eat a steak or hamburger or a piece of fish. Anything else I will eat!
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| Posted 8/17/14 10:55 PM |
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MrsG823
Just call me Mommy.
Member since 1/11 5570 total posts
Name:
S
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Do you have hashimotos? Pls don't move
I have it. It sounds like you should see your endocrinologist- your levels may be too high or too low. You may want to have your thyroid antibodies checked as well. If you are producing high levels of anti thyroid antibodies it can make you feel sick.
In my experience I have been required to see my endocrinologist every three months- I have had two different doctors and they both required it.
I have not tried armour. If you thyroid was well controlled on synthroid before your pregnancy you should start by adjusting the levels.
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| Posted 8/17/14 10:56 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by Sweetsunflower
Hi, I have hashimotos. I am not on synthroid because my tsh levels and other levels ( t3, t4, free t3) are normal. My tsh is a very low number but within normal range. The doctors will not give me any meds for that reason. They said that my thyroid is " flipping" and that it is going into failure. I also took fertility meds for about 2 and a half years. I am not on those meds now. I have noticed that there are times my heart would beat fast as if it were racing. My hair would also get thinner and come out during certain times of the year. When I alsked the doctor about this, he did tell me that the thyroid can cause these symptoms even though all levels are normal. In order to have hashimotos, one has thyroid antibodies. My level is over 1000 and I believe 60 or under is considered normal . Yet all of my other thyroid numbers and tests are fine. The thyroid antibodies ( hashimotos) causes these symptoms sometimes. I have heard of armour On some websites about thyroid issues, people have said they felt better taking the armour as opposed to synthroid. Also some people feel that the brand name synthroid works better than the generic name. I feel that my thyroid has caused a lot of problems for me even though my other thyroid levels are normal. Best of luck. Also, a paleo diet may be good. Hashimotos is an autoimmune disorder and paleo diet is fresh fruits, vegetables, whole foods, etc. Good luck.
I've heard people say you're supposed to treat the symptoms not the numbers. Every endo I've been to is so laid back like everyone has it and it's not a big deal. I am starting to get scared bc my memory is now not great, I used to be so sharp and on point and my friends have even commented or I've heard the term "baby brain" and I know it's something more than that.
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| Posted 8/17/14 10:57 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by MrsG823
I have it. It sounds like you should see your endocrinologist- your levels may be too high or too low. You may want to have your thyroid antibodies checked as well. If you are producing high levels of anti thyroid antibodies it can make you feel sick.
In my experience I have been required to see my endocrinologist every three months- I have had two different doctors and they both required it.
I have not tried armour. If you thyroid was well controlled on synthroid before your pregnancy you should start by adjusting the levels.
I was just at the endo at the end of April so 3.5mos ago. However my latest sono was mid may. He said he wanted to see me in October.
When I was preg tsh was like .68 the whole time and I've only even been on 50mg of Synthroid. My dd is almost two so it's been a long time since I've had her and only like a month that I've really felt bad.
So I will ask for t3, t4, tsh and thyroid antibodies to be checked?
I've read Synthroid only controls t4 so if t3 is off that could be why? My new endo did a full hormone work up, whatever that means, and they reported nothing back to me.
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| Posted 8/17/14 11:01 PM |
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Do you have hashimotos? Pls don't move
There are about 7 different thyroid tests, including anti thyroid antibodies. Maybe your dosage of synthroid needs to be changed. A friend of mine was on 50 mg. of synthroid and feeling much better. Then, after about 6 months later, the same doctor changed her dosage of synthroid to a higher dosage. She felt lethargic, had brain fog, and her period stopped for awhile. She became moody as well and went back to her dr.Her doctor put her back down to 50 mg. and that was the right dosage for her. She felt fine. Maybe the endocrinologist has to tweak your dosage. Also, I wish my endocrinologists will give me some medicine for my thyroid. My tsh levels are on the lower side within normal range (.54) and some endocrinologists said if they were to give me synthroid, it could affect my heart, speeding it up. That's why I am not on meds, but I feel that my thyroid is definitely not functioning properly. Also, I have had thyroid sonograms and they found nodules that need to be checked. I have been to many endocrinologists and i only recently found one who I really like. The other endocrinologists I went to were not thorough enough. I would suggest that you ask your endocrinologist to please run a complete CBC as well as a complete thyroid panel.
