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lkrpaul
Becoming a Big Brother!
Member since 5/07 2541 total posts
Name:
Laura
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Posted by dm24angel
Hey can you FM me details too, so I can get something written....
Same here. I don't know the story but I'll gladly write in!
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Posted 5/20/09 10:32 PM  |
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Long Island Weddings
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MaMaTeenie
Party of 5
Member since 4/08 6489 total posts
Name:
Mommy
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Posted by Little-J-Mommy
I will def do this as well. Can you FM me a copy of your essay or really just the details about what exactly the trial is called and such. The more specific I can be, I would think the better and I don't have the technical language to describe the disease and what she needs.
Actually you should include those specifics in your original post as well for the other moms too
Me too. I am a really powerful letter writer but don't know enough details. If you will fm me your letter I can write my own or just use yours....either way, but I want to help anyway I can. Let's get some mom power going here.
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| Posted 5/20/09 10:33 PM |
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MommyAgain
lovemygermies
Member since 6/08 3195 total posts
Name:
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Posted by MaMaTeenie
Posted by Little-J-Mommy
I will def do this as well. Can you FM me a copy of your essay or really just the details about what exactly the trial is called and such. The more specific I can be, I would think the better and I don't have the technical language to describe the disease and what she needs.
Actually you should include those specifics in your original post as well for the other moms too
Me too. I am a really powerful letter writer but don't know enough details. If you will fm me your letter I can write my own or just use yours....either way, but I want to help anyway I can. Let's get some mom power going here.
hey, thank you for your support..read up a few posts, i added the essay in one of my last posts on page 1
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| Posted 5/20/09 10:35 PM |
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karacg
Babygirl is 4!
Member since 5/05 17076 total posts
Name:
Kara®
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
DONE....
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| Posted 5/20/09 10:43 PM |
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MaMaTeenie
Party of 5
Member since 4/08 6489 total posts
Name:
Mommy
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Posted by MommyAgain
Posted by MaMaTeenie
Posted by Little-J-Mommy
I will def do this as well. Can you FM me a copy of your essay or really just the details about what exactly the trial is called and such. The more specific I can be, I would think the better and I don't have the technical language to describe the disease and what she needs.
Actually you should include those specifics in your original post as well for the other moms too
Me too. I am a really powerful letter writer but don't know enough details. If you will fm me your letter I can write my own or just use yours....either way, but I want to help anyway I can. Let's get some mom power going here.
hey, thank you for your support..read up a few posts, i added the essay in one of my last posts on page 1
Yes, I'm sorry. I saw that after I replied. Great letter and great job getting this out there. LIF can make a difference and I know I will be sending an e-mail out to my entire address book and posting it on FB too.
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| Posted 5/20/09 11:02 PM |
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Palebride
I am an amazing bakist
Member since 5/05 13673 total posts
Name:
Lori
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
After a few attempts at getting it under 2000 words, here is my submission:
In February 2009, after a miscarriage and years of trying, Catherine Gaynor and her husband Vincent finally saw their dreams come true when their angel Sophia was born. Shortly after her birth, they contacted their pediatrician when they noticed Sophia wasn't moving around as much as they thought she should be. After a few grueling weeks, the prognosis came in; Baby Sophia was diagnosed with Spinal Muscular Atrophy (SMA). People born with SMA usually survive anywhere from six months to two years.
SMA affects 1 in 6000 babies, and is caused by improperly functioning neurons. Babies with SMA first lose the ability to swallow, and then the ability to breathe. Their little bodies simply cannot survive, and they lose the fight. There is currently no cure available in this country.
They are devastated. This is the reason I am writing to you. This wonderful couple struggled for so long to bring a child into this world, only to have her possibly stolen from them in a few short few months.
There is an upcoming clinical trial in California where they will be injecting motor neurons into the spines of children suffering from SMA to replace the neurons that are dying off. Catherine and Vincent cannot afford to get Sophia to the trial, which could possibly save her life.
The family has set up a website to help save their daughter, www.sophiascure.com. By putting their story on the Oprah show, millions of people would see it and possibly help. Millions of people would be made aware of this rare condition that claims the lives of innocent people. And Vincent and Catherine could see their little miracle girl grow up.
This is Sophia's only chance. Please help save her.
Thank you.
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| Posted 5/20/09 11:05 PM |
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MommyAgain
lovemygermies
Member since 6/08 3195 total posts
Name:
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
thank you so much PaleBride..
thank you thank you thank you!!
i just want to clarify something in case anyone else writes in using your submission now,,
they need the TRIAL funded..meaning..the dr that has the answer to this problem, needs help in funding his own program because the govt hasnt stepped in to do so..
thats why all of these families of SMA are raising money..
thank you all, im so impressed with the huge response on here!!
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| Posted 5/20/09 11:13 PM |
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an9elic
♥ HJ ♥
Member since 6/07 3331 total posts
Name:
kristen
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
I did it too! I really hope they get Sophia's family on the show. 
