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KittyCat
Happy Summer !
Member since 5/05 2241 total posts
Name:
Kathleen
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Re: I feel like my world is caving in....
Diane,
I don't know too much about this topic but I wanted to send hugs and I would get a second opinion, it can't hurt and may put your heart at ease a little .
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Posted 2/29/08 8:44 AM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
smiles
Life is good!
Member since 2/06 1450 total posts
Name:
S
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Re: I feel like my world is caving in....
I say always get a second opinion. It can never hurt.
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| Posted 2/29/08 8:45 AM |
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CathyB
Member since 5/05 19403 total posts
Name:
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Re: I feel like my world is caving in....
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| Posted 2/29/08 8:48 AM |
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waterspout4
My loves
Member since 5/06 19150 total posts
Name:
Kelly
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Re: I feel like my world is caving in....
I'm very sorry about this. I am a firm believer in seeking second opinions and I would look elsewhere.
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| Posted 2/29/08 8:50 AM |
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Bxgell2
Perfection
Member since 5/05 16438 total posts
Name:
Beth
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Re: I feel like my world is caving in....
Posted by groovypeg
Posted by colesmom
Hey Diane ...
I'm going to answer your FM privately, but I'd also like to clear some things up on this post just as a general FYI for now, and for later if it gets searched.
1. PDD can actually be diagnosed in as little as 15 minutes. The test is called the CARS (Childhood Autism Rating Scale) and is basically a parent questionairre. You know him best and you're bringing your concerns to the table. A Psychologist makes the formal diagnosis.
2. PDD is Pervasive Developmental Disorder. It is a mild form of the Autism Spectrum. It IS NOT Autism as you think you know it. Pervasive means that the developmental disorder has reached multiple areas (speech as well as educational ability as well as fine motor or sensory, etc.) The sooner you can start Speech, Special Instruction and Occupational Therapy the better.
3. "Labeling" in Early Intervention (under the age of three) has ABSOLUTELY NOTHING TO DO WITH THE REST OF YOUR CHILD"S EDUCATIONAL CAREER. All records are sealed and purged at the age of 3 if you so choose. The county is involved, not your school district. Denying your child recommended services because you are "afraid of a label" is, in my opinion, grossly negligent.
4. And most importantly, EARLY INTERVENTION WORKS. Really works. Miraculously works. My little boy who had only 10 words 6 months ago, just got tucked in and said "Wow! That was a Great story! Sweet Dreams Mommy." -- (OK, and now I'm crying!) But the point is, EI WORKS.
Diane, you are an exceptional mom. You and Christopher will get through this. It's sometimes impossibly hard, but you'll learn just as much as he will, and you'll witness this little miracle thrive. I'll get you all our contact info ASAP. Hang in there -- it really will be OK.
i totally agree with the above post, which is very well written and highly informative.
if i can be of any assistance, please let me know. this is a difficult time right now but with knowledge and support you will get through this. there are quite a few of us on this board who are well versed whether it be parent or professional. please dont hesitate to ask questions.
First, hugs to you
Second, I agrew the above - while it is shocking, upsetting and devastating to get this kind of news, it is essential, at this early age, to start services as soon as possible. While I agree with the others, this isn't something that should be taken lightly, and perhaps, for your own ease of mind, you should get a second opinion, but if it turns out that your child has any issues, it's best to act quickly and decisively.
I can speak from my own experience - I was diagnosed with several learning and speech disabilities when I was younger, in 2nd grade. My situation was the opposite - the District flat out refused to provide me with any services. Thank GOD, I had a stubborn, strong-willed mother who refused to take no as an answer. As a result, within a few months, I was receiving services on a daily basis.
I'm not saying it wasn't a struggle, but if I hadn't received those services, so quickly, I don't know if I would be where I am today, as a successful attorney.
Just remember, having the label doesn't live with your child forever. If anything, oftentimes, having that kind of one-on-one attention and help will allow your child to rise even further above his or her classmates. My struggle was a long, arduous one, but it made me the strong, sensitive, intelligent person I am today, for which I'm very grateful.
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| Posted 2/29/08 8:58 AM |
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Re: I feel like my world is caving in....
Posted by Laura-DDS
I am so sorry you are going through this. I think if your gut tells you that you were not comfortable with this last place go elsewhere. I too believe to make a true evaluation and conclusion you would need certain tests or clear cut symptoms and if this last place wants to jump at a conclusion and you are not comfortable go for another opinion elsewhere and see how they manage the situation.
Best of luck I hope you find the answers you are looking for.
I agree! Diane... I sent you an FM
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| Posted 2/29/08 9:09 AM |
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MsMBV
:P
Member since 5/05 28602 total posts
Name:
Me
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Re: I feel like my world is caving in....
No advice only
30 years ago, when my mom was trying to have my brother evaluated, she went through something very similar. Go to as many people as you feel necessary until your son gets the attention he needs.
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| Posted 2/29/08 9:10 AM |
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Re: I feel like my world is caving in....
Posted by babybelly
I have seen children diagnosed PDD very young and then so much progress is made in the EI system that the classification changes and the child either never had PDD or progressed to the point that he no longer has it.
Yes - I have seen that as well....
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| Posted 2/29/08 9:11 AM |
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mommy0604
My Son is my world...
Member since 10/07 3270 total posts
Name:
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Re: I feel like my world is caving in....
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| Posted 2/29/08 9:13 AM |
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nylisa
My Children
Member since 5/05 7905 total posts
Name:
MaMa
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Re: I feel like my world is caving in....
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| Posted 2/29/08 9:13 AM |
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Ang-Rich
Beyond Compare
Member since 5/05 17988 total posts
Name:
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Re: I feel like my world is caving in....
Posted by bicosi
I would follow your gut instinct. Do you feel comfortable sending him back to the same psycologist? if so, then do what you feel is best. It's your child.
I agree! You have good instincts so go with them...don't doubt them.
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| Posted 2/29/08 9:24 AM |
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Kotka
Mom to two boys :)
Member since 5/05 3384 total posts
Name:
Jola
(pronounced Yola)
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Re: I feel like my world is caving in....
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| Posted 2/29/08 9:25 AM |
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Eireann
Two ladies and a gentleman!
Member since 5/05 12165 total posts
Name:
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Re: I feel like my world is caving in....
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| Posted 2/29/08 9:31 AM |
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Re: I feel like my world is caving in....
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| Posted 2/29/08 9:31 AM |
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LuvMy2Girls
@>---------
Member since 5/05 11165 total posts
Name:
Mommy
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Re: I feel like my world is caving in....
No advice just
But def trust your mommy instinct
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| Posted 2/29/08 9:48 AM |
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elyssa222
******
Member since 5/05 1541 total posts
Name:
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Re: I feel like my world is caving in....
I just wanted to post this for you and the other moms who are dealing with similiar situations. I used to work in EI and I would give this essay to all the parents on our first meeting
WELCOME TO HOLLAND
by
Emily Perl Kingsley.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
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| Posted 3/1/08 12:52 PM |
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