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colesmom
Brady's mom too!
Member since 5/05 1989 total posts
Name:
Lea
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Re: I feel like my world is caving in....
Hey Diane ...
I'm going to answer your FM privately, but I'd also like to clear some things up on this post just as a general FYI for now, and for later if it gets searched.
1. PDD can actually be diagnosed in as little as 15 minutes. The test is called the CARS (Childhood Autism Rating Scale) and is basically a parent questionairre. You know him best and you're bringing your concerns to the table. A Psychologist makes the formal diagnosis.
2. PDD is Pervasive Developmental Disorder. It is a mild form of the Autism Spectrum. It IS NOT Autism as you think you know it. Pervasive means that the developmental disorder has reached multiple areas (speech as well as educational ability as well as fine motor or sensory, etc.) The sooner you can start Speech, Special Instruction and Occupational Therapy the better.
3. "Labeling" in Early Intervention (under the age of three) has ABSOLUTELY NOTHING TO DO WITH THE REST OF YOUR CHILD"S EDUCATIONAL CAREER. All records are sealed and purged at the age of 3 if you so choose. The county is involved, not your school district. Denying your child recommended services because you are "afraid of a label" is, in my opinion, grossly negligent.
4. And most importantly, EARLY INTERVENTION WORKS. Really works. Miraculously works. My little boy who had only 10 words 6 months ago, just got tucked in and said "Wow! That was a Great story! Sweet Dreams Mommy." -- (OK, and now I'm crying!) But the point is, EI WORKS.
Diane, you are an exceptional mom. You and Christopher will get through this. It's sometimes impossibly hard, but you'll learn just as much as he will, and you'll witness this little miracle thrive. I'll get you all our contact info ASAP. Hang in there -- it really will be OK.
Message edited 2/28/2008 9:07:44 PM.
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Posted 2/28/08 9:07 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
groovypeg
:)
Member since 5/05 2423 total posts
Name:
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Re: I feel like my world is caving in....
Posted by colesmom
Hey Diane ...
I'm going to answer your FM privately, but I'd also like to clear some things up on this post just as a general FYI for now, and for later if it gets searched.
1. PDD can actually be diagnosed in as little as 15 minutes. The test is called the CARS (Childhood Autism Rating Scale) and is basically a parent questionairre. You know him best and you're bringing your concerns to the table. A Psychologist makes the formal diagnosis.
2. PDD is Pervasive Developmental Disorder. It is a mild form of the Autism Spectrum. It IS NOT Autism as you think you know it. Pervasive means that the developmental disorder has reached multiple areas (speech as well as educational ability as well as fine motor or sensory, etc.) The sooner you can start Speech, Special Instruction and Occupational Therapy the better.
3. "Labeling" in Early Intervention (under the age of three) has ABSOLUTELY NOTHING TO DO WITH THE REST OF YOUR CHILD"S EDUCATIONAL CAREER. All records are sealed and purged at the age of 3 if you so choose. The county is involved, not your school district. Denying your child recommended services because you are "afraid of a label" is, in my opinion, grossly negligent.
4. And most importantly, EARLY INTERVENTION WORKS. Really works. Miraculously works. My little boy who had only 10 words 6 months ago, just got tucked in and said "Wow! That was a Great story! Sweet Dreams Mommy." -- (OK, and now I'm crying!) But the point is, EI WORKS.
Diane, you are an exceptional mom. You and Christopher will get through this. It's sometimes impossibly hard, but you'll learn just as much as he will, and you'll witness this little miracle thrive. I'll get you all our contact info ASAP. Hang in there -- it really will be OK.
i totally agree with the above post, which is very well written and highly informative.
if i can be of any assistance, please let me know. this is a difficult time right now but with knowledge and support you will get through this. there are quite a few of us on this board who are well versed whether it be parent or professional. please dont hesitate to ask questions. 
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| Posted 2/28/08 9:27 PM |
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Tracey
***********
Member since 5/05 6297 total posts
Name:
Tracey - brideinapril
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Re: I feel like my world is caving in....
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| Posted 2/28/08 9:28 PM |
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MelissaMac
Life is Good
Member since 6/06 2135 total posts
Name:
Melissa
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Re: I feel like my world is caving in....
I know you will get through this and it will only make your family stronger.
I also have to say that I really believe in early intervention. Any extra services will only help him. I think you know that
being a Special Ed teacher.
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| Posted 2/28/08 9:29 PM |
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Sassyz75
Turning a new page
Member since 5/05 9731 total posts
Name:
Dina
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Re: I feel like my world is caving in....
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| Posted 2/28/08 9:30 PM |
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emc
The Boys!
Member since 5/05 2065 total posts
Name:
Erin
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Re: I feel like my world is caving in....
