Today is the saddest day of my life so far. Update on pg 10

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mommyIam

Member since 7/09

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Shana

Re: Today is the saddest day of my life so far

The thought of this hit me so hard, my heart broke for you. I'm so sorry.

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Posted 8/24/10 4:40 PM

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TaraHutch
True beauty

Member since 10/07

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Tara

Re: Today is the saddest day of my life so far

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Posted 8/24/10 4:40 PM

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Tah-wee-ZAH
Kisses

Member since 5/05

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Re: Today is the saddest day of my life so far

I am so very sorry Chat Icon

Posted 8/24/10 4:47 PM

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JandJ1224

Member since 6/06

5911 total posts

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Jannette

Re: Today is the saddest day of my life so far

Chat Icon to you!

Posted 8/24/10 4:48 PM

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Momma2Be
Mommy of an angel

Member since 10/09

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Dina

Re: Today is the saddest day of my life so far

Posted by pharmcat2000

We know it is a deletion on chromosome #15. It is either Angelman Syndrome or Prader-Willi Syndrome, depending on who the deletion came from. DH doesn't want to know.

The neurologist said the "treatment" is therapy. I don't know how to find out if there is some kind of stem cell treatment for it. And if there is, do I try to have another baby for the cord blood? We didn't bank hers.

I'm so ANGRY though because I had an amnio...it should have found this!!!

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I have a half brother that was born with Prader-Willi syndrome. If you have any questions or just want to vent, please feel free to FM me. Chat Icon

Posted 8/24/10 4:51 PM

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SweetTooth
I'm a tired mommy!

Member since 12/05

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Lauren

Re: Today is the saddest day of my life so far

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Posted 8/24/10 5:07 PM

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Domino
Always My Miracle

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Re: Today is the saddest day of my life so far

I am so sorry. I pray for the strength for you and your family to deal with this terrible situation Chat Icon

Posted 8/24/10 5:08 PM

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InShock
life is good

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Re: Today is the saddest day of my life so far

I am so sorry. Chat Icon Praying for a miracle.

Posted 8/24/10 5:11 PM

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saraH
happy birthday sweet kate!

Member since 5/05

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I know that God exsists, I held her in my arms...

Re: Today is the saddest day of my life so far

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Posted 8/24/10 5:12 PM

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Shelleybean11
Mommy of 2!

Member since 12/08

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Re: Today is the saddest day of my life so far

I'm so so sorry Chat Icon

Posted 8/24/10 5:23 PM

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Palebride
I am an amazing bakist

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Lori

Re: Today is the saddest day of my life so far

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Posted 8/24/10 5:25 PM

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katiebug
I'll love you for always

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Katie

Re: Today is the saddest day of my life so far

I am so sorry. Chat Icon

Posted 8/24/10 5:27 PM

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pnm1654
Mommy to 2 boys!

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Re: Today is the saddest day of my life so far

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Posted 8/24/10 5:27 PM

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2PreciousBlessings
The Perfect Pair

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Best Wife & Mommy

Re: Today is the saddest day of my life so far

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Posted 8/24/10 5:27 PM

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Lillykat
going along for the ride...

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Re: Today is the saddest day of my life so far

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Posted 8/24/10 5:30 PM

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yankinmanc
Happy Days!

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Re: Today is the saddest day of my life so far

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Posted 8/24/10 5:44 PM

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Hofstra26
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Posted 8/24/10 5:48 PM

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MrsPowers
So blessed!

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Ivelysse

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Posted 8/24/10 6:08 PM

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MrsS2005
Mom of 3

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B

Re: Today is the saddest day of my life so far

I'm so sorry. Chat Icon

Posted 8/24/10 6:13 PM

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carissa1643
I LOVE my sons! :)

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Carissa

Re: Today is the saddest day of my life so far

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Posted 8/24/10 6:20 PM

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jxnoscar
Baby Delicious!

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Nancy

Re: Today is the saddest day of my life so far

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Posted 8/24/10 6:25 PM

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Eireann
Two ladies and a gentleman!

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Re: Today is the saddest day of my life so far

Oh no, I'm so so sorry. I hope you get the best possible outcome...
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Posted 8/24/10 6:26 PM

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shelby34
Love being a twin mommy!

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Michele

Re: Today is the saddest day of my life so far

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Posted 8/24/10 6:28 PM

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lbelle821
Arghhhhh

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Lisa

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Posted 8/24/10 6:30 PM

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CathyB

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Re: Today is the saddest day of my life so far

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Posted 8/24/10 6:56 PM

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