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| Posted 8/17/14 11:15 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by Sweetsunflower
There are about 7 different thyroid tests, including anti thyroid antibodies. Maybe your dosage of synthroid needs to be changed. A friend of mine was on 50 mg. of synthroid and feeling much better. Then, after about 6 months later, the same doctor changed her dosage of synthroid to a higher dosage. She felt lethargic, had brain fog, and her period stopped for awhile. She became moody as well and went back to her dr.Her doctor put her back down to 50 mg. and that was the right dosage for her. She felt fine. Maybe the endocrinologist has to tweak your dosage. Also, I wish my endocrinologists will give me some medicine for my thyroid. My tsh levels are on the lower side within normal range (.54) and some endocrinologists said if they were to give me synthroid, it could affect my heart, speeding it up. That's why I am not on meds, but I feel that my thyroid is definitely not functioning properly. Also, I have had thyroid sonograms and they found nodules that need to be checked. I have been to many endocrinologists and i only recently found one who I really like. The other endocrinologists I went to were not thorough enough. I would suggest that you ask your endocrinologist to please run a complete CBC as well as a complete thyroid panel.
I am definitely going to ask for all of these tests. Something has definitely changed within the last three months. I am like you, I've burned through many endos over the past few years bc I felt no one took me serious.
I also, like you have nodules. First one grew during pregnancy. Second one right after and most recently I have like 8 tiny ones. Too small to biopsy and the sono tech, nurse, and dr all assured me it was nothing and not a big deal. It's infuriating to me bc I get scared and hate feeling panicked 24-7 for no reason.
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| Posted 8/17/14 11:32 PM |
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Do you have hashimotos? Pls don't move
I also feel that doctors think this is such a common disorder too. Yet, it is frustrating when symptoms occur. I have several small nodule and 1 large nodule that had to be biopsied because it grew huge in one year. The biopsy is done if a thyroid nodule is over 2 mm. It was benign. The biopsy hurt very much but I'm glad it was done. My endocrinologist felt that this nodule grew a lot within a year because of the estrogen that I had to take due to my 3 Ivf procedures. That is just the doctors thoughts. I do not think there is any proof that estrogen caused it to get bigger.They don't biopsy very small nodules. Almost all nodules are benign. Every 6 months I have to check these nodules with thyroid sonograms. Also, I was told to try to stay away from soy because of my thyroid problems. I do not remember why the endocrinologist said so. I think it may contribute to nodule growth, but I am not sure. Also, I would suggest asking for copies of all of your thyroid tests, sonogram results, and cbc tests. You can compare the levels and if you choose another endocrinologist, you can show him the results, especially if there is any nodule growth. I think your doctor May tweak your synthroid dosage. I hope that you feel better soon.
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| Posted 8/18/14 12:00 AM |
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busymomonli
Resident Insomniac
Member since 4/13 2050 total posts
Name:
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Do you have hashimotos? Pls don't move
I was diagnosed with Hashi's in 2007. I started out on 25 mcrg of Synthroid, and over 7 years have steadily increased to 175 mcgr. And I still feel like crap. I asked my endo about Armour and was told that nothing works as well as Synthroid and she did not recommend switching because of the high dose I take.
In 2011, I was also diagnosed with Lupus, so often I can't tell where my symptoms are coming from, which is very frustrating. In the same mix, I am also well into Perimenopause. Can I ask how old you are? Is it possible you are starting Perimenopause? A lot of your symptoms do sound like mine, the heart racing, the scared feelings. A lot of this can be attributed to changing hormones.
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| Posted 8/18/14 9:21 AM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by busymomonli
I was diagnosed with Hashi's in 2007. I started out on 25 mcrg of Synthroid, and over 7 years have steadily increased to 175 mcgr. And I still feel like crap. I asked my endo about Armour and was told that nothing works as well as Synthroid and she did not recommend switching because of the high dose I take.
In 2011, I was also diagnosed with Lupus, so often I can't tell where my symptoms are coming from, which is very frustrating. In the same mix, I am also well into Perimenopause. Can I ask how old you are? Is it possible you are starting Perimenopause? A lot of your symptoms do sound like mine, the heart racing, the scared feelings. A lot of this can be attributed to changing hormones.
I am 33. I have regular periods despite breast feeding for nearly 2 years. While I had fertility problems I was listed as unexplained.
It is common when diagnosed with one autoimmune to decelops others unfortunately.