Posted by colesmom
Hey Diane ...
I'm going to answer your FM privately, but I'd also like to clear some things up on this post just as a general FYI for now, and for later if it gets searched.
1. PDD can actually be diagnosed in as little as 15 minutes. The test is called the CARS (Childhood Autism Rating Scale) and is basically a parent questionairre. You know him best and you're bringing your concerns to the table. A Psychologist makes the formal diagnosis.
2. PDD is Pervasive Developmental Disorder. It is a mild form of the Autism Spectrum. It IS NOT Autism as you think you know it. Pervasive means that the developmental disorder has reached multiple areas (speech as well as educational ability as well as fine motor or sensory, etc.) The sooner you can start Speech, Special Instruction and Occupational Therapy the better.
3. "Labeling" in Early Intervention (under the age of three) has ABSOLUTELY NOTHING TO DO WITH THE REST OF YOUR CHILD"S EDUCATIONAL CAREER. All records are sealed and purged at the age of 3 if you so choose. The county is involved, not your school district. Denying your child recommended services because you are "afraid of a label" is, in my opinion, grossly negligent.
4. And most importantly, EARLY INTERVENTION WORKS. Really works. Miraculously works. My little boy who had only 10 words 6 months ago, just got tucked in and said "Wow! That was a Great story! Sweet Dreams Mommy." -- (OK, and now I'm crying!) But the point is, EI WORKS.
Diane, you are an exceptional mom. You and Christopher will get through this. It's sometimes impossibly hard, but you'll learn just as much as he will, and you'll witness this little miracle thrive. I'll get you all our contact info ASAP. Hang in there -- it really will be OK.
 As an EI speech pathologist, its nice to hear a success story. Diane after reading your post, I would still recommend a second opinion. You need to feel comfortable with that individual and their assessment of your child, it sounds like you did not walk away satisfied. Suffolk county EI prefers the evaluation to be done by a clinical psychologist (PhD), I know a GREAT one if you FM me. He diagnosed my niece (very cautiously) and now she should be undiagnosed, although there are still delays she is not presenting with the same characteristics as when she was 2, she is almost 4 now.
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| Posted 2/28/08 9:36 PM |
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jellybean78
:)
Member since 8/06 13103 total posts
Name:
Mommy
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Re: I feel like my world is caving in....
I'm sorry you are going through this
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| Posted 2/28/08 9:41 PM |
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rose825
Best Friends
Member since 6/05 10228 total posts
Name:
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Re: I feel like my world is caving in....
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| Posted 2/28/08 9:42 PM |
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lvdolphins
My Loves!
Member since 5/05 46292 total posts
Name:
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Re: I feel like my world is caving in....
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| Posted 2/28/08 9:44 PM |
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bayla
Love my two kiddos :)
Member since 8/06 7178 total posts
Name:
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Re: I feel like my world is caving in....
Posted by colesmom
Hey Diane ...
I'm going to answer your FM privately, but I'd also like to clear some things up on this post just as a general FYI for now, and for later if it gets searched.
1. PDD can actually be diagnosed in as little as 15 minutes. The test is called the CARS (Childhood Autism Rating Scale) and is basically a parent questionairre. You know him best and you're bringing your concerns to the table. A Psychologist makes the formal diagnosis.
2. PDD is Pervasive Developmental Disorder. It is a mild form of the Autism Spectrum. It IS NOT Autism as you think you know it. Pervasive means that the developmental disorder has reached multiple areas (speech as well as educational ability as well as fine motor or sensory, etc.) The sooner you can start Speech, Special Instruction and Occupational Therapy the better.
3. "Labeling" in Early Intervention (under the age of three) has ABSOLUTELY NOTHING TO DO WITH THE REST OF YOUR CHILD"S EDUCATIONAL CAREER. All records are sealed and purged at the age of 3 if you so choose. The county is involved, not your school district. Denying your child recommended services because you are "afraid of a label" is, in my opinion, grossly negligent.
4. And most importantly, EARLY INTERVENTION WORKS. Really works. Miraculously works. My little boy who had only 10 words 6 months ago, just got tucked in and said "Wow! That was a Great story! Sweet Dreams Mommy." -- (OK, and now I'm crying!) But the point is, EI WORKS.
Diane, you are an exceptional mom. You and Christopher will get through this. It's sometimes impossibly hard, but you'll learn just as much as he will, and you'll witness this little miracle thrive. I'll get you all our contact info ASAP. Hang in there -- it really will be OK.
I am a pediatric OT and I totally agree with this post. If you have any questions down the road feel free to FM me
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| Posted 2/28/08 9:49 PM |
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BigB
C & J are 10!
Member since 6/05 5914 total posts
Name:
Stacey
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Re: I feel like my world is caving in....
