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SPECIALNEEDSMOMMY
A Healing for Gregory
Member since 1/07 1217 total posts
Name:
Barbara
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A Question for Parents of Disabled Children
This may be a long shot, but if you have a disabled child who is past the point of fitting in a standard store bought stroller, how do you transport them? Have you purchased a Convaid (disability stroller) or a push chair? We are finally at this point for my son, and I'm not sure which way to turn. The costs are astronomical and I want to make the right decision. Since you can't look at these things in the stores (only online), it's really hard to tell what is what and what is worth the thousands they want for them.
Any advice at all would help. Thanks so much!
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Posted 2/18/08 10:58 PM  |
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avamamma
My Girl
Member since 7/06 3395 total posts
Name:
Tara
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Re: A Question for Parents of Disabled Children
I don't have any info for you, but is there a way that your medical insurance would cover the cost??
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| Posted 2/18/08 11:03 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: A Question for Parents of Disabled Children
I am a social worker at United Cerebral Palsy. We usually have the person come in for a chair evaluation. Where does he/she attend school? Can they send out a recommendation for a chair eval? I wonder if our clinic does outside referrals. I can ask tommorrow if you need more info. I would not buy one without your child getting evaluated.
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| Posted 2/18/08 11:05 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: A Question for Parents of Disabled Children
Also, wanted to add...most of our guys have medicaid. Do you have private ins or medicaid?
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| Posted 2/18/08 11:06 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: A Question for Parents of Disabled Children
Posted by PrincessP
I am a social worker at United Cerebral Palsy. We usually have the person come in for a chair evaluation. Where does he/she attend school? Can they send out a recommendation for a chair eval? I wonder if our clinic does outside referrals. I can ask tommorrow if you need more info. I would not buy one without your child getting evaluated.
My daughter isnt physically handicapped so I was never faced with such a need. (She has Down Syndrome) But she attend EI and Preschool Services through UCP...I was going to suggest giving them a call and seeing if they have any advice..
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| Posted 2/18/08 11:09 PM |
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SPECIALNEEDSMOMMY
A Healing for Gregory
Member since 1/07 1217 total posts
Name:
Barbara
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Re: A Question for Parents of Disabled Children
Posted by PrincessP
I am a social worker at United Cerebral Palsy. We usually have the person come in for a chair evaluation. Where does he/she attend school? Can they send out a recommendation for a chair eval? I wonder if our clinic does outside referrals. I can ask tommorrow if you need more info. I would not buy one without your child getting evaluated.
Hi. I would appreciate any more info you have. No, unfortunately, we do not qualify for Medicaid ... they say we make too much money. Yeah ... right!
We have private medical insurance, but as of today, they are telling me they don't cover this type of item. I'm trying to filter through the medical paperwork tonight to see why this wouldn't qualify as "durable medical equipment." My son is not in school anymore because they couldn't manage his medical needs. We are now homeschooling.
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| Posted 2/18/08 11:10 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: A Question for Parents of Disabled Children
Posted by hbugalla
Posted by PrincessP
I am a social worker at United Cerebral Palsy. We usually have the person come in for a chair evaluation. Where does he/she attend school? Can they send out a recommendation for a chair eval? I wonder if our clinic does outside referrals. I can ask tommorrow if you need more info. I would not buy one without your child getting evaluated.
My daughter isnt physically handicapped so I was never faced with such a need. (She has Down Syndrome) But she attend EI and Preschool Services through UCP...I was going to suggest giving them a call and seeing if they have any advice..
Is she still with UCP?
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| Posted 2/18/08 11:11 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: A Question for Parents of Disabled Children
Posted by SPECIALNEEDSMOMMY
Posted by PrincessP
I am a social worker at United Cerebral Palsy. We usually have the person come in for a chair evaluation. Where does he/she attend school? Can they send out a recommendation for a chair eval? I wonder if our clinic does outside referrals. I can ask tommorrow if you need more info. I would not buy one without your child getting evaluated.
Hi. I would appreciate any more info you have. No, unfortunately, we do not qualify for Medicaid ... they say we make too much money. Yeah ... right!