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| Posted 5/20/09 11:17 PM |
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LSP2005
Bunny kisses are so cute!
Member since 5/05 19457 total posts
Name:
L
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
I did it but put it under ask Dr. Oz b/c I could not find a make someone's dream come true section.
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| Posted 5/20/09 11:18 PM |
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dandj
Love of my life....
Member since 5/05 3687 total posts
Name:
Denise
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
I sent it in last night!
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| Posted 5/21/09 7:46 AM |
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pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
done 
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| Posted 5/21/09 8:25 AM |
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MommyAgain
lovemygermies
Member since 6/08 3195 total posts
Name:
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
all of you ladies are amazing!! Keep the entries coming!! If we annoy the hell out of them they will HAVE to notice the urgency and contact SOMEONE about this!!
keep up the donations, and spreading the word!! every single dollar helps..every one!!
i had an idea for a LIF garage sale weekend..thinking that maybe we could donate some/all (whatever youre comfortable with) of the proceeds to Sophias cause..
ideas??
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| Posted 5/21/09 8:32 AM |
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krashnburn
I am Batman!
Member since 5/05 4093 total posts
Name:
I'm Batman, I tell you!
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Done!
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| Posted 5/21/09 9:50 AM |
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My4GirlsMyLife
My 4 girlies
Member since 2/08 9702 total posts
Name:
Valerie
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Done
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| Posted 5/21/09 10:07 AM |
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JennasMom
?**?
Member since 11/05 3463 total posts
Name:
does it matter
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Done!!
This is the link I used
Oprah
Let's make the producers sit up and take notice
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| Posted 5/21/09 10:24 AM |
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TwoGirls4Me
Treasure what you have
Member since 5/05 1839 total posts
Name:
Marie
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
done!
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| Posted 5/21/09 10:35 AM |
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CellarDweller
LIF Adult
Member since 11/05 1562 total posts
Name:
Jennifer
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Posted by MommyAgain
all of you ladies are amazing!! Keep the entries coming!! If we annoy the hell out of them they will HAVE to notice the urgency and contact SOMEONE about this!!
keep up the donations, and spreading the word!! every single dollar helps..every one!!
i had an idea for a LIF garage sale weekend..thinking that maybe we could donate some/all (whatever youre comfortable with) of the proceeds to Sophias cause..
ideas??
I submitted the suggetion to Oprah.
I think the garage sale is a great idea! Would you want to do a group one or separate ones where the proceeds are donated?
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| Posted 5/21/09 10:55 AM |
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mirla122
Hot! Hot! Hot!
Member since 1/06 1732 total posts
Name:
Mirla
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
i wrote in.
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| Posted 5/21/09 11:33 AM |
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luvsun27
Check out my cool glasses
Member since 5/05 8135 total posts
Name:
Kim
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
done
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| Posted 5/21/09 11:33 AM |
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CookiePuss
Cake from Outer Space!
Member since 5/05 14021 total posts
Name:
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Posted by MommyAgain
all of you ladies are amazing!! Keep the entries coming!! If we annoy the hell out of them they will HAVE to notice the urgency and contact SOMEONE about this!!
keep up the donations, and spreading the word!! every single dollar helps..every one!!
i had an idea for a LIF garage sale weekend..thinking that maybe we could donate some/all (whatever youre comfortable with) of the proceeds to Sophias cause..
ideas??
I just posted this same idea prior to reading this.
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| Posted 5/21/09 12:05 PM |
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JChia
Mom of 2 Princesses
Member since 9/07 2540 total posts
Name:
Jen
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
done!
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| Posted 5/21/09 12:07 PM |
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DancinBarefoot
06ers Rock!!
Member since 1/07 9534 total posts
Name:
The One My Mother Gave Me ;-)
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Here is my submission:
Imagine, you and your husband struggle for years to have a child. You suffer a miscarriage, and then somehow your dreams come true and you conceive another child. She is brought to term and enters this world. You as her mother are thrilled and excited about your beautiful baby girl. You name her Sophia. Unfortunately as the weeks go by Sophia doesn’t develop like other babies. She doesn’t lift
her head, or move her arms and legs. Then you are given devastating news. Your baby has a condition that will take her from you by the time she is 2. Spinal Muscular Atrophy (SMA) is the diagnosis. As her muscles breakdown your precious baby girl will be unable to swallow or breathe on her own. You do the research and find out that currently there is no cure. Your hopes are raised when you hear about an upcoming clinical trial in California where scientists plan to inject motor neurons into infants with SMA to replace the ones that are dying off, in the hopes that this will give your child a chance to live. Unfortunately, you live in New York, and you can’t fly to California because the atmospheric pressures could collapse the baby’s fragile lungs and she could die in flight. Then you learn that the funding to get the trial launched isn’t secured.
