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nywebchic
LIF Infant
Member since 8/05 262 total posts
Name:
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Turner's Syndrome
Anyone ever heard of Turner's syndrome ?
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Posted 11/22/05 10:44 PM  |
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MrsJ
I love my Katie Bug
Member since 5/05 11357 total posts
Name:
Kathy
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Re: Turner's Syndrome
I know a little about it. I know only girls can get it and its not necssarily fatal. Ive done a little reading about it. If you search Google you can find a lot of info.
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| Posted 11/22/05 10:50 PM |
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julz33
i run for bacon
Member since 5/05 20584 total posts
Name:
julz
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Re: Turner's Syndrome
I have a family member with Turners Syndrome. She is 40 something years old and living and normal life. FM me if you have any questions.
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| Posted 11/22/05 11:32 PM |
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btrflygrl
me and baby #3!
Member since 5/05 12013 total posts
Name:
Shana
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Re: Turner's Syndrome
FeliciaDP (she miscarried awhile back) her baby girl had it after they did testing.
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| Posted 11/23/05 8:35 AM |
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paulandles912
My children are a blessing!
Member since 5/05 2598 total posts
Name:
Leslie
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Re: Turner's Syndrome
My niece Paige has it. She is 2.
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| Posted 11/23/05 10:33 AM |
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FeliciaDP
♥
Member since 5/05 18599 total posts
Name:
Mommy
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Re: Turner's Syndrome
As Shana said, I miscarried in September at 13 weeks .. after the fact, I discovered that the baby girl I was carrying did have Turner's Syndrome.
It has been stressed to me by my doctors that the fact that she had Turners was NOT at all the reason I miscarried.. that part will never be explained. Turners' is not fatal and many girls/women go on to lead very happy and fulfilling lives... the severity of the syndrome is different amongst those girls/women who have it
I did a bit of research about the syndrome when I learned about it, please let me know if you have any questions and I would be happy to try and help
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| Posted 11/23/05 11:09 AM |
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Re: Turner's Syndrome
My sister has this and is 18 years old. FM me for more info.
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| Posted 11/23/05 4:38 PM |
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Corinne
My munchkins
Member since 5/05 5010 total posts
Name:
corinne
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Re: Turner's Syndrome
what is it?
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| Posted 11/23/05 11:05 PM |
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HarleyGirlFLA
Come on in
Member since 5/05 9674 total posts
Name:
Mel
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Re: Turner's Syndrome
Posted by Corinne
what is it?
Turner syndrome is a chromosomal condition that exclusively affects girls and women. It occurs when one of the two X chromosomes normally found in females is missing or incomplete. The syndrome is named after Dr. Henry Turner, who was among the first to describe its features in the 1930's.
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| Posted 11/24/05 12:09 AM |
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Melbernai
I am a lucky Momma!
Member since 7/05 15652 total posts
Name:
Melissa
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Re: Turner's Syndrome
What happens to you when you have it?
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| Posted 11/24/05 12:24 PM |
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HarleyGirlFLA
Come on in
Member since 5/05 9674 total posts
Name:
Mel
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Re: Turner's Syndrome
Posted by Melbernai
What happens to you when you have it?
What can be done ?
As a chromosomal condition, there is no "cure" for Turner's syndrome as antibiotics can cure a strep throat. However much can be done; growth hormone, either alone or with a weak androgen, will improve growth velocity and probably final adult height. Estrogen replacement therapy has been used since the condition was described in 1938 to promote development of secondary sexual characteristics. They are also important for maintaining good tissue and bone integrity. Modern reproductive technologies have also been used to help women with Turner's syndrome become pregnant should they so desire.
What is the life expectancy of a woman with Turner syndrome?
There is not much information on this question. However, all things being equal, there is no reason why a woman with Turner's syndrome should not lead a full, productive life. It is important though, to have competent medical care regularly.
Are Turner's syndrome women mentally retarded ?
NO !! There is no connection between Turner's syndrome and mental retardation. There may be some differences in learning style that make math or spatial problems a bit more difficult. However with determination and patience these problems can usually be surmounted or compensated for. As with anything else, positive reinforcement and encouragement enable Turner's syndrome women to lead productive, successful lives in the career path of their choice.
Will my daughter have feeding problems during the first year or two?
Possibly. Research has shown that feeding problems can occur and some children experience "failure to thrive." Some babies with Turner's have a high pallette in the mouth, making it difficult to develop the proper sucking technique. Sometimes a bottle with a special nipple can help. Projectile vomiting can be a problem. (Reference a book called "Turner's Across the Lifespan" published after the third International Turner's Syndrome Conference)
What types of jobs can my daughter do?
This is as individual as each person. Most women with Turner's can be successful at any job which interests them and for which they have trained! Women with Turner's have jobs as varied as any other group of people. As examples, women with Turner's have become social workers, lawyers, secretaries and accountants.
What about driving?
Some Turner's women do have slight difficulty with spatial relationships which may make it more challenging to learn to drive. Practice and a patient "teacher" are the best helps. Make sure that the new driver can adjust the seat and mirrors to a comfortable position.
Is short stature an issue?
Short stature can be an issue which leads to low self-esteem for women with Turner's. This may be most common during the teen age years, especially if teasing is encountered. Awareness of this issue and appropriate parental support/encouragement can help in developing self-confidence and an ability to cope with any teasing.
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| Posted 11/24/05 2:38 PM |
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