We have private medical insurance, but as of today, they are telling me they don't cover this type of item. I'm trying to filter through the medical paperwork tonight to see why this wouldn't qualify as "durable medical equipment." My son is not in school anymore because they couldn't manage his medical needs. We are now homeschooling.
How old is your son?
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| Posted 2/18/08 11:12 PM |
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SPECIALNEEDSMOMMY
A Healing for Gregory
Member since 1/07 1217 total posts
Name:
Barbara
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Re: A Question for Parents of Disabled Children
Posted by avamamma
I don't have any info for you, but is there a way that your medical insurance would cover the cost??
The insurance is saying they won't cover it, but I'm not sure they are correct. You just never know when you talk to a random operator. I need to speak to a manager tomorrow and explain the situation in detail.
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| Posted 2/18/08 11:12 PM |
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SPECIALNEEDSMOMMY
A Healing for Gregory
Member since 1/07 1217 total posts
Name:
Barbara
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Re: A Question for Parents of Disabled Children
Posted by PrincessP
Posted by SPECIALNEEDSMOMMY
Posted by PrincessP
I am a social worker at United Cerebral Palsy. We usually have the person come in for a chair evaluation. Where does he/she attend school? Can they send out a recommendation for a chair eval? I wonder if our clinic does outside referrals. I can ask tommorrow if you need more info. I would not buy one without your child getting evaluated.
Hi. I would appreciate any more info you have. No, unfortunately, we do not qualify for Medicaid ... they say we make too much money. Yeah ... right!
We have private medical insurance, but as of today, they are telling me they don't cover this type of item. I'm trying to filter through the medical paperwork tonight to see why this wouldn't qualify as "durable medical equipment." My son is not in school anymore because they couldn't manage his medical needs. We are now homeschooling.
How old is your son?
My son is 7 1/2, but he is very small. He is just barely 40 lbs.
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| Posted 2/18/08 11:13 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: A Question for Parents of Disabled Children
Also, the steps I would take for your ins to have to pay for it is to get your MD to send you to a Phys therapist who is going to make it a necessity. I dont even get how they could consider denying a claim for a wheelchair...its not a luxury item.
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| Posted 2/18/08 11:13 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: A Question for Parents of Disabled Children
Posted by PrincessP
Posted by hbugalla
Posted by PrincessP
I am a social worker at United Cerebral Palsy. We usually have the person come in for a chair evaluation. Where does he/she attend school? Can they send out a recommendation for a chair eval? I wonder if our clinic does outside referrals. I can ask tommorrow if you need more info. I would not buy one without your child getting evaluated.
My daughter isnt physically handicapped so I was never faced with such a need. (She has Down Syndrome) But she attend EI and Preschool Services through UCP...I was going to suggest giving them a call and seeing if they have any advice..
Is she still with UCP?
Ariel graduated from The Childrens Center back in 99!!! She attends Middle School in Smithtown School District...and next year she's off to high school!!!!!
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| Posted 2/18/08 11:15 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: A Question for Parents of Disabled Children
You can Fm me if its personal...I was wondering what his diagnosis is?
I have a sister who is MR so I have been through alot over the yrs and I know about getting what ya need. Now that I am a social worker...I especially know how to get things even quicker.
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| Posted 2/18/08 11:16 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: A Question for Parents of Disabled Children
Posted by hbugalla
Posted by PrincessP
Posted by hbugalla
Posted by PrincessP
I am a social worker at United Cerebral Palsy. We usually have the person come in for a chair evaluation. Where does he/she attend school? Can they send out a recommendation for a chair eval? I wonder if our clinic does outside referrals. I can ask tommorrow if you need more info. I would not buy one without your child getting evaluated.
My daughter isnt physically handicapped so I was never faced with such a need. (She has Down Syndrome) But she attend EI and Preschool Services through UCP...I was going to suggest giving them a call and seeing if they have any advice..
Is she still with UCP?
Ariel graduated from The Childrens Center back in 99!!! She attends Middle School in Smithtown School District...and next year she's off to high school!!!!!
Good to hear! I know the childrens center very well. Thats the route that my sister went. She did BOCES early intervention then Sachem then on to Maryhaven after HS.
