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rose825
Best Friends
Member since 6/05 10228 total posts
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kids with allergies... epi-pen question?
So we think Ryan has a peanut allergy and are waiting for bloodowork to confirm it.
In the meantime, we have to act like he does. So we got a rx yesterday for the epi-pen. Here is the question (or questions)
how many do you have?
how do you pay for them? how much?
how often do they expire/need to be replaced?
Yesterday my pharmacy told me my insurance company would only let me fill one twin pack at a time even though the MD gave me a rx for 3. I need one for home, school, and after school sitter. And I had a $89 copay( I later foundout its because I have a $100 deductible and after that its $25). And on top of that I just noticed it expires in 4 months..... so now will have to replace them all.
Did my pharmacy give me an old one?
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Posted 1/3/08 7:05 AM  |
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joenick
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Member since 6/06 9370 total posts
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Valerie...aka...Do Me A Favor?
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Re: kids with allergies... epi-pen question?
Pauline, first: 
Hasn't Ryan been eating peanuts forever? I thought he ate PB sandwiches. What happened? What reactions did he show?
Second, I am copying this post to my friend Barbara (the one that has Scott that's allergic to EVERYTHING). She will DEFINITELY be able to help you out.
When I get her response, I'll FM it to you!
Meanwhile...side note...HAPPY ANNIVERSARY!!!!!!
 
And  to Ryan.
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| Posted 1/3/08 7:29 AM |
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rose825
Best Friends
Member since 6/05 10228 total posts
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Re: kids with allergies... epi-pen question?
thanks!
and no he HATES peanut butter. Vehemently, he only ate it because he thought the rieces pieces were M&Ms.
His lip swelled, stomach ache, vomiting and hives
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| Posted 1/3/08 7:34 AM |
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joenick
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Member since 6/06 9370 total posts
Name:
Valerie...aka...Do Me A Favor?
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Re: kids with allergies... epi-pen question?
Posted by rose825
thanks!
and no he HATES peanut butter. Vehemently, he only ate it because he thought the rieces pieces were M&Ms.
His lip swelled, stomach ache, vomiting and hives
But in 5 years, he's HAD to have foods that were processed in plants where peanuts were used. Or eaten foods containing peanut oil. Peanut oil is in things you would NEVER imagine and from what I know from Scott, if he even TOUCHES (with his fingers) one of those foods, he immediately goes into anaphalctic shock. How would they JUST find this now in him- 5 years later? Maybe he has some kind of virus and that's how it presented himself. I'd send him to an allergist just to make sure.
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| Posted 1/3/08 8:25 AM |
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NJmom
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Member since 8/05 4987 total posts
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Re: kids with allergies... epi-pen question?
We have an epi pen for my DS. My prescription was for a 2 pack. I keep one in my diaper bag and one at home. He doesn't go to day care or anything so I don't need anymore. The copay was pretty expensive though. I forget exactly, but I think it was around $60-70. I think ours don't expire for about a year or so. I would fight the pharmacy to get new ones in that don't expire so quickly.
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| Posted 1/3/08 8:28 AM |
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nbc188
Best friends!
Member since 12/06 23090 total posts
Name:
C
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Re: kids with allergies... epi-pen question?
Posted by NJmom
I would fight the pharmacy to get new ones in that don't expire so quickly.
That's a good idea, see if that could work.
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| Posted 1/3/08 8:30 AM |
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rose825
Best Friends
Member since 6/05 10228 total posts
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Re: kids with allergies... epi-pen question?
Posted by NJmom
We have an epi pen for my DS. My prescription was for a 2 pack. I keep one in my diaper bag and one at home. He doesn't go to day care or anything so I don't need anymore. The copay was pretty expensive though. I forget exactly, but I think it was around $60-70. I think ours don't expire for about a year or so. I would fight the pharmacy to get new ones in that don't expire so quickly.
Thanks, I thought they should last longer so I will ask them to replace them.
