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Maven
LIF Infant
Member since 8/12 170 total posts
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Re: Do you have hashimotos? Pls don't move
I'm a member of a FB group for essential oils. Someone literally just posted about how they have hashimotos and how this one oil helped to lower and stabilize her antibodies. I can check for the name later if you want?
I hope you feel better. 
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Posted 8/19/14 4:01 PM  |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
Posted by Maven
I'm a member of a FB group for essential oils. Someone literally just posted about how they have hashimotos and how this one oil helped to lower and stabilize her antibodies. I can check for the name later if you want?
I hope you feel better.
So funny you mention this. My friends friend sells them too. Last night my friend and I were talking abt this and we found an "oil" but it's actually a pill with bouvine thyroid and I was like um I need my blood results and dr discussions before I self medicate like that. If it was an oil I would use no prob.
But YES please I would love the oil!
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| Posted 8/19/14 7:00 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: Do you have hashimotos? Pls don't move
I am sorry you got diagnosed too. Definitely do as much research as possible. I wish I did sooner.
Keep in mind you have an autoimmune disease that is attacking your thyroid bc it sees it as a foreigner. So the thought process is to treat/stabilize the autoimmune disease and in turn it will lay off the thyroid. A lot of doctors treat the thyroid only. I know for all autoimmune diseases going gluten free is recommended bc wheat inflames the body, and wheat that we eat is sooo processed and not like wheat from the 1800s.
Definitely it's trial and error with everyone. What works for one may not for another. Good luck.
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| Posted 8/19/14 7:03 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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UPDATE - Do you have hashimotos? Pls don't move
Bump for update in first post.
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| Posted 8/20/14 11:12 AM |
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UPDATE - Do you have hashimotos? Pls don't move
Hashimotos can come and go. That's how it was explained to me
Did you have your vitamin D checked ?
And I late to the game but you're on thyroid meds? Maybe if you go off of them you will feel better? I felt better getting off synthroid
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| Posted 8/20/14 12:37 PM |
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UPDATE - Do you have hashimotos? Pls don't move
And if you need a new endo. I have the best guy. He doesn't let things go and stays on top of things. He's called me at nights to discuss stuff. He's wonderful.
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| Posted 8/20/14 12:40 PM |
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UPDATE - Do you have hashimotos? Pls don't move
And sorry can't edit my post - but wanted to add I'm sorry. I've been thru hell and back with my thyroid. I only have half of it now. It's such an annoying organ when it's not working properly and even when it is, and you feel like shit and the numbers look good. It's a mysterious organ in that sense. I do believe in treating the symptoms not the numbers.
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| Posted 8/20/14 12:42 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: UPDATE - Do you have hashimotos? Pls don't move
Posted by EatingMyVeggies
Hashimotos can come and go. That's how it was explained to me
Did you have your vitamin D checked ?
And I late to the game but you're on thyroid meds? Maybe if you go off of them you will feel better? I felt better getting off synthroid
Yes 50mg of Synthroid.
I am trying to get a full blood work panel done. But dr has to see me first and doesn't have an appt till late oct. So I said screw it. My gp will give me script. So annoying.
Vitamin D was checked a few years ago and was a 19. I take 1k a day. I feel leary abt vit d. It's a hormone and I worry in a few years it'll be an issues for some people who take too much. So I don't want to go crazy w it until I know my levels.
And I am starting to think I want to go off Synthroid! Please don't anyone think I would take myself off. But under dr supervision I would like that to be my goal.
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| Posted 8/20/14 1:02 PM |
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maymama
my little loves
Member since 8/08 18453 total posts
Name:
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Re: UPDATE - Do you have hashimotos? Pls don't move
your TSH is actually perfect... do you have nodules? Have you had a sonogram?
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| Posted 8/20/14 1:03 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: UPDATE - Do you have hashimotos? Pls don't move
Posted by EatingMyVeggies
And if you need a new endo. I have the best guy. He doesn't let things go and stays on top of things. He's called me at nights to discuss stuff. He's wonderful.
Yes I'd like to know who your guy is! I blow through endos like it's my job bc I hate the approach and the relaxed attitude they take towards a disease that's making me feel like my heart is abt to stop and I am dying!
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| Posted 8/20/14 1:04 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: UPDATE - Do you have hashimotos? Pls don't move
Posted by maymama
your TSH is actually perfect... do you have nodules? Have you had a sonogram?
Yes several Sonos. First nodal grew during pregnancy and as of may 8 other tiny ones! All too small to biopsy and the sono tech, nurse, and doctors all act like they're paper cuts!
Sometimes I get a feeling in my throat like it's constricting and fear they're growing. One endo said she could feel one and my new endo says he can't feel.
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| Posted 8/20/14 1:05 PM |
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UPDATE - Do you have hashimotos? Pls don't move
The anti thyroid antibodies test will take a little longer to come back than the other thyroid tests. ( tsh, t3, t4,etc.). The blood must be frozen by them and sent separately. The results will take a little longer to come back. Also, the thyroid antibodies number could change from one test to another. Unfortunately for me, my anti thyroid antibodies were always over 1000 when normal levels are usually under 35. Your tsh is great. Good luck with everything.
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| Posted 8/20/14 1:33 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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UPDATE TWO - Do you have hashimotos? Pls don't move
Bump for second update. Does anyone have insight to these numbers?
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| Posted 8/22/14 9:35 AM |
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Denise
LIF Adolescent
Member since 12/09 572 total posts
Name:
Denise
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UPDATE TWO - Do you have hashimotos? Pls don't move
So my numbers were off as well. The thing i found is that the drs dont jump to treating when your tsh is normal. Sometimes thats good bc once you go on meds you dont come off. Try the diet apptoach. You will undoubtedly see a difference and its better than having to go on meds
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| Posted 8/22/14 8:09 PM |
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Leb
LIF Adult
Member since 12/09 4166 total posts
Name:
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Re: UPDATE TWO - Do you have hashimotos? Pls don't move
Posted by Denise
So my numbers were off as well. The thing i found is that the drs dont jump to treating when your tsh is normal. Sometimes thats good bc once you go on meds you dont come off. Try the diet apptoach. You will undoubtedly see a difference and its better than having to go on meds
I am already on Synthroid. For 3 years now. I have gone gluten free for over a month and stil feel bad! What else do I do?
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| Posted 8/22/14 9:12 PM |
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jgl
Love my little boys!!!
Member since 8/07 7060 total posts
Name:
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Re: UPDATE TWO - Do you have hashimotos? Pls don't move
Check our fb group thyroid sexy always posting about people In situations like this
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| Posted 8/22/14 9:27 PM |
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Seawolf
LIF Adult
Member since 3/14 1336 total posts
Name:
Scrumba
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Re: UPDATE TWO - Do you have hashimotos? Pls don't move
I don't have this but I read a blog that talks quite a bit about it. Maybe it'd be helpful!Blog
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| Posted 8/23/14 12:31 AM |
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I was just diagnosed a few months ago and I've been taking the lowest dose of synthyroid. That's so scary if its true that it kills the thyroid faster! 