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| Posted 8/18/14 9:51 AM |
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MrsG823
Just call me Mommy.
Member since 1/11 5570 total posts
Name:
S
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Re: Do you have hashimotos? Pls don't move
Posted by Leb
Posted by MrsG823
I was just at the endo at the end of April so 3.5mos ago. However my latest sono was mid may. He said he wanted to see me in October.
When I was preg tsh was like .68 the whole time and I've only even been on 50mg of Synthroid. My dd is almost two so it's been a long time since I've had her and only like a month that I've really felt bad.
So I will ask for t3, t4, tsh and thyroid antibodies to be checked?
I've read Synthroid only controls t4 so if t3 is off that could be why? My new endo did a full hormone work up, whatever that means, and they reported nothing back to me.
It is concerning that your doctor did not contact you with the results of your blood work. Even if everything is normal you should be notified.
If you are feeling sick and anxious you should not wait until October to go back to the doctor. The fear and anxiety may or may not be related to your thyroid. It makes sense to start with the assumption that it is related but waiting is not providing you with any relief. A good friend of mine had all the symptoms you describe when she started going through menopause- she spent months fighting with her endocrinologist over switching to armour to treat her hypothyroid and in the end it was irrelevant.
Synthroid only contains T4 but cells out side of the thyroid convert T4 to T3 so that is usually not an issue. The thyroid only produces small amounts of T3. So even in the absence of the thyroid you should be able to produce sufficient T3 if your body has enough T4. The measure of T3 is usually used to diagnose hyperthyroid because by the time your levels are low enough to diagnose hypothyroid the condition would be severe.
As for your TSH and T3/T4 during pregnancy- it cannot really be compared to your needs when you are not pregnant. My prepregnancy dose of synthroid was
112 micrograms. When I became pregnant my dose was increased to 150 mcg and at 4.5 months postpartum My does was lowered to 137 mcg because I was hyperthyroid. I go back next month to get my levels checked again.
Another thing to consider is are you taking any new medications or supplements? Calcium, magnesium, iron and soy among other things can decrease the absorption of synthroid.
Message edited 8/18/2014 12:05:02 PM.
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| Posted 8/18/14 12:03 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by MrsG823
Posted by Leb
Posted by MrsG823
I was just at the endo at the end of April so 3.5mos ago. However my latest sono was mid may. He said he wanted to see me in October.
When I was preg tsh was like .68 the whole time and I've only even been on 50mg of Synthroid. My dd is almost two so it's been a long time since I've had her and only like a month that I've really felt bad.
So I will ask for t3, t4, tsh and thyroid antibodies to be checked?
I've read Synthroid only controls t4 so if t3 is off that could be why? My new endo did a full hormone work up, whatever that means, and they reported nothing back to me.
It is concerning that your doctor did not contact you with the results of your blood work. Even if everything is normal you should be notified.
If you are feeling sick and anxious you should not wait until October to go back to the doctor. The fear and anxiety may or may not be related to your thyroid. It makes sense to start with the assumption that it is related but waiting is not providing you with any relief. A good friend of mine had all the symptoms you describe when she started going through menopause- she spent months fighting with her endocrinologist over switching to armour to treat her hypothyroid and in the end it was irrelevant.
Synthroid only contains T4 but cells out side of the thyroid convert T4 to T3 so that is usually not an issue. The thyroid only produces small amounts of T3. So even in the absence of the thyroid you should be able to produce sufficient T3 if your body has enough T4. The measure of T3 is usually used to diagnose hyperthyroid because by the time your levels are low enough to diagnose hypothyroid the condition would be severe.
As for your TSH and T3/T4 during pregnancy- it cannot really be compared to your needs when you are not pregnant. My prepregnancy dose of synthroid was
112 micrograms. When I became pregnant my dose was increased to 150 mcg and at 4.5 months postpartum My does was lowered to 137 mcg because I was hyperthyroid. I go back next month to get my levels checked again.
Another thing to consider is are you taking any new medications or supplements? Calcium, magnesium, iron and soy among other things can decrease the absorption of synthroid.
Sorry you may have misunderstood me. I am NOT waiting at all. I am getting blood taken ASAP from a lab near my work. Called today to set that up. While I've felt bad recently it really only hit me this weekend it was my thyroid.
Also I am not waiting until oct. If everything was fine that's when they would haven't wanted to see me for a check up, blood, and sono.
