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Please stop me from doing research...
about Multiple Myeloma...
Everyone tells you that you have to be informed and get as much info as possible...
I just can't. At this point, I don't want to know. There is so much I have to learn about what's to follow...high-dose chemo, tandem stem cell transplants...and then I see the survival rates and I just can't do it.
I'd rather be naive
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Posted 10/18/08 10:05 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
Phyl
R.I.P. Sweet Mia ♥
Member since 5/06 28918 total posts
Name:
The Mystical Azzhorse! ™
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Re: Please stop me from doing research...
Put google away!
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| Posted 10/18/08 10:06 PM |
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Beth
The Key to your new home....
Member since 2/06 24849 total posts
Name:
Beth
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Re: Please stop me from doing research...
it's more important to pay attention and take notes about what the doctors say at appointments
don't just use google
my Dad was very big on taking notes when my Mom was sick - then he would research based on that
everyone is different- but a positive attitude will go a long way
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| Posted 10/18/08 10:10 PM |
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CunningOne
***
Member since 5/05 26975 total posts
Name:
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Re: Please stop me from doing research...
I agree, don't google! Keep informed with what the doctors tell you
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| Posted 10/18/08 10:15 PM |
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Christine
2nd verse same as the 1st
Member since 5/05 15287 total posts
Name:
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Re: Please stop me from doing research...
Posted by chmlengr
I agree, don't google! Keep informed with what the doctors tell you
I agree!!!
I had some issues last year and my doctor specifically said to "DO NOT GOOGLE" or check web md for anything - there is too much information that is not relevant to a particular patient and it just ends up getting them more scared.
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| Posted 10/18/08 10:18 PM |
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pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
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Re: Please stop me from doing research...
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| Posted 10/18/08 10:26 PM |
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MrsERod
Praying for Everyone.
Member since 5/05 26170 total posts
Name:
MrsERod™®
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Re: Please stop me from doing research...
Posted by chmlengr
I agree, don't google! Keep informed with what the doctors tell you
ITA!
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| Posted 10/18/08 10:29 PM |
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bluegreen08
LIF Adolescent
Member since 10/07 574 total posts
Name:
a
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Re: Please stop me from doing research...
DO not research online....
this isnt the best hypo, but the law firm i worked at this summer had a mock trial for their summer associates and part of the fact pattern was a plaintiff who had no injuries but googled "worstcasescenario.com" and was scared
the point is, the internet always has horror stories and most of the time they are really really rare... or not true at all. dont stress yourself out over it
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| Posted 10/18/08 10:30 PM |
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DayDay
Livin' the Good Life....
Member since 9/06 5939 total posts
Name:
Dayna
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Re: Please stop me from doing research...
The first thing my dr always tells me is NOT to WEB MD or Google anything.. It can make you feel so much worse... The dr's know what they are doing.. put your trust in them..
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| Posted 10/18/08 10:33 PM |
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leighla
Support Cancer Research
Member since 5/05 16353 total posts
Name:
Lauren
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Re: Please stop me from doing research...
I have the same problem.
It makes me crazy. Sometimes I actualy have to tell myself STOP outloud and just walk away from the computer.
If I feel the NEED to research, I make sure to only go to respected sites - "official" cancer websites or MSKCC.
Google is not our friend these days.
Anytime you feel the urge let us know and we'll find something else for you to do.
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| Posted 10/18/08 11:41 PM |
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HoneyBadger
YourWorstNightmare.
Member since 10/06 15979 total posts
Name:
BahBahBlackJeep
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Re: Please stop me from doing research...
My brother had a cancer that has I very low mortality rate.
When he was diagnosed this past April we couldn't help but look it up online.
Everything pointed to a bad outcome but in the end he's doing well.
The worst thing we did was go right to the computer and look it up.
Don't do it to yourself.
Stay focused on the positive, that's what you need to do.
Hang in there...
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| Posted 10/18/08 11:45 PM |
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Gertyrae
Peace out Homies!
Member since 5/05 20046 total posts
Name:
Gerty ®
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Re: Please stop me from doing research...
The problem with Google is that you are only going to see the worst case scenarios.
When my mom was diagnosed, we started researching and just stopped.
According to Google, she has almost no chance of survival. Her doctors are treating her aggressively...all you can do is pray for the best....and that is what all of us are doing for both you and Lauren.
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| Posted 10/19/08 12:18 AM |
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janet
WITH LOVE MY ANGEL MISS YOU!!!