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| Posted 2/18/08 11:17 PM |
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SPECIALNEEDSMOMMY
A Healing for Gregory
Member since 1/07 1217 total posts
Name:
Barbara
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Re: A Question for Parents of Disabled Children
Posted by PrincessP
Also, the steps I would take for your ins to have to pay for it is to get your MD to send you to a Phys therapist who is going to make it a necessity. I dont even get how they could consider denying a claim for a wheelchair...its not a luxury item.
We've already done the MD and PT referrals and letters. The problem with the insurance is that this is considered a Convaid Disability PushChair/Stroller. It is geared for a child 30 to 110 lbs, has all kinds of adaptive straps, etc and runs almost $1,700. The glitch is that it is referred to as a "stroller" and that is a big no no with the insurance. It's really a play on words, but the insurance company is making my life miserable. Without this, my son cannot really go anywhere. He can only walk (with assistance) very short distances, and it is soooooooooooooo limiting for both him and our family. This is a very big issue for us.
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| Posted 2/18/08 11:18 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: A Question for Parents of Disabled Children
Posted by SPECIALNEEDSMOMMY
Posted by PrincessP
Also, the steps I would take for your ins to have to pay for it is to get your MD to send you to a Phys therapist who is going to make it a necessity. I dont even get how they could consider denying a claim for a wheelchair...its not a luxury item.
We've already done the MD and PT referrals and letters. The problem with the insurance is that this is considered a Convaid Disability PushChair/Stroller. It is geared for a child 30 to 110 lbs, has all kinds of adaptive straps, etc and runs almost $1,700. The glitch is that it is referred to as a "stroller" and that is a big no no with the insurance. It's really a play on words, but the insurance company is making my life miserable. Without this, my son cannot really go anywhere. He can only walk (with assistance) very short distances, and it is soooooooooooooo limiting for both him and our family. This is a very big issue for us.
What about PHCP??? They changed the name or something but it still might be worth looking into...
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| Posted 2/18/08 11:21 PM |
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SPECIALNEEDSMOMMY
A Healing for Gregory
Member since 1/07 1217 total posts
Name:
Barbara
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Re: A Question for Parents of Disabled Children
Posted by PrincessP
You can Fm me if its personal...I was wondering what his diagnosis is?
I have a sister who is MR so I have been through alot over the yrs and I know about getting what ya need. Now that I am a social worker...I especially know how to get things even quicker.
My son is multiply-disabled. He suffers from a severe seizure disorder, ataxia, apraxia, functional deafness and a number of developmental delays. He walks (very unsteadily) and falls constantly. He cannot be left unattended. He tires extremely fast and can only walk short distances. He also suffers from hyponatremia (low sodium drop) and dehydration ... which are MAJOR issues in the spring and summer months. So ... as you can imagine ... we cannot go anywhere or do anything outdoors without a stroller for him to ride and rest in. Now that he is almost 8 years old and not fitting in the standard store strollers anymore, we are having a problem.
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| Posted 2/18/08 11:23 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: A Question for Parents of Disabled Children
Posted by SPECIALNEEDSMOMMY
Posted by PrincessP
Also, the steps I would take for your ins to have to pay for it is to get your MD to send you to a Phys therapist who is going to make it a necessity. I dont even get how they could consider denying a claim for a wheelchair...its not a luxury item.
We've already done the MD and PT referrals and letters. The problem with the insurance is that this is considered a Convaid Disability PushChair/Stroller. It is geared for a child 30 to 110 lbs, has all kinds of adaptive straps, etc and runs almost $1,700. The glitch is that it is referred to as a "stroller" and that is a big no no with the insurance. It's really a play on words, but the insurance company is making my life miserable. Without this, my son cannot really go anywhere. He can only walk (with assistance) very short distances, and it is soooooooooooooo limiting for both him and our family. This is a very big issue for us.
Let me find out tommorrow if our wheelchair evaluator has any relevant info for you.
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| Posted 2/18/08 11:23 PM |
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4monkeys
boys will be boys =)
Member since 9/05 7205 total posts
Name:
:)
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Re: A Question for Parents of Disabled Children
Posted by PrincessP
I dont even get how they could consider denying a claim for a wheelchair...its not a luxury item.