The nurse did call and have me results. I forget now what she said. Tsh was 1.68 maybe? Normal range and they mailed me my paper work. However I looked at it last night and can't make heads or tails of it.
I guess I was just trying to make the point that my tsh levels have never changed and no one has ever suggested increasing my Synthroid. And that even during pregnancy which is odd. Or after birth, I've read usually yours meds need adjustments. So not to say the numbers didn't change but as of 3 mos ago I was fine.
Don't get me wrong I am not looking to self diagnose but like so many before realize these doctors treat the thyroid, I need a doctor to treat my autoimmune disease which is effecting my thyroid. No doctor has ever mentioned to me to avoid soy or broccoli or strawberries. I don't eat any soy anymore. But years ago I did a lot bc I don't eat meat.
I just hope I can find somethhing that changes the way I feel.
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| Posted 8/18/14 12:31 PM |
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MrsG823
Just call me Mommy.
Member since 1/11 5570 total posts
Name:
S
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Do you have hashimotos? Pls don't move
It is good to hear you are taking control of the situation. Many doctors "forget" to discuss medication interactions with their patients especially when it is food interactions. Most physicians do not have extensive training in nutrition which I think is often over looked by many patients.
I actually had to explain to a physician I was seeing how I could eat whole grains if I was gluten free! There is definitely a disconnect between what you eat and health status many times.
If you look at your blood test results it should give your test result and a reference range as well as a indicator of where your number falls in the reference range. Most labs use N for normal, L for low and H for high. You can look up each test. The website labtestsonline.org has good explain actions of what most common lab test are looking for and what the results mean.
As for treating your autoimmune disease there is little that can be done to control the anti thyroid antibodies except removing or killing the thyroid. You can try modifying you diet to avoid foods associated with inflammation and avoid food high in iodine but this is believe to help with inflammation it will not cure your autoimmune disease.
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| Posted 8/18/14 1:22 PM |
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lcherian
He is the reason!
Member since 2/06 2512 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Besides the issues that you will be discussing with your doctor, are you taking a vitamin d supplement? My rheumatologist said vit d is very important for people with autoimmune disease. I take 10,000 iu everyday. How about a probiotic? it could take a few months to see the benefits of going gluten free.
Like pp said, look into the autoimmune protocol by Sarah ballantyne. The paleo approach community on Facebook is also a great resource.
The paleo approach community
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| Posted 8/18/14 2:00 PM |
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SadiesMom
LIF Infant
Member since 7/07 124 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by lcherian
Besides the issues that you will be discussing with your doctor, are you taking a vitamin d supplement? My rheumatologist said vit d is very important for people with autoimmune disease. I take 10,000 iu everyday. How about a probiotic? it could take a few months to see the benefits of going gluten free.
Like pp said, look into the autoimmune protocol by Sarah ballantyne. The paleo approach community on Facebook is also a great resource.
The paleo approach community
I have Hashimoto's and recently found that my vitamin d level was an 8. I was put on prescription levels for 4 weeks which brought me up a bit. The number was still very low, so I have been supplementing with 5,000 a day since then. Have you had your levels monitored? I am told that having a level too high is also not so great. Not judging you in any way, but just wondering because I was a little worried about giving myself the 5,000. I did notice a change in the way I was feeling once I started the prescription. It was like I woke up. I had so much more energy.
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| Posted 8/18/14 6:22 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by SadiesMom
Posted by lcherian
Besides the issues that you will be discussing with your doctor, are you taking a vitamin d supplement? My rheumatologist said vit d is very important for people with autoimmune disease. I take 10,000 iu everyday. How about a probiotic? it could take a few months to see the benefits of going gluten free.
Like pp said, look into the autoimmune protocol by Sarah ballantyne. The paleo approach community on Facebook is also a great resource.
The paleo approach community
I have Hashimoto's and recently found that my vitamin d level was an 8. I was put on prescription levels for 4 weeks which brought me up a bit. The number was still very low, so I have been supplementing with 5,000 a day since then. Have you had your levels monitored? I am told that having a level too high is also not so great. Not judging you in any way, but just wondering because I was a little worried about giving myself the 5,000. I did notice a change in the way I was feeling once I started the prescription. It was like I woke up. I had so much more energy.
When I was going through fertility treatments my vitamin d was a 19. So I started supplementing and take 1,000 daily. The last few times I had it checked I think I was like 39-45 so over 30. However sometimes I do forget to take it.