Member since 5/05 12823 total posts
Name:
janet
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Re: Please stop me from doing research...
sweetie... yes is great to know about it and make sure you understand how serious this is and this may be harsh and i am sorry in advance but
these days and weeks and months and YEARS to come need to be spent with each other. i learned the hard way and WISH I COULD TAKE THIS PAIN FROM YOU!!! I never got that last kiss, never got that last night, never got to make sure he knew  i loved him... i think about that everyday and being he was taken from me so quickly no warning, will he, does he....... make the memories , take the pictures, write that letter, stop making the cancer your only life!!! you have each other and your children make that your life.
keith's last night with me went like this
we found out the house was condemned to the mildew and mold and he would not look me in the eye nor speak to me because he was so ashamed of it, that he failed me as a husband and as a father... i had to call his best friend to ask him to help him to understand this was so FAR from the truth. they went out and caught up with other friends... his friends got his last night with him, he came home and because i was on pain meds because i hurt my knee i barely opened my eyes and rolled over and went back to sleep , thinking let him be alone, i know he is upset and we will talk in the morning i never got that morning i never got to let him know he was not a failure to me , that he was my world. so as hard as it maybe not to look this up and let it consume you let him know that you are a team let him know that we have the guns to fight this cancer and YOU WILL BEAT THIS!!!!!!!!! I KNOW THIS IN MY HEART!!!!!!!!!!!!!
sorry if i am a little harsh but the moral of the story is he is here, he is ALIVE and like i said i feel it in my heart that he will be ok but as we all know there is always the possibility of there not being a tomorrow, so live for the day , live for the moment so that you or others like you may never have to been in the pain i am in EVERYDAY
Message edited 10/19/2008 2:58:03 AM.
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| Posted 10/19/08 12:39 AM |
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HoneyBadger
YourWorstNightmare.
Member since 10/06 15979 total posts
Name:
BahBahBlackJeep
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Re: Please stop me from doing research...
Posted by janet
sweetie... yes is great to know about ti and make sure you understand how serious this is and this may be harsh and i am sorry in advance but
these days and weeks and months and YEARS to come need to be spent with each other. i learned the hard way and WISH I COULD TAKE THIS PAIN FROM YOU!!! I never got that last kiss, never got that last night, never got to make sure he knew i loved him... i think about that everyday and being he was taken from me so quickly no warning, will he, does he....... make the memories , take the pictures, write that letter, stop making the cancer your only life!!! you have each other and your children make that your life.
keith's last night with me went like this
we found out the house was condemned to the mildew and mold and he would not look me in the eye nor speak to me because he was so ashamed of it, that he failed me as a husband and as a father... i had to call his best friend to ask him to help him to understand this was so FAR from the truth. they went out and caught up with other friends... his friends got his last night with him, he came home and because i was on pain meds because i hurt my knee i barely opened my eyes and rolled over and went back to sleep , thinking let him be alone, i know he is upset and we will talk in the morning i never got that morning i never got to let him know he was not a failure to me , that he was my world. so as hard as it maybe not to look this up and let it consume you let him know that you are a team let him know that we have the guns to fight this cancer and YOU WILL BEAT THIS!!!!!!!!! I KNOW THIS IN MY HEART!!!!!!!!!!!!!
sorry if i am a little harsh but the moral of the story is he is here, he is ALIVE and like i said i feel it in my heart that he will be ok but as we all know there is always the possiblity of there not being a tomorrow, so live for the day , live for the moment so that you or others like you may never have to been in the pain i am in EVERYDAY
preach sister, preach.
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| Posted 10/19/08 12:51 AM |
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-Laurie-
Hi!
Member since 5/05 2536 total posts
Name:
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Re: Please stop me from doing research...
I'm praying for you. Feel free to FM me and complain. Dh is deployed I have the time to lend an ear. It's not fair.
I don't know what else to say to help
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| Posted 10/19/08 12:55 AM |
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janet
WITH LOVE MY ANGEL MISS YOU!!!
Member since 5/05 12823 total posts
Name:
janet
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Re: Please stop me from doing research...
Posted by Jennie0898
Posted by janet
sweetie... yes is great to know about it and make sure you understand how serious this is and this may be harsh and i am sorry in advance but
these days and weeks and months and YEARS to come need to be spent with each other. i learned the hard way and WISH I COULD TAKE THIS PAIN FROM YOU!!! I never got that last kiss, never got that last night, never got to make sure he knew i loved him... i think about that everyday and being he was taken from me so quickly no warning, will he, does he....... make the memories , take the pictures, write that letter, stop making the cancer your only life!!! you have each other and your children make that your life.
