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MsMBV
:P
Member since 5/05 28602 total posts
Name:
Me
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UPDATE: Been laying kind of low....but I want to tell everyone what has been going on.
UPDATE 
First I want to say how touched I am to come here and see 6 pages of well wishes and some FMs of support. You are all amazing.
The MRI was normal and showed no growths, abnormalities, or malformations. Excellent news, and honestly what I was the most afraid of.
The EEG was normal at first glance, however when the Neurologist gave it a review for the 2nd & 3rd times, he discovered a very pronounced pattern to DS sleep cycle. It appears that the sleep cycle changes are so severe that it is arousing him partially from his sleep. The Neuro actually said that this happens a lot, but not all people who experience this will actually come to a partial arousal of sleep, hence the night terrors. He is expected to grow out of it, but we will continue to monitor his sleep periodically to be sure.
Thank you all again for your amazing support and prayers.
+++++++++++++++++++++++++++++
DS #1 (baby G) had to go for an MRI and an EEG study. He has been having awful night terrors during which he seems awake, but is not, will scream, yell, kick, and even walk. It sometimes takes up to an hour to get him completely calm and back into a deep sleep. It was happening every night, sometimes more than once a night.
Coupled with this, he also had 2 incidents where he got very hot and sweaty, then passed out, then came too with blue lips and clammy skin, and an extremely low temperature(94.1) rectal.
So we went to a pediatric neurologist at the recommendation of my ped, and he evaluated G and recommended these tests. He had the tests last Monday, and for anyone who is my friend on FB you may have seen the pics of G & DH in their *special hats.* The MRI is to r/o tumor or irregular growth in his brain, and the EEG is to r/o Epilepsy or other neurological dysfunction. DS had to be sedated through an IV for the MRI, and they placed 30 EEG leads on his head while he was out. We are awaiting the results and are meeting with the Ped Neurologist to discuss the findings.
Please throw a few  our way for good results tomorrow, if you have a couple to spare. I hate to even ask with so many moms here needing so much support, but the thought of what they might tell me tomorrow is becoming a bit overwhelming to me.
If you've made it this far, thank you
If anyone is having a similar experience with their DC, please feel free to FM me.
ETA:
We are going to take G to the Bronx Zoo tomorrow right after the Drs appointment, so I will post the update when we return tomorrow night. Image Attachment(s):
Message edited 5/13/2009 7:45:36 PM.
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Posted 5/12/09 8:15 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
Bops
My 3 wishes
Member since 12/07 13625 total posts
Name:
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:17 PM |
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lvdolphins
My Loves!
Member since 5/05 46292 total posts
Name:
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
DS just went yesterday for and MRI and EEG as well!!
FM me and we can "chat"
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| Posted 5/12/09 8:17 PM |
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leighla
Support Cancer Research
Member since 5/05 16353 total posts
Name:
Lauren
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
Lots of and
That all sounds really scary.
How are YOU?
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| Posted 5/12/09 8:17 PM |
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babyquestion
So Thankful!!
Member since 11/07 4004 total posts
Name:
Lots of Sticky Dust, Please!
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:17 PM |
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chelle
It's a Good Life
Member since 8/06 15404 total posts
Name:
Isn't it obvious?
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
Sending you many prayers and hugs
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| Posted 5/12/09 8:17 PM |
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Tah-wee-ZAH
Kisses
Member since 5/05 15952 total posts
Name:
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:18 PM |
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Porrruss
Nya nya nya
Member since 5/05 11618 total posts
Name:
Amy
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
Many, MANY prayers and good health vibes to you and baby G. I cannot imagine what you are going through- and I am so sorry you are.
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| Posted 5/12/09 8:20 PM |
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Palebride
I am an amazing bakist
Member since 5/05 13673 total posts
Name:
Lori
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
I'll send a ton of positive vibes your way!!!
Is there anything you need?
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| Posted 5/12/09 8:23 PM |
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twicethefun
Loving life
Member since 7/06 4088 total posts
Name:
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:24 PM |
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Mommy2Boys
My Boys!!!!
Member since 6/06 14437 total posts
Name:
C
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:25 PM |
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headoverheels
s'il vous plaît
Member since 6/07 42079 total posts
Name:
LB
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
oh sweetie i am so sorry to hear this! i hope all is well... many many prayers that they find out what is wrong and it's nothing serious!
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| Posted 5/12/09 8:25 PM |
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dawnygirl25
Growing up soo fast..
Member since 1/06 14917 total posts
Name:
Dawn
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:26 PM |
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pickles16
Real Estate Professional
Member since 11/07 17227 total posts
Name:
Jen
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:26 PM |
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KateDevine
*
Member since 6/06 24950 total posts
Name:
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:26 PM |
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nicrae
He's here!
Member since 12/06 9289 total posts
Name:
Mommy
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:27 PM |
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LSP2005
Bunny kisses are so cute!
Member since 5/05 19458 total posts
Name:
L
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:27 PM |
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MrsS2005
Mom of 3
Member since 11/05 13118 total posts
Name:
B
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:32 PM |
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Ang-Rich
Beyond Compare
Member since 5/05 17988 total posts
Name:
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
You have very handsome men wearing some pretty cool hats!
Lots of prayers, good wishes and hugs for G!!! Please keep us updated
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| Posted 5/12/09 8:35 PM |
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jenny
L O V E
Member since 4/06 2784 total posts
Name:
Mommy
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:37 PM |
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Merf99
LIF Adult
Member since 5/05 3380 total posts
Name:
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
for good news tomorrow!!
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| Posted 5/12/09 8:38 PM |
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julz33
i run for bacon
Member since 5/05 20584 total posts
Name:
julz
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
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| Posted 5/12/09 8:38 PM |
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randella
Love my little man
Member since 8/05 16290 total posts
Name:
Randi
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
praying for good results!!
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| Posted 5/12/09 8:39 PM |
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twinkletoes807
Mommy's Girls! ♥
Member since 11/07 10116 total posts
Name:
Gabi
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
Sending your beautiful son loads of prayers, positive thoughts and healing vibes!! Hang in there Mommy!!
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| Posted 5/12/09 8:41 PM |
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Jen2999
Baby girls & beagles rock!
Member since 8/06 10356 total posts
Name:
Jen
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Re: Been laying kind of low....but I want to tell everyone what has been going on.
many and
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| Posted 5/12/09 8:41 PM |
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