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Super Low Beta - So Frustrating :( - 3/14 Update
Hugs to you.
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Posted 3/14/16 7:42 PM  |
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Long Island Weddings
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jess237
LIF Toddler
Member since 4/10 418 total posts
Name:
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Super Low Beta - So Frustrating :( - 3/14 Update
So sorry to hear the latest update.
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| Posted 3/14/16 9:53 PM |
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babydreams21
LIF Adult
Member since 12/12 3656 total posts
Name:
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Super Low Beta - So Frustrating :( - 3/14 Update
So sorry! Glad your RE was good and you have a plan in place.
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| Posted 3/14/16 9:58 PM |
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DaisyGirl
LIF Adult
Member since 2/08 1650 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/14 Update
I'm so sorry to read your update but I'm glad beta hell might be ending for you. I know what you mean about wanting it to be over with. I'm glad your RE has a good plan for you.
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| Posted 3/15/16 8:24 PM |
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IUIGirl
LIF Adolescent
Member since 10/14 852 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Bumping for today's update. Any advice on ectopics? 
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| Posted 3/17/16 12:58 PM |
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jess237
LIF Toddler
Member since 4/10 418 total posts
Name:
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Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Oh no!!! I'm so sorry you're going through this. I had a miscarriage that dragged on for four weeks before it finally happened. I remember just wanting it to end when it was clear the baby wasn't going to make it. I totally feel your pain. Sending hugs to you.
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| Posted 3/17/16 2:08 PM |
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DaisyGirl
LIF Adult
Member since 2/08 1650 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
I'm so sorry to read your latest update. When betas are not rising the right way, it's almost worse when they continue to go up. I went through something very similar last year. Positive pregnancy test but beta was not rising appropriately. My doctor was also worried about ectopic. They sent me to Zwanger for a detailed ultrasound at a little over 5 weeks and they could see that the sac was in my uterus. Although my numbers kept rising slowly, pregnancy was not viable. By 6 1/2 weeks it was still just an empty sac and my beta was under 1,000 when it should have been much higher. I ended up needing a D & C.
If you start to have pain, call your doctor right away. How far along are you now? They should be able to see something soon. 
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| Posted 3/17/16 2:16 PM |
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IUIGirl
LIF Adolescent
Member since 10/14 852 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Posted by DaisyGirl
I'm so sorry to read your latest update. When betas are not rising the right way, it's almost worse when they continue to go up. I went through something very similar last year. Positive pregnancy test but beta was not rising appropriately. My doctor was also worried about ectopic. They sent me to Zwanger for a detailed ultrasound at a little over 5 weeks and they could see that the sac was in my uterus. Although my numbers kept rising slowly, pregnancy was not viable. By 6 1/2 weeks it was still just an empty sac and my beta was under 1,000 when it should have been much higher. I ended up needing a D & C.
If you start to have pain, call your doctor right away. How far along are you now? They should be able to see something soon.
Thanks guys!
I think I would just be starting my 5th week. The thought of getting to try again in April was getting me through this but now that's not looking as likely, blah! So far I feel okay, praying it stays like that until this is figured out and handled!
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| Posted 3/17/16 2:30 PM |
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aim
LIF Adult
Member since 4/11 1321 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
I just want to hug you. I'm so sorry.
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| Posted 3/17/16 3:41 PM |
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babydreams21
LIF Adult
Member since 12/12 3656 total posts
Name:
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Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Uhh so sorry
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| Posted 3/17/16 6:58 PM |
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DaisyGirl
LIF Adult
Member since 2/08 1650 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Posted by IUIGirl
Posted by DaisyGirl
I'm so sorry to read your latest update. When betas are not rising the right way, it's almost worse when they continue to go up. I went through something very similar last year. Positive pregnancy test but beta was not rising appropriately. My doctor was also worried about ectopic. They sent me to Zwanger for a detailed ultrasound at a little over 5 weeks and they could see that the sac was in my uterus. Although my numbers kept rising slowly, pregnancy was not viable. By 6 1/2 weeks it was still just an empty sac and my beta was under 1,000 when it should have been much higher. I ended up needing a D & C.
If you start to have pain, call your doctor right away. How far along are you now? They should be able to see something soon.
Thanks guys!
I think I would just be starting my 5th week. The thought of getting to try again in April was getting me through this but now that's not looking as likely, blah! So far I feel okay, praying it stays like that until this is figured out and handled!
They should be able to do a sono soon just to see where the sac is. If nothing else, it could help to rule out an ectopic.
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| Posted 3/17/16 9:21 PM |
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Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
I'm going the etopic is ruled out. April is a long month! Hoping for you!
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| Posted 3/17/16 9:25 PM |
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JDubs
different, not less
Member since 7/09 13160 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
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| Posted 3/18/16 10:49 AM |
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IUIGirl
LIF Adolescent
Member since 10/14 852 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
It's starting to hit me that if I have to take the methotrexate shot the earliest we can try again is June. My heart hurts .
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| Posted 3/18/16 12:09 PM |
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IVFmiracle
Complete
Member since 12/12 4088 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
at this rate, it really is too soon to tell. I had a similar situation a couple of months back. My beta was super low, and doubling, then not doubling over and over for about 2 weeks. I was told it could be ectopic. Finally when I should have been about 6w5d they did find a small sac lying low in the uterus and measuring 5w1d. It was not ectopic. It just took a while to run its course. I finally MC naturally and without any physical pain at 7w1d.
It wasn't a happy ending, but it was better than ectopic.
Message edited 3/18/2016 12:15:13 PM.