I also take a probiotic daily and I take a double dose.
The lab has my rx so I am hoping to go tomorrow at lunch. Test was for tsh, t3, t4 and I made them add in antibodies. If it's too late for vit d I can request my gp.
I've had a lot of blood over the years, I did dr b's full blood panel and was meticulous on checking my numbers bc I was trying to get preg. Funny how when it's health related it takes a slight back seat. I know I have to be on top of this. I am reading of women putting theirs into remission with diet and hoping I can do that too.
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| Posted 8/18/14 8:51 PM |
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PhyllisNJoe
My Box Is Broken
Member since 6/11 9145 total posts
Name:
Phyllis
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Re: Do you have hashimotos? Pls don't move
I have the opposite. I have Graves DIsease. Which comes with a HYPERthyroid. I had to have radiation to try and destroy my thyroid, which then made me HYPOthyroid. It didn't destroy it completely so I am on a very small amount of Synthroid to keep my levels within normal range for ME.
With that being said, I have seen so many Endos and they all do the same thing. They treat the Number. And they keep you at a number that works for everyone. Well, that doesn't work for me. When I start feeling sluggish, my hair starts to fall out or I just feel "off" I know it's my thyroid. But no endo would help me. Until I found my new PCP, who also has a thyroid problem. She stopped seeing endos all together bc they never helped her either! She would raise her dosage and check her blood until she felt good. She treats ME, not my number. We realized I have to be between a 1 & 2 to feel normal. They say you can go to a 3. Not me. If' I get closer to 3, I feel horrible. But most endos would consider that "normal" and tell you you're depressed or it's something else.
You need to find a Dr who will treat your symptoms. I don't know where you are located, but my PCP is in Bay Shore. And she treats my thyroid now.
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| Posted 8/18/14 10:39 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by PhyllisNJoe
I have the opposite. I have Graves DIsease. Which comes with a HYPERthyroid. I had to have radiation to try and destroy my thyroid, which then made me HYPOthyroid. It didn't destroy it completely so I am on a very small amount of Synthroid to keep my levels within normal range for ME.
With that being said, I have seen so many Endos and they all do the same thing. They treat the Number. And they keep you at a number that works for everyone. Well, that doesn't work for me. When I start feeling sluggish, my hair starts to fall out or I just feel "off" I know it's my thyroid. But no endo would help me. Until I found my new PCP, who also has a thyroid problem. She stopped seeing endos all together bc they never helped her either! She would raise her dosage and check her blood until she felt good. She treats ME, not my number. We realized I have to be between a 1 & 2 to feel normal. They say you can go to a 3. Not me. If' I get closer to 3, I feel horrible. But most endos would consider that "normal" and tell you you're depressed or it's something else.
You need to find a Dr who will treat your symptoms. I don't know where you are located, but my PCP is in Bay Shore. And she treats my thyroid now.
What's her name? Fm me if you feel comfortable. I don't live that close but I can maybe make a trip. I've literally been to 5 endos! The first two I left bc they were so relaxed. My last endo was okay. She had hashimotos too so I felt maybe she understood a little. My new one is really young. Like 30s, am hoping he is more progressive.
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| Posted 8/19/14 12:08 AM |
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PhyllisNJoe
My Box Is Broken
Member since 6/11 9145 total posts
Name:
Phyllis
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Re: Do you have hashimotos? Pls don't move
Posted by Leb
Posted by PhyllisNJoe
I have the opposite. I have Graves DIsease. Which comes with a HYPERthyroid. I had to have radiation to try and destroy my thyroid, which then made me HYPOthyroid. It didn't destroy it completely so I am on a very small amount of Synthroid to keep my levels within normal range for ME.
With that being said, I have seen so many Endos and they all do the same thing. They treat the Number. And they keep you at a number that works for everyone. Well, that doesn't work for me. When I start feeling sluggish, my hair starts to fall out or I just feel "off" I know it's my thyroid. But no endo would help me. Until I found my new PCP, who also has a thyroid problem. She stopped seeing endos all together bc they never helped her either! She would raise her dosage and check her blood until she felt good. She treats ME, not my number. We realized I have to be between a 1 & 2 to feel normal. They say you can go to a 3. Not me. If' I get closer to 3, I feel horrible. But most endos would consider that "normal" and tell you you're depressed or it's something else.