Diane,
I am so sorry....but would certainly get a second opinion.....
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| Posted 2/28/08 10:11 PM |
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Reese1106
Family of 4! :o)
Member since 8/06 6655 total posts
Name:
Theresa
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Re: I feel like my world is caving in....
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| Posted 2/28/08 10:21 PM |
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Marcie
Complete Happiness :)
Member since 5/05 27789 total posts
Name:
LOVE being a Mommy!
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Re: I feel like my world is caving in....
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| Posted 2/28/08 11:39 PM |
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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: I feel like my world is caving in....
Diane- People have posted wonderful advice. I wish Ihad something intelligent to add but I am not familiar with this area. Please know that you are a wonderful woman and I am here for love and s upport if you ever should need.
Message edited 2/29/2008 1:40:41 AM.
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| Posted 2/29/08 1:37 AM |
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GenLCSW
Baby # 3 is here!!!
Member since 7/05 21138 total posts
Name:
Genna
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Re: I feel like my world is caving in....
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| Posted 2/29/08 5:21 AM |
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Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
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Re: I feel like my world is caving in....
Lea..thanks Im look forwrad to your FM .....I dont think I slept an hour last night.
I feel so guilty writing this....all I keep thinking is why is this happeneing to me?
Will Christopher be ok, will he need special ed services forever, will we be able to go to Disney, will he go to college, will he get married some day.
I dont even want to go to work today.
But I do feel positive, I guess Im just still in shock right now to hear those words, I guess kind of like a doctor telling you that you have Cancer, or that you are going to die, but when someone tells you there is something wrong with your child, I just felt like someone punched me in the gut.
Thanks again
Message edited 2/29/2008 5:40:00 AM.
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| Posted 2/29/08 5:33 AM |
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JTK
my 4 boys!
Member since 6/06 7396 total posts
Name:
Kristi
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Re: I feel like my world is caving in....
Diane.. FM
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| Posted 2/29/08 6:02 AM |
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JTK
my 4 boys!
Member since 6/06 7396 total posts
Name:
Kristi
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Re: I feel like my world is caving in....
Posted by Diane
Lea..thanks Im look forwrad to your FM .....I dont think I slept an hour last night.
I feel so guilty writing this....all I keep thinking is why is this happeneing to me?
Will Christopher be ok, will he need special ed services forever, will we be able to go to Disney, will he go to college, will he get married some day.
I dont even want to go to work today.
But I do feel positive, I guess Im just still in shock right now to hear those words, I guess kind of like a doctor telling you that you have Cancer, or that you are going to die, but when someone tells you there is something wrong with your child, I just felt like someone punched me in the gut.
Thanks again
of course he will.. IF christopher has this he will of course enjoy all of the above!! my six year old has PDD and he is the most popular kid in his kindergarten class. EI is the best thing that has ever happened to my family and i 've had 3 kids in it!! they are all doing wonderful!!
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| Posted 2/29/08 6:05 AM |
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justthe4ofus
I hate hypocrites!!!!!
Member since 5/05 6905 total posts
Name:
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Re: I feel like my world is caving in....
Posted by Diane
But I do feel positive, I guess Im just still in shock right now to hear those words, I guess kind of like a doctor telling you that you have Cancer, or that you are going to die, but when someone tells you there is something wrong with your child, I just felt like someone punched me in the gut.
Thanks again
That's exactly where you are as anyone would be. It's natural. You have 'digest' the information that you have heard and then you will work through this and Christopher will be fine. As Lea and many others have said EI works. This has been caught early and is going to make a difference.
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| Posted 2/29/08 6:06 AM |
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my3bugs
Mom of 2 Boys
Member since 5/05 4381 total posts
Name:
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Re: I feel like my world is caving in....
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| Posted 2/29/08 6:32 AM |
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Laura1
Fun in the Snow!
Member since 11/06 4512 total posts
Name:
Laura
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Re: I feel like my world is caving in....
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| Posted 2/29/08 6:36 AM |
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Ambersmom
Straight up nasty
Member since 5/05 7740 total posts
Name:
Sharon
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Re: I feel like my world is caving in....
I'm so sorry
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| Posted 2/29/08 6:41 AM |
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Faithx2
All good things in 2016!!
Member since 8/05 20181 total posts
Name:
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Re: I feel like my world is caving in....
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| Posted 2/29/08 6:41 AM |
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2PreciousBlessings
The Perfect Pair
Member since 5/06 19861 total posts
Name:
Best Wife & Mommy
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Re: I feel like my world is caving in....
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| Posted 2/29/08 7:20 AM |
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Janice
Sweet Jessie Quinn
Member since 5/05 27567 total posts
Name:
Janice
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Re: I feel like my world is caving in....
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| Posted 2/29/08 8:32 AM |
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