This is the horror that Catherine Gaynor is now living. Together with her husband Vincent, they are desperately trying to raise money to fund what could be the cure for their precious daughter Sophia. You Oprah can help the Gaynors and all the other families living with SMA. After their dream came
true and they were granted life’s greatest miracle - the gift of a child, SMA threatens to destroy it.
Please bring national attention to this devastating disease and help sophiascure.com become reality and
not just a website.
Message edited 5/21/2009 12:12:42 PM.
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| Posted 5/21/09 12:10 PM |
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MommyAgain
lovemygermies
Member since 6/08 3195 total posts
Name:
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Posted by DancinBarefoot
Here is my submission:
Imagine, you and your husband struggle for years to have a child. You suffer a miscarriage, and then somehow your dreams come true and you conceive another child. She is brought to term and enters this world. You as her mother are thrilled and excited about your beautiful baby girl. You name her Sophia. Unfortunately as the weeks go by Sophia doesn’t develop like other babies. She doesn’t lift
her head, or move her arms and legs. Then you are given devastating news. Your baby has a condition that will take her from you by the time she is 2. Spinal Muscular Atrophy (SMA) is the diagnosis. As her muscles breakdown your precious baby girl will be unable to swallow or breathe on her own. You do the research and find out that currently there is no cure. Your hopes are raised when you hear about an upcoming clinical trial in California where scientists plan to inject motor neurons into infants with SMA to replace the ones that are dying off, in the hopes that this will give your child a chance to live. Unfortunately, you live in New York, and you can’t fly to California because the atmospheric pressures could collapse the baby’s fragile lungs and she could die in flight. Then you learn that the funding to get the trial launched isn’t secured.
This is the horror that Catherine Gaynor is now living. Together with her husband Vincent, they are desperately trying to raise money to fund what could be the cure for their precious daughter Sophia. You Oprah can help the Gaynors and all the other families living with SMA. After their dream came
true and they were granted life’s greatest miracle - the gift of a child, SMA threatens to destroy it.
Please bring national attention to this devastating disease and help sophiascure.com become reality and
not just a website.
THIS IS SERIOUSLY AMAZING!!!!!!!!
THANK YOU sooooooooooo much!!!
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| Posted 5/21/09 3:11 PM |
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staceyd
LIF Adult
Member since 8/08 2052 total posts
Name:
stacey
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Posted by MommyAgain
Posted by DancinBarefoot
Here is my submission:
Imagine, you and your husband struggle for years to have a child. You suffer a miscarriage, and then somehow your dreams come true and you conceive another child. She is brought to term and enters this world. You as her mother are thrilled and excited about your beautiful baby girl. You name her Sophia. Unfortunately as the weeks go by Sophia doesn’t develop like other babies. She doesn’t lift
her head, or move her arms and legs. Then you are given devastating news. Your baby has a condition that will take her from you by the time she is 2. Spinal Muscular Atrophy (SMA) is the diagnosis. As her muscles breakdown your precious baby girl will be unable to swallow or breathe on her own. You do the research and find out that currently there is no cure. Your hopes are raised when you hear about an upcoming clinical trial in California where scientists plan to inject motor neurons into infants with SMA to replace the ones that are dying off, in the hopes that this will give your child a chance to live. Unfortunately, you live in New York, and you can’t fly to California because the atmospheric pressures could collapse the baby’s fragile lungs and she could die in flight. Then you learn that the funding to get the trial launched isn’t secured.
This is the horror that Catherine Gaynor is now living. Together with her husband Vincent, they are desperately trying to raise money to fund what could be the cure for their precious daughter Sophia. You Oprah can help the Gaynors and all the other families living with SMA. After their dream came
true and they were granted life’s greatest miracle - the gift of a child, SMA threatens to destroy it.
Please bring national attention to this devastating disease and help sophiascure.com become reality and
not just a website.
THIS IS SERIOUSLY AMAZING!!!!!!!!
THANK YOU sooooooooooo much!!!
Wow... I thought my letter was touching.. this one is amazing... if they do not contact someone about this, then I have lost faith in Oprah...
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| Posted 5/21/09 3:15 PM |
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EmmaNick
*
Member since 12/06 16001 total posts
Name:
*
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Re: UPDATE!!!OK everyone, Secretbabymaker, her DH and Baby Sophia need our help!!!!!
Posted by MommyAgain
all of you ladies are amazing!! Keep the entries coming!! If we annoy the hell out of them they will HAVE to notice the urgency and contact SOMEONE about this!!
keep up the donations, and spreading the word!! every single dollar helps..every one!!
i had an idea for a LIF garage sale weekend..thinking that maybe we could donate some/all (whatever youre comfortable with) of the proceeds to Sophias cause..
ideas??
What about a chinese auction? Those usually rake in some cash. Everyone can donate stuff for the baskets, I'm sure local businesses would also contribute.
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| Posted 5/21/09 3:18 PM |
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