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jax1
Love my baby girl!!!
Member since 3/09 3405 total posts
Name:
Jackie
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MTHFR/Lovenox girls
So I had my DD in 2011 and was on Lovenox because of having the MTHFR gene (homozygous c).
Im currently pregnant and went to the dr and she said they now changed their protocol and do not recommend going on Lovenox unless you've had a clot. She is still going to have the high risk dr see me to give their opinion.
Thoughts? Is this the case now? I'm seeing a different dr now and I really like her, but it makes me nervous not being on Lovenox because I had two miscarriages before my DD. I don't know if Lovenox was the reason I carried to term...
Just curious what other girls with homozygous MTHFR are doing.
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Posted 10/2/13 7:27 PM  |
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jteach
2 and through
Member since 9/07 3939 total posts
Name:
Jess
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MTHFR/Lovenox girls
I tested positive for protein s deficiency while at rsofny. As soon as I became pregnant they started me on 40mg of lovenox daily. I have never had a clot. My dr of maternal fetal medicine also agreed I should be on it. I would want a 2nd opinion if I were you. Good luck
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| Posted 10/2/13 8:03 PM |
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jax1
Love my baby girl!!!
Member since 3/09 3405 total posts
Name:
Jackie
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Re: MTHFR/Lovenox girls
I know. It's making me uncomfortable. I'm going to the high risk dr too, but I think I'm going to call my blood dr tomorrow and see what she says. She wanted me on Lovenox last time.
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| Posted 10/2/13 8:05 PM |
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FergieK
Loving my girls
Member since 7/09 2533 total posts
Name:
Fergie
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Re: MTHFR/Lovenox girls
The minute I had a positive beta my RE put me on Lovenox. When I went to the ob I just continued. I have never had a clot before but I think maybe that contributed to me not getting pregnant. I would voice my concern to my ob.
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| Posted 10/2/13 9:06 PM |
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MrsA1012
love my little girl !
Member since 9/10 5777 total posts
Name:
Me
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MTHFR/Lovenox girls
I'm homozygous for mthfr. I went to a hematologist for a consultation and he said that we would never recommend a blood thinner during pregnancy unless you have a history of a clot. He feels that many, many people have it and never know and that thinners have many potential side effects and you should stay away from them if possible.
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| Posted 10/2/13 9:16 PM |
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jax1
Love my baby girl!!!
Member since 3/09 3405 total posts
Name:
Jackie
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Re: MTHFR/Lovenox girls
Posted by MrsA1012
I'm homozygous for mthfr. I went to a hematologist for a consultation and he said that we would never recommend a blood thinner during pregnancy unless you have a history of a clot. He feels that many, many people have it and never know and that thinners have many potential side effects and you should stay away from them if possible.
Interesting and my hematologist wanted me on it when I was pregnant with my dd. She said she wouldn't feel right not having me on it just in case since I am homozygous for MTHFR.
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| Posted 10/2/13 9:25 PM |
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heather10292010
Gonna be a big sister
Member since 12/10 1749 total posts
Name:
Heather
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MTHFR/Lovenox girls
I have mthfr and antiphospholipid ( blood clotting issue). I was on 40 mg oflovenox from 5 weeks to 36 when I switched to heparin. Also on daily baby aspirin and b12 shots every other week
Both my ob and hematologist agreed on my treatment
I never had a clot, but had two miscarriages before my daughter and the drs believed that a clot formed around the baby
I would get a 2 opinion
Lovenox cant hurt
Congrats!
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| Posted 10/2/13 9:57 PM |
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Serendipity
Summer!
Member since 4/07 7631 total posts
Name:
PrayingWishingHopingALOT
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Re: MTHFR/Lovenox girls
Posted by MrsA1012
I'm homozygous for mthfr. I went to a hematologist for a consultation and he said that we would never recommend a blood thinner during pregnancy unless you have a history of a clot. He feels that many, many people have it and never know and that thinners have many potential side effects and you should stay away from them if possible.
This. I am pregnant with #2 and the guidelines have drastically changed since DD #1 in 2008. They no longer recommend lovenox unless there's been a prior clottin event. I am only on baby Asa, b vitamins and high dose folic acid. I was seen by high risk (actually 2 different ones) who said same thing.
Message edited 10/2/2013 10:17:27 PM.
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| Posted 10/2/13 10:16 PM |
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maymama
my little loves
Member since 8/08 18453 total posts
Name:
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Re: MTHFR/Lovenox girls
Just gave birth to a healthy #2 in January - same exact situation. My identical twin sister, same.
NO issues! I was nervous but all was fine!