keith's last night with me went like this
we found out the house was condemned to the mildew and mold and he would not look me in the eye nor speak to me because he was so ashamed of it, that he failed me as a husband and as a father... i had to call his best friend to ask him to help him to understand this was so FAR from the truth. they went out and caught up with other friends... his friends got his last night with him, he came home and because i was on pain meds because i hurt my knee i barely opened my eyes and rolled over and went back to sleep , thinking let him be alone, i know he is upset and we will talk in the morning i never got that morning i never got to let him know he was not a failure to me , that he was my world. so as hard as it maybe not to look this up and let it consume you let him know that you are a team let him know that we have the guns to fight this cancer and YOU WILL BEAT THIS!!!!!!!!! I KNOW THIS IN MY HEART!!!!!!!!!!!!!
sorry if i am a little harsh but the moral of the story is he is here, he is ALIVE and like i said i feel it in my heart that he will be ok but as we all know there is always the possibility of there not being a tomorrow, so live for the day , live for the moment so that you or others like you may never have to been in the pain i am in EVERYDAY
preach sister, preach.
i am not preaching in any way shape or form..... it's a sad reality i live in and NEVER WANT one of my girls on this site to feel the same way..........
one song sums it up very easy
before
Angel
I just want to tell you all the things you are
And all the things you mean to me
When I find myself believing there's no place to go
When I feel the loneliness inside my heart
You're the answer to my prayer
And you're with me everywhere
You're my angel, miracle, you're all I need tonight
Give me shelter from the rain
You breathe life in me again
You're my angel, miracle, you're all I need to know, tonight
Life is just a moment
We're blowing in the wind
We're trying to find a friend
And only time can tell us
If we win or if we lose
And who will stand beside us
When there's darkness all around me
You're the light I see
When I need someone to ease my troubled mind
You're the answer to my prayer
And you're with me everywhere
You're my angel, miracle, you're all I need tonight
Give me shelter from the rain
You breathe life in me again
You're my angel, miracle, you're all I need to know, oh, tonight
Oh, You're my angel
You're the answer to my prayer
And you're with me everywhere
You're my angel, miracle, you're all I need tonight
Give me shelter from the rain
You breathe life in me again
You're my angel, my miracle, you're all I need to know, tonight
You're all I need to know
Oh, you're my angel
My angel, my my my my my angel.
one song sums it up very easy after
Hurt
Seems like it was yesterday when I saw your face
You told me how proud you were but I walked away
If only I knew what I know today
I would hold you in my arms
I would take away the pain
Thank you for all you've done
Forgive all your mistakes
There's nothing I wanna do
To hear your voice again
Sometimes I want to call you but I know you won't be there
I'm sorry for blaming you for everything I just couldn't do
And I hurt myself by hating you
Somedays I feel broke inside but I won't admit
Sometimes I just want to hide 'cause it's you I miss
You know it's so hard to say goodbye when it comes to this
Would you tell me I was wrong?
Would you help me understand?
Are you looking down upon me?
Are you proud of who I am?
There's nothing I want to do
To have just one more chance
To look into your eyes and see you looking back
I'm sorry for blaming you for everything I just couldn't do
And I've had myself
If I had just one more day, I would tell you how much that
I've missed you since you've been away
Oh, it's dangerous
It's so I'm afraid to try to turn back time
I'm sorry for blaming you for everything I just couldn't do
And I've had myself
By hurting you
by Christina Aguilera
Message edited 10/19/2008 3:22:55 AM.
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| Posted 10/19/08 2:44 AM |
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dawnie
Barb-Never removing this pic!
Member since 11/05 3932 total posts
Name:
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Re: Please stop me from doing research...
It is hard not to do research but I think it gives you the feeling you are doing something when your life is spinning out of control .
My stepfather was diagnosed with pancreatic cancer. My sister, stepsister and I did tons of research online on it and the outlook looked so grim it made it worse.
We did look up different treatments, hospitals and doctors looking for a glimmer of hope. He was going to a doctor at South Nassau and we didn't feel that that was the best hospital to be able to treat such a serious disease. It didn 't look promising and made us feel worse but at least we felt like we were doing something. We found a specialist at Columbia Presbyterian through the internet. My sisters and I made and appt and she had some hope.
5 yrs later last and my daddy is still here!
He was lucky that the tumor was on the opposite side of his liver.
The internet can drive you crazy. I think it is important to be informed.
My sisters and I looked for every trial, new medicine, alternative medicines. We were not letting him go without a fight!
God bless you and your fight!
Praying for another miracle cancer survivor!
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| Posted 10/19/08 5:09 AM |
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Ambersmom
Straight up nasty
Member since 5/05 7740 total posts
Name:
Sharon
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Re: Please stop me from doing research...
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| Posted 10/19/08 7:13 AM |
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