You need to find a Dr who will treat your symptoms. I don't know where you are located, but my PCP is in Bay Shore. And she treats my thyroid now.
What's her name? Fm me if you feel comfortable. I don't live that close but I can maybe make a trip. I've literally been to 5 endos! The first two I left bc they were so relaxed. My last endo was okay. She had hashimotos too so I felt maybe she understood a little. My new one is really young. Like 30s, am hoping he is more progressive.
Shore Medical Associates
Dr. Diane Magliulo DO
245 W Main St
Bay Shore, NY 11706
(631) 969-0000
When you make your appointment, make it with her. It's a husband and wife team. I love him as well, but when it comes to Thyroid, I like to see just her. Then the day you are going, call before hand to be sure it's her that is there and that's who you will be seeing.
I love these Drs.
Best of luck!
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| Posted 8/19/14 9:54 AM |
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lcherian
He is the reason!
Member since 2/06 2512 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by SadiesMom
Posted by lcherian
Besides the issues that you will be discussing with your doctor, are you taking a vitamin d supplement? My rheumatologist said vit d is very important for people with autoimmune disease. I take 10,000 iu everyday. How about a probiotic? it could take a few months to see the benefits of going gluten free.
Like pp said, look into the autoimmune protocol by Sarah ballantyne. The paleo approach community on Facebook is also a great resource.
The paleo approach community
I have Hashimoto's and recently found that my vitamin d level was an 8. I was put on prescription levels for 4 weeks which brought me up a bit. The number was still very low, so I have been supplementing with 5,000 a day since then. Have you had your levels monitored? I am told that having a level too high is also not so great. Not judging you in any way, but just wondering because I was a little worried about giving myself the 5,000. I did notice a change in the way I was feeling once I started the prescription. It was like I woke up. I had so much more energy.
to be honest, I was supposed to have my levels checked again, but I haven't done it yet.  im sure if my levels are up, my doctor will recommend me to reduce my dosage.
Message edited 8/19/2014 9:57:25 AM.
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| Posted 8/19/14 9:57 AM |
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Denise
LIF Adolescent
Member since 12/09 572 total posts
Name:
Denise
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Do you have hashimotos? Pls don't move
I would also check out the paleo diet for thyroid disorders. There is a book called practical paleo and they have regimens in it for all types of disorders. I follow that diet mostly and am symptom free.
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| Posted 8/19/14 11:28 AM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by Denise
I would also check out the paleo diet for thyroid disorders. There is a book called practical paleo and they have regimens in it for all types of disorders. I follow that diet mostly and am symptom free.
That's awesome! I've been doing some reading and it seems some people have put theirs into a state of unmedicated remission. I would lovvvve to do that too.
I am reading Synthroid kills the thyroid off faster, so eventually I will have a dead thyroid? I went for blood today so hoping for some answers soon. I need to look into paleo, I know some people that follow it, but I know they all eat meat.
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| Posted 8/19/14 2:17 PM |
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LiveItUp
Love my babies!
Member since 8/11 4096 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by Leb
Posted by Denise
I would also check out the paleo diet for thyroid disorders. There is a book called practical paleo and they have regimens in it for all types of disorders. I follow that diet mostly and am symptom free.
That's awesome! I've been doing some reading and it seems some people have put theirs into a state of unmedicated remission. I would lovvvve to do that too.
I am reading Synthroid kills the thyroid off faster, so eventually I will have a dead thyroid? I went for blood today so hoping for some answers soon. I need to look into paleo, I know some people that follow it, but I know they all eat meat.
 I was just diagnosed a few months ago and I've been taking the lowest dose of synthyroid. That's so scary if its true that it kills the thyroid faster!
So far my doctor still hasn't found the right dosage for me and I've had to get my blood checked every month so far. Overall I've felt better with the medicine, I would say. Except for the first month bc my dose was too high and that made me feel worse than I did without the medication. Before I was diagnosed though I would have insomnia and anxiety at night like you described. My heart would always be racing, and I knew that couldn't be normal but I had no idea that there could be an actual medical reason causing it. Since I've been on the medication I've been sleeping better. But now I feel I must do more research into it. I definitely don't want to take anything that will end up killing my thyroid! Then what?
I will look into paleo also. That sounds interesting.
Thank you for starting this thread. I've learned a lot from it. I hope you feel better soon.
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| Posted 8/19/14 3:07 PM |
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