Val- he has definately eaten things with peanuts or made near peanuts so probably his allergy is not as severe. He had bloodowrk drawn yesterday to see what he is allergic (and how allergic). I  it was all coincidence, but all signs point to allergy.
ETA: Ped said the fact that Ryan HATES PB might mean that all along he may have been having a reaction when it was in his mouth, that his mouth started to feel funny, but he didnt have the words to describe it so he would just spit it out.
Message edited 1/3/2008 8:32:30 AM.
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| Posted 1/3/08 8:31 AM |
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joenick
Us
Member since 6/06 9370 total posts
Name:
Valerie...aka...Do Me A Favor?
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Re: kids with allergies... epi-pen question?
That stinks. Hopefully bloodwork will come back with good news.
Nicholas HATES PB. Won't even SMELL IT! He's never even tasted it. So for him, it's not allergies...it's stubbornness!  
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| Posted 1/3/08 8:37 AM |
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Teri
my girls!
Member since 2/06 1491 total posts
Name:
Teri
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Re: kids with allergies... epi-pen question?
Sorry to hear that :(
My dd has severe milk and egg allergies - we carry our epi pens everwhere. I have two on me at all times (in case one misfires) I have another 2 at my mom's house, another 2 at home in our medicine cabinet.
My insurance doesn't limit I don't think, but I refill them as necessary with expiration dates.
I think it's really important to at least have 3 or so, just in case one doesn't work when you need it too.
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| Posted 1/3/08 9:55 AM |
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CathyB
Member since 5/05 19403 total posts
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Re: kids with allergies... epi-pen question?
We got a 2 pack. It's good for a year. It was about $80 or so I think, it's been 6 months so I don't exactly remember.
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| Posted 1/3/08 10:03 AM |
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JRG71
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Member since 5/05 5025 total posts
Name:
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Re: kids with allergies... epi-pen question?
Posted by rose825
So we think Ryan has a peanut allergy and are waiting for bloodowork to confirm it.
In the meantime, we have to act like he does. So we got a rx yesterday for the epi-pen. Here is the question (or questions)
how many do you have?
how do you pay for them? how much?
how often do they expire/need to be replaced?
Yesterday my pharmacy told me my insurance company would only let me fill one twin pack at a time even though the MD gave me a rx for 3. I need one for home, school, and after school sitter. And I had a $89 copay( I later foundout its because I have a $100 deductible and after that its $25). And on top of that I just noticed it expires in 4 months..... so now will have to replace them all.
Did my pharmacy give me an old one?
's
My DD has a peanut/tree nut allergy too
We have 4 epi pens. We keep 2 with us and 2 at daycare. You can get as many as you need. Just ask your allergist for the prescription.
I paid $25 per pack. I would call your insurance company and see what you can do in allowing you more pens at one time. Obviously its a life saving tool and your DS needs to have 2 wherever he goes.
I think mine were good for 1 year. I would take those back your pharmacist.
Good luck - I hope the bloodwork comes back as not life threatening.
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| Posted 1/3/08 10:05 AM |
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NJmom
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Member since 8/05 4987 total posts
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Re: kids with allergies... epi-pen question?
I just checked my epi-pens and they don't expire until 12/08 and we got them back in 9/07. I would definitley be upset if they expired after only 4 months!
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| Posted 1/3/08 12:42 PM |
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rose825
Best Friends
Member since 6/05 10228 total posts
Name:
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Re: kids with allergies... epi-pen question?
thanks everyone! I got the insurance to pay for 2 sets, and the pharmacy agreed to exchange the one I have for one that expires 4/09.
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| Posted 1/3/08 5:00 PM |
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SweetCin
My green-eyed boy
Member since 5/05 13499 total posts
Name:
Cin
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Re: kids with allergies... epi-pen question?
That's great, glad they exchanged them. I'm a teacher & we have a child w/ a tree nut allergy. His mom never supplied us w/ a pen, but every teacher in our school has one (in the classes he/other allergic children will be in....ie., music, gym, library) & the nurse has one (or more) as well. I believe ours are good for the year.
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| Posted 1/3/08 5:39 PM |
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