UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

OK, ladies, i need all the good writers, Liza, Barb, Leslie..EVERYONE who posts and wants to help out..

Sophias family and friends have been tirelessly fundraising, to make the money to fund this trial that CAN save her life!! Our best bet is to go public with whats going on with her, and get as much help as we can..as ive said before, the more people who know, the more who can donate, the better chance baby Sophia has in finding a cure to save her!!
www.oprah.com has a section on the left side of her webpage called "BE ON THE SHOW"..when you click on it, there will be boxes with all the different topics theyre looking to fill up..the first box called "HOT TOPICS" has a section called, "make someones dream come true"

its my request that ALL OF YOU who can, PLEASE go to this site, and write to them, let them know we want to help Catherine and Vincents dream for their baby to be saved come true, that we want their show to cover the Gaynor familys story, and that we need their help to help them reach their financial goal in funding this program for beautiful lil Sophia..

your essay has to be LESS THAN 2000 characters, which makes it VERY difficult to get the point across, but i worked on an essay last nite at 2am lol and it can be done..
what i hope will happen, is that this website will be SO bombarded with emails from mothers (and whoever ELSE you email and ask to do this for us, friends, family, anyone in your email address book) that they will HAVE to put it on the show..if we annoy them enough they will NOT ignore this family, and this disease ANY LONGER..

please everyone, help this baby to change things in this country..help this baby have the chance that all of OUR children are BLESSED enough to have..
the fact that there IS a possible cure, and we are SO behind in getting her treated because of stupid politics, KILLS ME..i know we can help save her..

if you can write your own powerful essay under 2000 characters, THANK YOU..if you are having a hard time, please FM me, and i will FWD you what i wrote, and you can copy and paste it and put your own name and address for contact info..
i know we can help them ladies!! I really believe in this, and really have faith that lil Sophia will NOT be a negative statistic of this terrible disease..

IF YOUVE GOTTEN THIS FAR,
thank you thank you thank you!!!

Message edited 5/20/2009 10:16:36 PM.

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

I plan to do it. I would love for Oprah to bring some media attention to this disease.

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

thank you!!


by the way: ive checked with the family, and they are OK with this..and are thankful for any help!!

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

I will definitely do it!

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

I will def do this as well. Can you FM me a copy of your essay or really just the details about what exactly the trial is called and such. The more specific I can be, I would think the better and I don't have the technical language to describe the disease and what she needs.

Actually you should include those specifics in your original post as well for the other moms too

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Posted by Little-J-Mommy

Actually you should include those specifics in your original post as well for the other moms too

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Posted by gpsyeyes

Posted by Little-J-Mommy

Actually you should include those specifics in your original post as well for the other moms too

Yes, please - I don't know what I would be writing about, but I would like to help. Thanks.

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Im in!

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Same here. We'll need info - last name, town, etc.

Thanks!

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

I am game..just FM me the details!

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Hey can you FM me details too, so I can get something written....

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Please FM me the details as well. Thanks.

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

I will be writing to them tonight

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

If u FM me the essay- I will definitely do it!

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Posted by Little-J-Mommy

I will def do this as well. Can you FM me a copy of your essay or really just the details about what exactly the trial is called and such. The more specific I can be, I would think the better and I don't have the technical language to describe the disease and what she needs.

Actually you should include those specifics in your original post as well for the other moms too

Message edited 5/21/2009 9:13:39 AM.

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Posted by mooshyboo

Posted by Little-J-Mommy

I will def do this as well. Can you FM me a copy of your essay or really just the details about what exactly the trial is called and such. The more specific I can be, I would think the better and I don't have the technical language to describe the disease and what she needs.

Actually you should include those specifics in your original post as well for the other moms too

I will do it ~ Can you FM me the details Thanks a bunch!!!

How are you doing with food for them? If you need anything FM me!!!

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

Done

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

can youplease ppst more detail so I can accurately write something,.

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

My husband's co-workers son also has SMA, so we would be happy to write on behalf of both babies.

If there is any further info you could send so I can include it in the letter, please FM me. Thanks!

Re: OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

i am going to do everything that i possible can....

i recently published a post on my blog about her.....

http://summerlynphotography.blogspot.com/

and i am putting my work aside tonite and writint to oprah, hoping maybe she will be touched by these pictures and help out.......

UPDATE Re: OK everyone Secretbabymaker, her DH and Baby Sophia need our help!!!!!

ok ladies, im sorry, ive had a hectic nite with my ds and his broken collar bone and all..

her website is www.sophiascure.com

if you go to that site you will see EXACTLY the info i used in my essay, i just had to remember to break it down into less then 2000 letters (including punctuation and all)

this was my essay..im not the BEST of writers, so i did what i could, hopefully you all will either use mine, OR create your own based on it..
thank you SOOOO much!!
(please use the website in your essay, as it will get attention as well)

Vincent and Catherine Gaynor were trying for awhile to have a baby. After alot of trying, and an unfortunate miscarriage, their dreams finally came true when in Feb.Sophia was born A few wks after she was born Vincent started asking the Dr. why Sophia wasnt moving around as much as he thought she should be and after a few weeks and a grueling wait for some test results the prognosis for baby Sophia was very grim There are no words to describe the feeling of helplessness they felt. The child that they have waited their whole lives for could be taken from them in six months to 2 years.
Spinal Muscular Atrophy (SMA) affects 1 in 6000 babies There is currently no cure available in this country right now Slowly their babys body will begin to fail her Eventually within the first 6 months she will lose her ability to swallow and she will also lose her ability to breath on her own The devastation this family has faced cannot possibly be put into words.
We have been fundraising since the news has arrived to this family with the hope we have in an upcoming clinical trial in California where they are planning to inject motor neurons into the spines of these children to replace the neurons that are dying off although we are making progress the country needs to know Sophia This little girl can change the world if we get her to the trial We know that with the help of God, and all of the friends and family they have supporting them that we will be brought to a way of help for Sophia.
This is Sophias only chance Please help us save their daughter. if you could help me make this familys dream become a reality by covering their story on your show allowing the world to view their website where donation info is available (WWW.SOPHIASCURE.COM) The more people we reach the more chance for life this beautiful lil baby has to live We are fighting time and we may not have much left
Thank you


eta: i just read through this, and noticed it looks so odd without all the periods and commas in the right place..the website actually takes alot of them out, and i went back quickly to add them in so you all could read it, but was rushed..be careful how you format your essay..i used as little periods commas and anything else i could just to make sure i had enough room for actual words lol

Message edited 5/20/2009 10:23:09 PM.

Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

FM me the details as well and I would love to write!!!

Jaime you are such a WONDERFUL and caring person!

Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

I am writing tonight as well.... I just hope it can make a difference.. Diana.. sorry about not being able to cook this week.. I will have something for you on friday if you still need it!! I truly am moved by how willing everyone on this board is to help each other out.. it truly does show the true kindness in people we sometimes forget exists....

Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!

thank you for everyones help!!
and BTW, Summer..ive never seen some of those pics..they are GORGEOUS and im so glad you are able to get her again :)