| Posted By |
Message |
| Pages: 1 [2] 3 4 5 >> |
Marbo
LOVE
Member since 7/08 2374 total posts
Name:
|
Re: Today is the saddest day of my life so far
I am so, so sorry, praying for your DD and family 
|
Posted 8/24/10 1:35 PM  |
| |
|
Long Island Weddings
Long Island's Largest Bridal Resource |
MetsGirl07
LIF O2 Vendor
Member since 12/07 16202 total posts
Name:
Deanna
|
Re: Today is the saddest day of my life so far
 i am so sorry
|
| Posted 8/24/10 1:36 PM |
| |
|
nrthshgrl
It goes fast. Pay attention.
Member since 7/05 57538 total posts
Name:
|
Re: Today is the saddest day of my life so far
Sorry if I'm speaking out of turn...
Posted by ruby
If you don't mind sharing (and if you do I'm so sorry for asking), what if any steps can you take from here as far as DD is concerned? Is it something where treatment or therapy is an option?
In terms of chromosome defects, it all depends on what chromosome is affected & how severely it will impact the child.
My friend's daughter has Rett Syndrome (a defect on the X chromosome). She does receive therapy.
I found this site helpful when I was looking for info:
http://www.rarechromo.org/html/home.asp
|
| Posted 8/24/10 1:38 PM |
| |
|
Smalls72
OMG, time is going way to fast
Member since 9/08 3797 total posts
Name:
Bali
|
Re: Today is the saddest day of my life so far
sending you lots of and some
|
| Posted 8/24/10 1:39 PM |
| |
|
3monkies
Love my babies
Member since 10/09 1181 total posts
Name:
Sharon
|
Re: Today is the saddest day of my life so far
sooo sorry
|
| Posted 8/24/10 1:39 PM |
| |
|
MrsBumbleb
it's me
Member since 5/05 11234 total posts
Name:
Christine
|
Re: Today is the saddest day of my life so far
I'm sorry you had to receive such news.
|
| Posted 8/24/10 1:42 PM |
| |
|
ChrisDee
My Girls
Member since 11/06 9543 total posts
Name:
Christine
|
Re: Today is the saddest day of my life so far
|
| Posted 8/24/10 1:42 PM |
| |
|
pharmcat2000
Mom of 2 + 1
Member since 10/05 7395 total posts
Name:
Catherine
|
Re: Today is the saddest day of my life so far
We know it is a deletion on chromosome #15. It is either Angelman Syndrome or Prader-Willi Syndrome, depending on who the deletion came from. DH doesn't want to know.
The neurologist said the "treatment" is therapy. I don't know how to find out if there is some kind of stem cell treatment for it. And if there is, do I try to have another baby for the cord blood? We didn't bank hers.
I'm so ANGRY though because I had an amnio...it should have found this!!!
|
| Posted 8/24/10 1:45 PM |
| |
|
pnbplus1
Family
Member since 5/09 5751 total posts
Name:
Mommy
|
Re: Today is the saddest day of my life so far
I so sorry I hope that you are able to find the answers and strength you need to get through this difficult time.
Message edited 8/24/2010 1:47:41 PM.
|
| Posted 8/24/10 1:46 PM |
| |
|
Salason
♥
Member since 6/05 9878 total posts
Name:
|
Re: Today is the saddest day of my life so far
I am so sorry
|
| Posted 8/24/10 1:47 PM |
| |
|
OffWithHerHead23
Keep passing the open windows
Member since 10/06 3627 total posts
Name:
Meaghan
|
Re: Today is the saddest day of my life so far
I'm sorry for your news and I'm praying for you and your family
|
| Posted 8/24/10 1:48 PM |
| |
|
jgl
Love my little boys!!!
Member since 8/07 7060 total posts
Name:
g
|
Re: Today is the saddest day of my life so far
I am very sorry!! you will be in my prayers. try to remain positive!
|
| Posted 8/24/10 1:49 PM |
| |
|
CrankyPants
I'm cranky
Member since 7/06 18178 total posts
Name:
Mama Cranky
|
Re: Today is the saddest day of my life so far
I am so sorry
|
| Posted 8/24/10 1:49 PM |
| |
|
Melissa77
Mommy of 3
Member since 8/08 2872 total posts
Name:
Melissa
|
Re: Today is the saddest day of my life so far
|
| Posted 8/24/10 1:49 PM |
| |
|
laurabora
LIF Adult
Member since 4/07 2712 total posts
Name:
Laura
|
Re: Today is the saddest day of my life so far
I'm so sorry.
|
| Posted 8/24/10 1:49 PM |
| |
|
chikita315
Love
Member since 8/06 7945 total posts
Name:
M-lo
|
Re: Today is the saddest day of my life so far
|
| Posted 8/24/10 1:50 PM |
| |
|
beachgirl
LIF Adult
Member since 7/05 7967 total posts
Name:
sara
|
Re: Today is the saddest day of my life so far
I am so, so sorry.
|
| Posted 8/24/10 1:50 PM |
| |
|
nov06
LIF Adult
Member since 9/06 1252 total posts
Name:
|
Re: Today is the saddest day of my life so far
|
| Posted 8/24/10 1:50 PM |
| |
|
oneday
<3
Member since 5/05 4319 total posts
Name:
Pam
|
Re: Today is the saddest day of my life so far
|
| Posted 8/24/10 1:51 PM |
| |
|
FranB
LIF Adolescent
Member since 9/06 686 total posts
Name:
Fran
|
Re: Today is the saddest day of my life so far
I am so sorry for you and your family
|
| Posted 8/24/10 1:51 PM |
| |
|
pixie
Member since 7/07 2089 total posts
Name:
|
Re: Today is the saddest day of my life so far
|
| Posted 8/24/10 1:51 PM |
| |
|
emomma17
All My Girls!
Member since 11/08 4392 total posts
Name:
Mia
|
Re: Today is the saddest day of my life so far
|
| Posted 8/24/10 1:52 PM |
| |
|
cloddy
Holiday 2011 photo
Member since 8/05 8088 total posts
Name:
Kristen
|
Re: Today is the saddest day of my life so far
so sorry
|
| Posted 8/24/10 1:52 PM |
| |
|
MrsA714
Baby #2 is here!
Member since 8/07 8806 total posts
Name:
|
Re: Today is the saddest day of my life so far
|
| Posted 8/24/10 1:52 PM |
| |
|
3girls1dog
LIF Adult
Member since 10/09 929 total posts
Name:
|
Re: Today is the saddest day of my life so far
|
| Posted 8/24/10 1:53 PM |
| |
|
| Pages: 1 [2] 3 4 5 >> |