I agree  It's terrible that they dont cover things like this!
Barbara- I hope we're all wrong, and it IS covered somehow. 
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| Posted 2/18/08 11:24 PM |
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SPECIALNEEDSMOMMY
A Healing for Gregory
Member since 1/07 1217 total posts
Name:
Barbara
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Re: A Question for Parents of Disabled Children
Posted by hbugalla
Posted by SPECIALNEEDSMOMMY
Posted by PrincessP
Also, the steps I would take for your ins to have to pay for it is to get your MD to send you to a Phys therapist who is going to make it a necessity. I dont even get how they could consider denying a claim for a wheelchair...its not a luxury item.
We've already done the MD and PT referrals and letters. The problem with the insurance is that this is considered a Convaid Disability PushChair/Stroller. It is geared for a child 30 to 110 lbs, has all kinds of adaptive straps, etc and runs almost $1,700. The glitch is that it is referred to as a "stroller" and that is a big no no with the insurance. It's really a play on words, but the insurance company is making my life miserable. Without this, my son cannot really go anywhere. He can only walk (with assistance) very short distances, and it is soooooooooooooo limiting for both him and our family. This is a very big issue for us.
What about PHCP??? They changed the name or something but it still might be worth looking into...
We were declined services. Everything is income based and the level for a family of four is ridiculously low. We qualify for nothing!
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| Posted 2/18/08 11:24 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: A Question for Parents of Disabled Children
One last thing...is it about the $ or is it about what needs to be on it and what is the right one for him? BC my thoughts ...even if he was getting just an evaluation and ins didnt pay for it...at least...you would know what you need to get, right? Though I am still talking to my resources about the $ end tomm. I will let ya know.
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| Posted 2/18/08 11:25 PM |
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SPECIALNEEDSMOMMY
A Healing for Gregory
Member since 1/07 1217 total posts
Name:
Barbara
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Re: A Question for Parents of Disabled Children
Posted by PrincessP
Posted by SPECIALNEEDSMOMMY
Posted by PrincessP
Also, the steps I would take for your ins to have to pay for it is to get your MD to send you to a Phys therapist who is going to make it a necessity. I dont even get how they could consider denying a claim for a wheelchair...its not a luxury item.
We've already done the MD and PT referrals and letters. The problem with the insurance is that this is considered a Convaid Disability PushChair/Stroller. It is geared for a child 30 to 110 lbs, has all kinds of adaptive straps, etc and runs almost $1,700. The glitch is that it is referred to as a "stroller" and that is a big no no with the insurance. It's really a play on words, but the insurance company is making my life miserable. Without this, my son cannot really go anywhere. He can only walk (with assistance) very short distances, and it is soooooooooooooo limiting for both him and our family. This is a very big issue for us.
Let me find out tommorrow if our wheelchair evaluator has any relevant info for you.
THANK YOU! Any and all help is appreciated! Feel free to FM me with anything!
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| Posted 2/18/08 11:26 PM |
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SPECIALNEEDSMOMMY
A Healing for Gregory
Member since 1/07 1217 total posts
Name:
Barbara
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Re: A Question for Parents of Disabled Children
Thank you for the support and the hugs!
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| Posted 2/18/08 11:27 PM |
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jellybean78
:)
Member since 8/06 13103 total posts
Name:
Mommy
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Re: A Question for Parents of Disabled Children
Maclaren makes a special needs stroller that seems like your son will fit into.
Here's one on Ebay
Maclaren Mac Major
But I don't think your insurance company can deny you a wheelchair. I would really fight that because IMO that is ridiculous. Insurance companies have gotten out of hand
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| Posted 2/18/08 11:29 PM |
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Re: A Question for Parents of Disabled Children
Posted by SPECIALNEEDSMOMMY
Posted by avamamma
I don't have any info for you, but is there a way that your medical insurance would cover the cost??
The insurance is saying they won't cover it, but I'm not sure they are correct. You just never know when you talk to a random operator. I need to speak to a manager tomorrow and explain the situation in detail.
What about your school district? Is there any way they can pay for it? A long shot, I know...
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| Posted 2/18/08 11:33 PM |
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