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| Posted 10/3/13 10:11 AM |
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jax1
Love my baby girl!!!
Member since 3/09 3405 total posts
Name:
Jackie
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Re: MTHFR/Lovenox girls
Posted by maymama
Just gave birth to a healthy #2 in January - same exact situation. My identical twin sister, same.
NO issues! I was nervous but all was fine!
SO you were on Lovenox the first time, and not the second? Thanks!!!
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| Posted 10/3/13 11:42 AM |
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cateyemm
Twins!
Member since 7/10 8027 total posts
Name:
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Re: MTHFR/Lovenox girls
do you have a hemo as well?
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| Posted 10/3/13 12:18 PM |
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jax1
Love my baby girl!!!
Member since 3/09 3405 total posts
Name:
Jackie
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Re: MTHFR/Lovenox girls
Posted by cateyemm
do you have a hemo as well?
Yes. Calling her today to get her opinion.
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| Posted 10/3/13 12:53 PM |
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alli3131
Peanut is here!!!!!!
Member since 5/09 18388 total posts
Name:
Allison
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MTHFR/Lovenox girls
My Hemo told me the minute I am PG again to call him and he will put me on again.....I would ask your hemo and go with what they say.
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| Posted 10/3/13 1:06 PM |
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jax1
Love my baby girl!!!
Member since 3/09 3405 total posts
Name:
Jackie
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Re: MTHFR/Lovenox girls
Posted by alli3131
My Hemo told me the minute I am PG again to call him and he will put me on again.....I would ask your hemo and go with what they say.
Thanks. I am waiting for her to call me back and will go with her opinion. She was very persistent with her wanting me on Lovenox last time.
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| Posted 10/3/13 1:07 PM |
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cateyemm
Twins!
Member since 7/10 8027 total posts
Name:
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Re: MTHFR/Lovenox girls
Posted by alli3131
My Hemo told me the minute I am PG again to call him and he will put me on again.....I would ask your hemo and go with what they say.
i agree, defer to the hemo
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| Posted 10/3/13 1:07 PM |
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maymama
my little loves
Member since 8/08 18453 total posts
Name:
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Re: MTHFR/Lovenox girls
Posted by jax1
Posted by maymama
Just gave birth to a healthy #2 in January - same exact situation. My identical twin sister, same.
NO issues! I was nervous but all was fine!
SO you were on Lovenox the first time, and not the second? Thanks!!!
yes, my sister as well!
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| Posted 10/3/13 1:25 PM |
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LInMI
LIF Adult
Member since 7/10 1800 total posts
Name:
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Re: MTHFR/Lovenox girls
My DH and I both have the MTHFR gene and my doctor didn't put me on anything. She said it's so common she doesn't even test for it the majority of the time. My DH has other hereditary issues, which is why we went for testing to begin with.
PS: Congrats and best of luck!!
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| Posted 10/3/13 1:54 PM |
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gina409
TWINS!
Member since 12/09 27635 total posts
Name:
g
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Re: MTHFR/Lovenox girls
First!!! Did I miss the announcement!!!
Congrats!!!!! So happy for you!!!
I was and still on 200 mg of lovenox plus aspirin plus metnax
I have had dvt's and clots galore plus 3 mc
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| Posted 10/3/13 2:49 PM |
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jax1
Love my baby girl!!!
Member since 3/09 3405 total posts
Name:
Jackie
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Re: MTHFR/Lovenox girls
Thanks everyone! Spoke to my hemo and she said I should be on Lovenox because of my miscarriages in the past and because I also have BIA-1 mutated gene, which I never even knew about?! So she said that with the combination of MTHFR and miscarriages, I should be on it.
My OBGYN just called in the script. Thanks!!
Message edited 10/3/2013 4:02:10 PM.
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| Posted 10/3/13 4:01 PM |
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MrsA1012
love my little girl !
Member since 9/10 5777 total posts
Name:
Me
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Re: MTHFR/Lovenox girls
Posted by Serendipity
Posted by MrsA1012
I'm homozygous for mthfr. I went to a hematologist for a consultation and he said that we would never recommend a blood thinner during pregnancy unless you have a history of a clot. He feels that many, many people have it and never know and that thinners have many potential side effects and you should stay away from them if possible.
This. I am pregnant with #2 and the guidelines have drastically changed since DD #1 in 2008. They no longer recommend lovenox unless there's been a prior clottin event. I am only on baby Asa, b vitamins and high dose folic acid. I was seen by high risk (actually 2 different ones) who said same thing.
. Yes, this is what I was told too.
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| Posted 10/3/13 9:09 PM |
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