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| Posted 3/18/16 12:13 PM |
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IUIGirl
LIF Adolescent
Member since 10/14 852 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Posted by IVFmiracle
at this rate, it really is too soon to tell. I had a similar situation a couple of months back. My beta was super low, and doubling, then not doubling over and over for about 2 weeks. I was told it could be ectopic. Finally when I should have been about 6w5d they did find a small sac lying low in the uterus and measuring 5w1d. It was not ectopic. It just took a while to run its course. I finally MC naturally and without any physical pain at 7w1d.
Thanks for your input. I'm worried about waiting and having to need surgery again (a D&C if not ectopic). The fact that they've already brought up the shot makes me think they're not in favor of waiting and seeing. I'd so much rather this take it's course naturally if possible. The waiting and wondering is tough. What are they even going to see tomorrow with numbers so low? Could they really find the sac somewhere else during tomorrow's scan?
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| Posted 3/18/16 12:18 PM |
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NicoleF219
LIF Infant
Member since 5/12 232 total posts
Name:
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Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
My last FET wa with rising beta's similar to this. My RE was concerned it was ectopic and sent me for a more thorough sono at radiology and they couldn't find anything anywhere. I wasn't bleeding or in pain and he wanted me to do a methotrexate shot. It was a Friday and I was going to do it Monday. I started bleeding that Saturday and went in and my beta dropped significantly so I never did the shot. I was hesitant to take it because I was told we would have to put of TTC for 3-4 months because of the medicine. I'm so grateful I didn't do it because I conceived my son on the next IUI cycle I did.
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| Posted 3/18/16 1:22 PM |
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IUIGirl
LIF Adolescent
Member since 10/14 852 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Posted by NicoleF219
My last FET wa with rising beta's similar to this. My RE was concerned it was ectopic and sent me for a more thorough sono at radiology and they couldn't find anything anywhere. I wasn't bleeding or in pain and he wanted me to do a methotrexate shot. It was a Friday and I was going to do it Monday. I started bleeding that Saturday and went in and my beta dropped significantly so I never did the shot. I was hesitant to take it because I was told we would have to put of TTC for 3-4 months because of the medicine. I'm so grateful I didn't do it because I conceived my son on the next IUI cycle I did.
Thanks for sharing your story! I wish this would work out in a similar way!
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| Posted 3/18/16 1:27 PM |
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DaisyGirl
LIF Adult
Member since 2/08 1650 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Posted by IUIGirl
Posted by IVFmiracle
at this rate, it really is too soon to tell. I had a similar situation a couple of months back. My beta was super low, and doubling, then not doubling over and over for about 2 weeks. I was told it could be ectopic. Finally when I should have been about 6w5d they did find a small sac lying low in the uterus and measuring 5w1d. It was not ectopic. It just took a while to run its course. I finally MC naturally and without any physical pain at 7w1d.
Thanks for your input. I'm worried about waiting and having to need surgery again (a D&C if not ectopic). The fact that they've already brought up the shot makes me think they're not in favor of waiting and seeing. I'd so much rather this take it's course naturally if possible. The waiting and wondering is tough. What are they even going to see tomorrow with numbers so low? Could they really find the sac somewhere else during tomorrow's scan?
I'm not sure. I do think if they can rule out ectopic, you can definitely ask them to stop all meds and see if your body miscarries naturally. Sometimes, the meds can prevent your body from miscarrying and when you stop it takes over. I can understand why you would prefer that over the shot or a d & c. Have they retested your levels?
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| Posted 3/19/16 9:31 AM |
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jess237
LIF Toddler
Member since 4/10 418 total posts
Name:
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Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
How did it go today? Thinking about you.
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| Posted 3/19/16 9:54 PM |
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IUIGirl
LIF Adolescent
Member since 10/14 852 total posts
Name:
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Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Bump for 3/19 update.
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| Posted 3/20/16 8:34 AM |
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IUIGirl
LIF Adolescent
Member since 10/14 852 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Posted by DaisyGirl
Posted by IUIGirl
Posted by IVFmiracle
at this rate, it really is too soon to tell. I had a similar situation a couple of months back. My beta was super low, and doubling, then not doubling over and over for about 2 weeks. I was told it could be ectopic. Finally when I should have been about 6w5d they did find a small sac lying low in the uterus and measuring 5w1d. It was not ectopic. It just took a while to run its course. I finally MC naturally and without any physical pain at 7w1d.
Thanks for your input. I'm worried about waiting and having to need surgery again (a D&C if not ectopic). The fact that they've already brought up the shot makes me think they're not in favor of waiting and seeing. I'd so much rather this take it's course naturally if possible. The waiting and wondering is tough. What are they even going to see tomorrow with numbers so low? Could they really find the sac somewhere else during tomorrow's scan?
I'm not sure. I do think if they can rule out ectopic, you can definitely ask them to stop all meds and see if your body miscarries naturally. Sometimes, the meds can prevent your body from miscarrying and when you stop it takes over. I can understand why you would prefer that over the shot or a d & c. Have they retested your levels?
Thanks for your reply. I wish my doctors would let me wait like you were able to. Do you remember how high your numbers got?
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| Posted 3/20/16 8:35 AM |
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IUIGirl
LIF Adolescent
Member since 10/14 852 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/17 Update, Possible Ectopic
Posted by jess237
How did it go today? Thinking about you.
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| Posted 3/20/16 8:36 AM |
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IUIGirl
LIF Adolescent
Member since 10/14 852 total posts
Name:
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Super Low Beta - So Frustrating :( - 3/21 Final Update - Ectopic
Last Update
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| Posted 3/22/16 10:50 AM |
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aim
LIF Adult
Member since 4/11 1321 total posts
Name:
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Re: Super Low Beta - So Frustrating :( - 3/21 Final Update - Ectopic
I am so sorry. I send my condolences and prayers to your and your husband. Many, many hugs
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| Posted 3/22/16 11:07 AM |
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